MS HISTORY
Name: Margaret
Male/Female: (F)
Age: 45 at time of procedure
Date(s) & type of neurological diagnosis 2001 diagnosed with RRMS after years of symptoms
MS treatments: Copaxone – 6 years, Rebif- 2 years, various tablets for fatigue, pain etc.
MS symptoms before stenosis intervention: Pain in neck, numb shoulder arm and hand on left hand side, loss of sensation in lower legs, purple feet, cold hands and feet, balance issues, pain, urinary issues, tremor , fatigue, cog fog, optic neuritis, memory issues, word finding etc. Also hard of hearing wear two hearing aids, profoundly deaf to high pitches but can manage with hearing aids although difficult in noisy environments, have a feeling that is this connected?
Number of relapses before intervention , varying from year to year, but the everyday symptoms have become more problematic over the last two years, mainly the balance, pain and loss of sensation in arms/hands
EDSS before CCSVI intervention ranges between 5.5
FSS before CCSVI intervention: 2.2
Are you using Inclined Bed Therapy I.B.T? Y
Have you had testing (and possibly procedure) for blockage yet: Y Poland 04/05/2010
STENOSIS PROCEDURE HISTORY
Date/location of testing/procedure: 5/5/10
Type of venographic study: (MRV, Doppler)
Diagnosis: CCSVI left jugular vein
Type of procedure: angioplasty left jugular
Number of relapses since first CCSVI intervention: 0
Impact on your MS symptoms in words (include date in brackets if there have been multiple updates):
One week post procedure... will update monthly
Better balance
Warm hands and feet
More energy
7th June 2010
One month update.
My balance is 90% better than it was before the procedure.
Hands and feet are still warmer, my feet still change colour from time to time, but nothing out of the ordinary really.
I am sleeping well and have more energy during the day.
I seem to have been plagued with infections this month, first a UTI after the catheter, now a chest infection due to a cold. As such I can't really get a real measure of the full benefits as yet, but it gives me something to look forward to
My head is much clearer, the cog fog seems to have lifted, although I am finding that as it gets towards the end of the day I can still have problems word finding. But then again I suppose this can be said for many people who are tired?
I am still trying to be realistic and am not looking for miracles, but that does not stop me looking
I will update again in another month, hopefully the infection will be long gone by then.
6 MONTH UPDATE.{/b}
Well things have been OK these past 6 months. My balance is still very much improved, my feet are still warm most of the time.
The initial lifting of the cog fog only lasted about 6 weeks. I had thought that this may be due to the numerous infections that I had in the summer, but unfortunately the infections are gone, but the fog still remains.
I still have numbess in my left arm and pain in my neck, these were all issues for me before the procedure.
I am due back in Poland on the 1st Dec for a check up and a second procedure if nec. If I have restenosed then maybe they will give me a stent the next time. We will see...
