CCSVI treatment available in the U.S.!

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.
Post Reply
Cece
Family Elder
Posts: 9335
Joined: Mon Jan 04, 2010 3:00 pm
Contact:
Contact Cece

Post by Cece »

FlashHack, lol, that is precise! Hopefully you are next.

June 16th is so soon...congrats!!
"However, the truth in science ultimately emerges, although sometimes it takes a very long time," Arthur Silverstein, Autoimmunity: A History of the Early Struggle for Recognition
Top
User avatar
FlashHack
Family Elder
Posts: 173
Joined: Wed Jan 20, 2010 3:00 pm
Location: Portland, OR

Post by FlashHack »

:oops:
Top
User avatar
bmk1234
Family Elder
Posts: 101
Joined: Sun Jan 31, 2010 3:00 pm

Post by bmk1234 »

FlashHack wrote:At the risk of splitting hairs, what time zone are you in?
Central Time in the great state of Minnesota.
Top
User avatar
BooBear
Family Elder
Posts: 339
Joined: Mon Mar 01, 2010 3:00 pm
Location: Chicagoland
Contact:
Contact BooBear

Post by BooBear »

I am also on Central Time in the great state of Illinois. :)

I can't wait I can't wait I can't wait I can't wait!
Three veins angioplastied.  One renewed life.  
Top
User avatar
ljh
Getting to Know You...
Posts: 11
Joined: Fri Mar 26, 2010 3:00 pm
Contact:
Contact ljh

Re: was given the balloon angio on May 6th

Post by ljh »

devinhubbard wrote:on both jugulars and my azygous. No more brain fog or fatigue. No more double vision. Feel so good! I want this for everyone.
HEY DEVIN! Wonderful! When it happening??
Top
User avatar
pklittle
Family Elder
Posts: 341
Joined: Sun Mar 07, 2010 3:00 pm

Post by pklittle »

FlashHack wrote::oops:
No date yet Flash?
Top
User avatar
MS_mama
Family Elder
Posts: 107
Joined: Mon Nov 09, 2009 3:00 pm
Contact:
Contact MS_mama

Post by MS_mama »

patience, patients, you shall receive THE call.

Got mine today from Dr. Mandato. Great guy, answered all my questions and seemed pretty confident. He has seen some amazing improvements in patient symptoms. Is is psychosomatic or real? he asked, "We don't know but time will tell." although he indicated that the sx improvement were so dramatic he doubted that it was psychosomatic in origin.

Even after talking to him, I'm looking at a week or two before I get called about booking an appointment and as late as November if I want to be treated in the (cheaper) ambulatory center vs. the hospital. Hospital pts may possibly (BIG MAYBE according to the dr) be seen as early as late this summer/september.

guess that means I *still* have to keep my phone glued to my hip. Oh well.
dx RRMS Jun. 2009...on Copaxone and LDN and waiting for my turn to be "liberated"<br />
Top
User avatar
FlashHack
Family Elder
Posts: 173
Joined: Wed Jan 20, 2010 3:00 pm
Location: Portland, OR

Post by FlashHack »

MS_mama wrote:patience, patients...
Yes, Mamma... :roll:
Top
Cece
Family Elder
Posts: 9335
Joined: Mon Jan 04, 2010 3:00 pm
Contact:
Contact Cece

Post by Cece »

MS_mama wrote:Hospital pts may possibly (BIG MAYBE according to the dr) be seen as early as late this summer/september.
Any idea why it is a big maybe?
"However, the truth in science ultimately emerges, although sometimes it takes a very long time," Arthur Silverstein, Autoimmunity: A History of the Early Struggle for Recognition
Top
User avatar
MS_mama
Family Elder
Posts: 107
Joined: Mon Nov 09, 2009 3:00 pm
Contact:
Contact MS_mama

Post by MS_mama »

"maybe" he said because the schedule is constantly changing. He didn't want to promise that only to find out that by the time I got contacted it would be booked out till fall.
dx RRMS Jun. 2009...on Copaxone and LDN and waiting for my turn to be "liberated"<br />
Top
User avatar
BadCopy
Family Elder
Posts: 141
Joined: Sun May 23, 2010 2:00 pm
Location: 10,000 Lakes

Post by BadCopy »

BooBear wrote:I am also on Central Time in the great state of Illinois. :)

I can't wait I can't wait I can't wait I can't wait!
I contacted CCP the same night as CECE but i didnt call them until about 10 pm central time and the good Dr called today. Should get a call in 3-4 weeks for scheduling. Estimate of late August at the earliest for treatment. This is assuming all goes smoothly.

Hope that helps ease the nerves.
Top
User avatar
BooBear
Family Elder
Posts: 339
Joined: Mon Mar 01, 2010 3:00 pm
Location: Chicagoland
Contact:
Contact BooBear

Post by BooBear »

I called on the 12th...still waiting for my call back.

I haven't been feeling well lately, either, so it isn't helping my wait any to feel so crappy. Blooming weather here isn't helping- it is so dang hot outside!

I just hope I hear from them soon.
Three veins angioplastied.  One renewed life.  
Top
User avatar
FlashHack
Family Elder
Posts: 173
Joined: Wed Jan 20, 2010 3:00 pm
Location: Portland, OR

I Have A Date!!

Post by FlashHack »

Just got the second call. I have been scheduled for July 12th!!

For those who were wondering about how bmk1234 got such an early date (June 16th) I believe it was due to a cancellation.

Now please excuse me while I go cash in my frequent flier miles... :D
Top
User avatar
mshusband
Family Elder
Posts: 249
Joined: Sun Jan 24, 2010 3:00 pm
Location: Pittsburgh, PA, USA
Contact:
Contact mshusband

Post by mshusband »

Congratulations Flash ...

It's starting to come together ... this snowball rolling down hill is picking up speed.
Top
User avatar
BooBear
Family Elder
Posts: 339
Joined: Mon Mar 01, 2010 3:00 pm
Location: Chicagoland
Contact:
Contact BooBear

Post by BooBear »

Congrats, Flash!! I hope they call me soon!
Three veins angioplastied.  One renewed life.  
Top
Post Reply
  • Similar Topics
    Replies
    Views
    Last post

Return to “Chronic Cerebrospinal Venous Insufficiency (CCSVI)”