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View topic - First liberation procedure in UK | ThisIsMS.com
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First liberation procedure in UK
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GiCi
Family Elder


Joined: Aug 15, 2009
Posts: 104

PostPosted: Wed Oct 14, 2009 12:30 pm    Post subject: First liberation procedure in UK Reply with quote

I am back home following venogram and bilateral balloon dilatation of the jugular veins at 2 pm.
I feel well, my back is less stiff, my movements are quicker and my right leg feels already more powerful.
I am not on any blood thinners.
The procedure was carried out at the Royal Victoria Hospital in Belfast by the radiologist Dr Anton Collins while I was under the care of the vascular surgeon Mr Robin Baker.
All the team were extremely excited and believe in Zamboni's theory.
I sincerely hope that today represented a breakthrough and that many patients will benefit in Northern Ireland. The ice has been broken: I look forward to a bright future for MS sufferers.
Thank you all for the good wishes,
GiCi
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ErikaSlovakia
Family Elder


Joined: Jul 30, 2009
Posts: 829
Location: Slovakia, Europe

PostPosted: Wed Oct 14, 2009 12:40 pm    Post subject: Reply with quote

Dear GiCi, I am so happy for you!
Excellent!
Erika
_________________
LUCKY GIRL, Aug. 7, 09 Doppler Ultras. made by Dr. Simka in Poland, left Jugularis valve problem, RRMS since 1996, EDSS 5,5, Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, IBT-for 3 months, never on DMDs
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Ernst
Family Elder


Joined: Nov 16, 2008
Posts: 208
Location: Rovaniemi

PostPosted: Wed Oct 14, 2009 12:47 pm    Post subject: Reply with quote

Dear Sir,

Wonderful news, just wonderful. I think this is very important happening, one big step forward with CCSVI. Very happy for you and always reading your wise comments with big interest.

Ernst, From Finland
_________________
Marja's procedure in Poland, 25.june 2010..
http://www.youtube.com/watch?v=uMwWEsSouEQ
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bestadmom
Family Elder


Joined: May 19, 2009
Posts: 517
Location: CT

PostPosted: Wed Oct 14, 2009 12:52 pm    Post subject: Reply with quote

Gici,

I am so happy for you and am excited by your immediate improvements. Thank you for blazing the trail!

Michelle
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Needled
Family Elder


Joined: Jan 15, 2009
Posts: 322
Location: Connecticut

PostPosted: Wed Oct 14, 2009 12:54 pm    Post subject: Reply with quote

Gici, That's all great news. I'm glad it went well and you're feeling the benefits so quickly. I hope you continue to improve. Just amazing! Very Happy
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Arcee
Family Elder


Joined: Jan 06, 2005
Posts: 338
Location: Massachusetts, USA

PostPosted: Wed Oct 14, 2009 1:23 pm    Post subject: Reply with quote

GiCi, congratulations! How exciting for you, and how encouraging for folks in Northern Ireland and all around the globe. So glad you can share the information. Take care of yourself and enjoy the positive changes.
_________________
diagnosed RR in spring '04
1 stent placed in left jugular vein 7/15/09
on and off Copaxone
allergric to interferons and Tysabri
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Holz
Newbie
Newbie


Joined: Oct 14, 2009
Posts: 1
Location: Belfast northern ireland

PostPosted: Wed Oct 14, 2009 1:29 pm    Post subject: Wee done Reply with quote

Well done dad!!! So proud of you Smile love you xxx
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Rokkit
Family Elder


Joined: May 20, 2009
Posts: 445

PostPosted: Wed Oct 14, 2009 1:44 pm    Post subject: Re: Wee done Reply with quote

Holz wrote:
Well done dad!!! So proud of you Smile love you xxx


Now that's a cool post.

Congrats GiCi, for yourself, and for what you have started in the U.K.
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fernando
Family Elder


Joined: Jul 16, 2009
Posts: 117
Location: Argentina

PostPosted: Wed Oct 14, 2009 1:59 pm    Post subject: Reply with quote

Congratulations!

Forza GiCi!
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cheerleader
Family Elder


Joined: Sep 11, 2007
Posts: 3137
Location: southern California

PostPosted: Wed Oct 14, 2009 2:03 pm    Post subject: Reply with quote

Bravo, maestro!!!
Good work, GiCi. Now go enjoy your recovered zest and zeal!
salute,
cheer
_________________
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS
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radeck
Family Elder


Joined: Feb 17, 2009
Posts: 398

PostPosted: Wed Oct 14, 2009 2:58 pm    Post subject: Reply with quote

Fantastic news!
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Loobie
Family Elder


Joined: Sep 12, 2006
Posts: 2080
Location: Dayton, Ohio USA

PostPosted: Wed Oct 14, 2009 3:38 pm    Post subject: Reply with quote

Good work dude.
_________________
http://myhopefuljourneyintoactualmsrecovery.blogspot.com
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mrhodes40
Family Elder


Joined: Sep 24, 2004
Posts: 2058
Location: USA

PostPosted: Wed Oct 14, 2009 5:08 pm    Post subject: Reply with quote

Gici, Congratulations on the successful procedure in Ireland, first Liberation outside of Italy! Wow, it is wonderful news for the entire world.

Thank you for being persistent and makeing this happen, and also for taking the time to share with us how you did it, we can all follow your example.

Very Happy Very Happy Very Happy
_________________
Not offering medical advice, I am just a patient too!
Regimen thread
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gibbledygook
Family Elder


Joined: Feb 15, 2005
Posts: 1173
Location: London

PostPosted: Thu Oct 15, 2009 6:00 am    Post subject: Reply with quote

Oh my goodness! This is FANTASTIC news. I hope that this procedure continue to benefit you and you recover well. Do you think other UK patients would be able to contact these doctors? Was the procedure on the NHS?!

best wishes for your speedy recovery

Alex
_________________
1st symptoms Jan 01, last edss by doc 6.5. 06/09 bilateral jugular occlusions treated with 6cm stent on left, 4cm stent on right, 1 relapse since stent op
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LR1234
Family Elder


Joined: Feb 12, 2009
Posts: 1138
Location: London, UK

PostPosted: Thu Oct 15, 2009 8:52 am    Post subject: Reply with quote

Hi Gici,
I am so pleased you had the procedure done in the UK!!!!
Thanks so much for opening the doors for us other UKer's

L x
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