Are any neurologists taking notice?

[mom10789]

mac
thosr are lyme
what lab is testing you
shell

[gwa]

I am curious because I have been taking the doxy and NAC since the end of August. I added Azit on MWF the beginning of October and still have not had reactions to anything. It is as if I am not taking anything.

Maybe I have some goofy disease that responds to nothing.

gwa

[mom10789]

i think everyone is soooooooooo different
i started in aug and my ribs neck hands arms are agony
my gp won't even add another abx yet
and i could not do NAC
have you had any improvements
shell

[gwa]

The one improvement that I have had is that once I started the azith, my rosacea got much better.

My MS problems, balance and weak legs have remained status quo.

gwa

[MacKintosh]

Shell, to clarify, I was talking with my prescribing doctor about someone else's case. My MS responded beautifully to abx and improved steadily, with little reaction to any of the abx.

I am absolutely fine after two years on abx and plan to do six months of roxy and more continuous flagyl just to be sure I killed all the little pockets of bacteria, then I will be going intermittent sometime in April or May of 2008.

I did not want to erroneously name the co-infections, just speculated on what I may recall from the brief conversation. I said I would check on it and post the info later, which I will. (My interest level in co-infections is mild curiosity, as it would appear this never applied to my own case of MS.)

If, indeed, part of the list of co-infections she was talking about is Lyme, then that makes sense. People often test negative for Lyme when they actually have it, so it may be there, hampering the effectiveness of the treatment of the cpn infection for this particular friend.

[mom10789]

how long has your friend been on abx they may test positive now that the LC-little critters have had a shake up
i thought you couldn't get roxy in the US