Dr Simka (Poland)
CCSVI
Good Morning TiMS,
CCSVI Victory Club Worldwide
http://ccsvivictory.club.officelive.com/default.aspx
Slainte Mo Chara
Edser & Anna
CCSVI Victory Club Worldwide
http://ccsvivictory.club.officelive.com/default.aspx
Slainte Mo Chara
Edser & Anna
Never judge a Book by it's cover.
Edss Before Procedure:6
Edss After Procedure:4
Edss Before Procedure:6
Edss After Procedure:4
CCSVI
Good afternoon TiMS & Irishmum (Gaillimh)???
I didn't go & see my NEURO.The day i was suppose to go & visit him 02/02/2010,i e-mailed him asking was i going to meet him this time or someother Dr as per usual.He or his secretary has not responded to me.So i'm totally pi**ed off with him(NEURO) & the IRISH medical system.I'm making an appointment,true my own GP to go & visit an eye doctor & a vascular suergon... 1 ...Eye Dr because the sight appears to be coming back very slowly in my BLIND eye... 2 ... Vascular Suergon,to see if he has heard of CCSVI & too see if he might be interested in helping me out with my 3 mounth check-up.This would save me time & money by not returning to Katowice(Poland)
I don't have an update as i'm staying away from my laptop,as myself & Anna are getting out more for walk's,drives in the car.In general i'm getting my life back & it's not getting away from me,Life is for living... so ... i'm going to live it to the best of my abbility.
Slainte Mo Chara
Edser & Anna
...LiveTo Ride...Ride to Live...
I didn't go & see my NEURO.The day i was suppose to go & visit him 02/02/2010,i e-mailed him asking was i going to meet him this time or someother Dr as per usual.He or his secretary has not responded to me.So i'm totally pi**ed off with him(NEURO) & the IRISH medical system.I'm making an appointment,true my own GP to go & visit an eye doctor & a vascular suergon... 1 ...Eye Dr because the sight appears to be coming back very slowly in my BLIND eye... 2 ... Vascular Suergon,to see if he has heard of CCSVI & too see if he might be interested in helping me out with my 3 mounth check-up.This would save me time & money by not returning to Katowice(Poland)
I don't have an update as i'm staying away from my laptop,as myself & Anna are getting out more for walk's,drives in the car.In general i'm getting my life back & it's not getting away from me,Life is for living... so ... i'm going to live it to the best of my abbility.
Slainte Mo Chara
Edser & Anna
...LiveTo Ride...Ride to Live...
Never judge a Book by it's cover.
Edss Before Procedure:6
Edss After Procedure:4
Edss Before Procedure:6
Edss After Procedure:4
CCSVI
Good Morning TiMS,
Interventional Radiologist Dr Paul Crowe is now offering a MR protocol privately for CCSVI.Interventional Radiologist Dr Paul Crowe Spire Parkway Hospital,1 Damson Parkway,Solihull,West Midlands,B91 2PPTel. 0121 - 424 0287 (secretary, direct line at Birmingham Heartlands Hospital)E-mail paul.crowe@drpaulcrowe.com
Slainte Mo Chara
Edser & Anna
Interventional Radiologist Dr Paul Crowe is now offering a MR protocol privately for CCSVI.Interventional Radiologist Dr Paul Crowe Spire Parkway Hospital,1 Damson Parkway,Solihull,West Midlands,B91 2PPTel. 0121 - 424 0287 (secretary, direct line at Birmingham Heartlands Hospital)E-mail paul.crowe@drpaulcrowe.com
Slainte Mo Chara
Edser & Anna
Never judge a Book by it's cover.
Edss Before Procedure:6
Edss After Procedure:4
Edss Before Procedure:6
Edss After Procedure:4
- ClaireParry
- Family Elder
- Posts: 218
- Joined: Tue Oct 20, 2009 2:00 pm
- Location: Worcestershire, U.K
CCSVI
Good Evening TiMS,
I'm in Aaaawwww here as i write this.I'm just after coming back from my 3rd walk today.Each walk was aprx 1000mtrs & my leg's are actually starting to function as legs.My Knees are bending now when i am walking & my heel touches the ground 1st...then the front of my foot,like GOD intended.I feel normal.
Slainte Mo Chara
Edser & Anna


