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Joined: Oct 16, 2009 Posts: 855 Location: St. Louis, Missouri
Posted: Mon Nov 16, 2009 7:03 pm Post subject: Who are the BIG names in CCSVI ?
The CCSVI Pioneers :
Dr. Roberto Bergamaschi, Director of the MS Center of Pavia (Italy)
Steven R. Brenner, MD, Associate Professor Department of Neurology & Psychiatry, St Louis University School of Medicine
Dr. Brenner responded favorably via an eletter response to Dr. Zamboni's paper "Chronic cerebral venous insufficiency in patients with multiple sclerosis"
Dr. John Cooke, MD, PHD, professor of cardiovascular medicine, Stanford University School of Medicine
Dr. Patricia Coyle, Stony Brook University Hospital, NY dept. of Neurology
Gary Cutter
Professor of Biostatistics and Head of the Section on Research Methods and Clinical Trials, Birmingham, University of Alabama, USA
Gary Cutter developed an outcome measure for motor and cognitive efficiency in multiple sclerosis known as MSFC. He is Professor of Biostatistics at the University of Alabama
Dr. Michael Dake
Chief of Cardiovascular and Interventional Radiology, Stanford University School Of Medicine, Stanford (USA)
He was the first surgeon to accept Prof. Paolo Zamboni’s suggestion to operate on stenosis associated with CCSVI
Claude Franceschi
Head of Vascular Laboratories, Saint Joseph Hospital, Paris (FRA)
No doubt the greatest venous haemodynamics expert in the world
Dr. Ellliot Frohman, University of Texas Southwestern Medical Center Neurology, Dallas, Texas
Giulio Gabbiani
Head of the Department of Pathology and Immunology, Centre Médical Universitaire, Genčve (CH)
One of the greatest world experts in vessel wall structure
Roberto Galeotti
Head of the Interventional Radiology Section, University Hospital of Ferrara, Ferrara (ITA)
E. Mark Haacke
Director of the The Magnetic Resonance Imaging Institute for Biomedical Research, Detroit (USA)
Inventor of the SWI system, i.e. the most sophisticated and advanced system for the diagnosis of multiple sclerosis
Byung-Boong Lee
Chairman Georgetown University School of Medicine,Washington DC (USA)
Chairman of the International Consensus Conference on congenital venous malformations
Dr N. Med. Tomasz Ludyga, specialist of vascular surgery, specialist of general surgery, specialist angiology, EUROMEDIC, Katowice, Poland
Dr. Ludgya works with Dr. Marian Simka perfoming CCSVI stenting procedure in Katowice, Poland
Francesco Mascoli
Director of the Vascular Surgery B.U., University Hospital of Ferrara, Ferrara (ITA)
Joseph Raffetto, MD, Lecturer on Surgery, Harvard University, Brigham and Women's Hospital
Prof. Juergen Reichenbach, PhD Inst. fur Diagnostische und Interventionelle Radiologie, Universitatsklinikum Jena
MRT-Gebaude Am Steiger, Philosophenweg 3, D-07743 Jena, GERMANY
He is working with Prof. M. Haacke
Fabrizio Salvi
Head of the Centre for Rare and Neuroimmune Diseases, Bellaria Hospital, Bologna (ITA)
He was the first neurologist to work with Prof. Zamboni in the clinical experimentation of “removing the venous obstruction" from MS patients
Franz Schelling
Author of several Hypothesis Papers in the 80’s on the etiologic role of the venous system in MS
Dr. Marian Simka, Department of Angiology, Pszczyna, Poland
Dr. Simka has written a paper on how to perform doppler sonography on the extracranial veins of MS patients
Dr. Simka is also imaging and stenting MS patients from all over Europe
Andrea Stella
Professor of Vascular Surgery, University of Bologna,Bologna (ITA)
Bianca Weinstock-Guttman
Jacobs Neurological Institute, Buffalo (USA)
One of the greatest experts of multiple sclerosis in the pediatric age
Paolo Zamboni
Director of the Centre for Vascular Diseases, University of Ferrara, Ferrara (ITA)
He discovered and described CCSVI in MS patients
Robert Zivadinov
Director of the Buffalo Neuroimaging Analysis Center, New York State University, Buffalo (USA)
One of the greatest experts in pharmacological trials for multiple sclerosis and efficacy measures using MRI
In addition to the BIG NAMES in CCSVI (i.e. Those researchers and doctors who were our pioneers) there is the second wave of doctors, researchers, hospitals and clinics where CCSVI is being studied and treated. Follow this link for more information :
Dear friends,
finally some good news. He replied Dr. Bergamaschi, Director of the Center SM of Pavia. Here is the text:
"Mr. Rasman Gent.mo.
MS Center of Pavia is an extremely interesting topic to which you refer, and there is every reason to perform the evaluations "vascular" (and possibly intervention) in patients with MS. In particular, we have an interventional neuroradiology, and we are on good terms with both Dr. Salvi, both with Prof. Zivadinov, with whom we work for years (often also sending our staff to Buffalo). We took to obtain the necessary equipment, and I think we shall shortly be operational.
If you like we can keep in touch for updates on the evolving situation.
Sincerely
Roberto Bergamaschi "
Erika _________________ LUCKY GIRL, Aug. 7, 09 Doppler Ultras. made by Dr. Simka in Poland, left Jugularis valve problem, RRMS since 1996, EDSS 5,5, Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, IBT-for 3 months, never on DMDs
Posted: Mon Nov 23, 2009 2:08 pm Post subject: Any in the Chicago area that might be familiar with this?
I think that so far, the closest place to my Chicago location would be in Detroit but I'm wondering if anyone knows of someone or any location in the Chicago, Indiana or Wisconsin area that would certainly be closer for me. Just curious. I'm thinking that there might be some back and forth involved or is this something whereby they test you and you have the procedure right away? Can I also hope that insurance will cover this procedure? If not, how much will I have to pay for it? Anyone know?
Joined: Oct 16, 2009 Posts: 855 Location: St. Louis, Missouri
Posted: Mon Nov 23, 2009 2:58 pm Post subject:
JoyceF... There are only 3 people in the world who I know about who can do the Liberation Treatment. In Italy, in Poland and at Stanford University. This is very new. The Jacobs Neurological Institute in Buffalo is currently doing a blinded trial screening for CCSVI. I suggest that you read all the information on the Just The Facts thread. Most of the BIG NAMES here are not interventional radiologists. They come from a variety of backgrounds as you may notice. Just teach yourself about CCSVI via this board and/or the Facebook CCSVI page.
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