Diet and CCSVI

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.
81Charger
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Post by 81Charger »

On Vit. D is it D3 that we need or D2? I know that one is better than the other.

Thanks Glenn
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sunlounger
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Post by sunlounger »

Terry Wahls last blog entry



November 24, 2009
Chronic venous blockages

I've been asked by many individuals to comment upon the issue of the chronic venous blockages found in the brains of MS patients and whether it is worthwhile to investigate one's venous status.

I have chosen not to do so. I do note that numerous studies have demonstrated than an increased consumption of brassica (cabbage family) or allicin (garlic and onion family) vegetables make blood more fluid and our white blood cells less sticky. The result is that the problems of sluggish blood flow are greatly reduced. This lowers significantly the risk of heart disease and stroke.


In theory one could have significant improvement in blood flow to the brain by consuming 300 to 600 grams of sulfur rich vegetables (cabbage, onion and mushroom family) vegetables. That is the route that I advocate in my clinical practice. Each person must make their own decision regarding what is in their best interest. In general the long term effect from intensive nutrition is often superior to procedures -- because traumatizing blood vessels with stents and other instrument is not without risk. The other benefit to aggressively using intensive nutrition is it under the individual's control.
T
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skydog
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Post by skydog »

I am hopping for the best form both the procedure to keep open the veins that were pancaked and diet to keep the stented area free flowing. Diet is huge when it comes to the vascular system. Thanks for your post T. Best of health, Mark
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tzootsi
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Post by tzootsi »

according to the latest research, D3 is preferable to D2. I believe it is more readily utilized by our bodies.
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jimmylegs
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Post by jimmylegs »

jay, you're welcome, and no i have not checked out the ip6 idea. i think too much zinc could be as bad as too little. statistically in the studies i have seen ms patient values are lower on average for zinc. that's not to say i haven't heard about clusters in industrial zinc locations.. there are other issues at play there but i'm not going to look into that right now...

in my case there is absolutely no way that excess zinc caused my ms. i was sooooo deficient when i asked for my zinc test, i was less than half what healthy controls enjoy on average for zinc status.

81, tzootsi is right you want D3 for sure!
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81Charger
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Post by 81Charger »

Thanks for the info on vitD

Glenn
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jimmylegs
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Post by jimmylegs »

ok jay i looked up ip6 and now that i know that is phytic acid, yes i know what that is - for starters it's a form of phosphorus that is not readily bioavailable, high phytate foods etc, which can deplete important nutrients. is that what you meant by the ip6 idea?
JL
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jay123
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Post by jay123 »

Check out the other threads but there is a lot of talk of using this to get rid of the iron in the brain, kind of a 'super green tea'!
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jimmylegs
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Post by jimmylegs »

ohhhh.. no i have read a bit about it before now that i'm looking.. zinc helps regulate iron and has about 200 other things to help out with in the body.. meanwhile ip6 may strip iron, but might also strip calcium, magnesium, zinc, all the things i try desperately to ADD to my dietary intake each day.. think i'll give that one a miss for the time being :S
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Rebecca
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Post by Rebecca »

I very much appreciate the intelligent discussion of the importance of nutrition in the treatment of MS. This reflects my own philosophy because (1) the research shows nutrition matters and (2) isn't it common sense to realize we feel better when we eat better?

I do have a question though that I would like to ask--it relates to why so many with MS totally reject the idea that nutrition matters. I run across many with MS who are totally convinced that diet does not matter in the treatment of MS. No matter what one says, there is no reasoning with such individuals.

What gives? Why are some so resistant to even thinking about the scientific evidence involved and considering the common sense reasons for eating well? For the life of me, I just don't get it.

Rebecca
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Johnson
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Post by Johnson »

Very interesting discussion indeed.

I have never focused too much on minerals, beyond "common knowledge and sense"; selenium, cal/mag, etc., but mostly relied on a 90% no-flesh diet (grew up vegetarian, but not vegan by any means), and 99% organic. Minimal processing, slow, low-temperature cooking, lots of sea vegetables, and on and off supplementation with iodine, all kinds of enzymes and anti-oxidants, blah, blah, everything in cycles. Ayurveda, food as medicine. No medications other than homeopathics (antibiotics only when suppuration threatens).

Something that I found quite interesting was the references to phytic acid and phosphorous. I saw a (brilliant) naturopath when I first got hit, and amongst many things, she gave me homeopathic phosphorous (1M) for exacerbations, and it always helped immensely. Of course, if you know of homeopathics, they carry the quantum energy of the substance, but no trace of the substance. Look into that for the benefit of phos. without the potential negatives. Of course, phosphorous is elemental to bones and teeth, amongst other things, and I am intuiting a connection with D3 (don't mind that last bit, sometimes I am channeling stuff. Grin), and yes, it is D3 that you want. E8 if you take Vit. E. Reduced glutathione if you take glutathione, methyl-sulphyl methane over glucosamine sulfate, etc. Not all supplements are made equal, and many can be deleterious to your health.

I feel that minerals should come from one's food and water, and I only supplement when I know of, or suspect deficiency, though D3, I take as a matter of course. There is plenty of usable zinc in pumpkin seed, banana, nuts, and a host of other things. Nutritional Almanac is a great reference, and Sally Fallon writes a lot about broths, fermented foods, etc.

For iron chelation, Green Tea Extract is purported to be effective, but reviews are mixed, from what I have read, and there is purportedly a risk of hepatic problems. There are chemical iron chelators, but I don't know much about them (prescription?). Personally, I am leary of messing with the stasis that is current in my brain, and will wait until the blood is flowing out first. I believe that fibrin-scouring enzymes in very high doses have triggered a long attack that is uncharacteristic for me. I have an idea that the fibrin plaques in the brain are not "scars" so much as desperate patches on the BBB. That is another story though. I would definitely do any chelation under supervision of someone qualified.

Holy Moly! am I still on topic?

/blather
My name is not really Johnson. MSed up since 1993
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jimmylegs
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Post by jimmylegs »

rebecca, it's just something you get used to.. i suggest there are three large deterrents to many.. 1) it is intimidating to get one's head around 2) once one gets it it could mean a lot of work and particularly drastic changes for some and 3) one's magical all-knowing doctor doesn't think it matters (i am lucky to have an open-minded supportive doctor).

j, i have to respond to your thoughts later as it's time to get ready for work!
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Algis
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Post by Algis »

There is a thread for that:

http://www.thisisms.com/forum-9.html

Here I thought we were debating on CCSVI :?:
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jay123
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Post by jay123 »

Algis - check the title of the thread, this is a debate on what nutrients are best for vein health and iron.
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Algis
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Post by Algis »

It just seems that it turns out differently... But go ahead; be our guest :)
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