Slainte Mo Chara
Edser & Anna
Last edited by Edser on Tue Feb 16, 2010 10:09 pm, edited 1 time in total.
Never judge a Book by it's cover.
Edss Before Procedure:6
Edss After Procedure:4
Edss Before Procedure:6
Edss After Procedure:4
- happy_canuck
- Family Elder
- Posts: 270
- Joined: Sat Nov 28, 2009 3:00 pm
- Location: Victoria, BC Canada
- Contact:
Re: CCSVI
That's fantastic news! I haven't hit the ground with my heel-toe correctly for years. With me, it's more like "shuffle, shuffle..."Edser wrote:Good Evening TiMS,
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I'm in Aaaawwww here as i write this.I'm just after coming back from my 3rd walk today.Each walk was aprx 1000mtrs & my leg's are actually starting to function as legs.My Knees are bending now when i am walking & my heel touches the ground 1st then the front of my foot,like GOD intended.I feel normal.
Slainte Mo Chara
Edser & Anna
Sandra
National CCSVI Society: <strong><br /><a href="http://tinyurl.com/44znbct">http://tiny ... 44znbct</a> ~Website<br /><a href="http://tinyurl.com/3wzmkmg">http://tiny ... 3wzmkmg</a> ~Facebook</strong><br />
- fiddler
- Family Elder
- Posts: 398
- Joined: Wed Dec 02, 2009 3:00 pm
- Location: Fredericton, Canada
- Contact:
Tracking project
Edser, you old trout, I love to follow your progress - I've been following your story since before you went to Poland - but I can't find your posting in the CCSVI thread. Now why would that be?
...Ted
...Ted
Dx SPMS in 2004. Liberated 29/04/2010.
My blog: www.my-darn-ms.blogspot.com
My blog: www.my-darn-ms.blogspot.com
- berriesarenice
- Family Member
- Posts: 80
- Joined: Tue Dec 01, 2009 3:00 pm
- Location: USA
- Contact:
Edser you are simply the best
I love all yours and Anna’s updates, every inch of them
Do it again “you old trout”

I love all yours and Anna’s updates, every inch of them

Do it again “you old trout”

Last edited by Reytan on Tue Feb 16, 2010 9:23 pm, edited 1 time in total.
- ClaireParry
- Family Elder
- Posts: 218
- Joined: Tue Oct 20, 2009 2:00 pm
- Location: Worcestershire, U.K
CCSVI
Good Morning TiMS,
To-Day is OFICALLY my 1st anniversary with MS 17/02/2009-17/02/2010.PPMS??? That is the QUESTION??? As my NEURO has never confermed this.
Slainte Mo Chara
Edser & Anna
To-Day is OFICALLY my 1st anniversary with MS 17/02/2009-17/02/2010.PPMS??? That is the QUESTION??? As my NEURO has never confermed this.
Slainte Mo Chara
Edser & Anna
Never judge a Book by it's cover.
Edss Before Procedure:6
Edss After Procedure:4
Edss Before Procedure:6
Edss After Procedure:4
- AllyCanada
- Getting to Know You...
- Posts: 19
- Joined: Mon Nov 30, 2009 3:00 pm
WOW fantastic Edser...I also love reading your posts...
Fiddler and berriesarenice do you both have your dates yet for Poland in April...I am there April 9-19th ..testing is on April 13th and procedure April 14th. I love the saying "you old Trout" as I live in Northern Manitoba and Trout is plentiful
stay well,
Ally
Fiddler and berriesarenice do you both have your dates yet for Poland in April...I am there April 9-19th ..testing is on April 13th and procedure April 14th. I love the saying "you old Trout" as I live in Northern Manitoba and Trout is plentiful

stay well,
Ally