Search found 360 matches

by Needled
Wed May 12, 2010 2:33 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Hi from Jeff, re. my stent treatment at Stanford
Replies: 268
Views: 53834

Great news!! No new lesions -- that's just awesome. I'm so happy for you both .:D :D
by Needled
Sun May 02, 2010 12:40 pm
Forum: Copaxone
Topic: Traveling with Copaxone
Replies: 12
Views: 4486

Also call your neuro and ask him/her to write a letter explaining the meds and why you're bringing needles on the plane. They know what to say. My neuro did one for me and I think it saves a lot of questions. It can only help.
by Needled
Tue Apr 20, 2010 9:13 am
Forum: Copaxone
Topic: Copaxone - daily vs. every other day???
Replies: 26
Views: 11614

Wow! Thanks very much for digging this up. Very interesting... Trial and error, indeed. It sounds more like throwing a dart, seeing where it sticks and not bothering to move it. A very scientific method of figuring out the dosing. :roll: And although I may be one of their more compliant patients (on...
by Needled
Tue Apr 20, 2010 7:03 am
Forum: Copaxone
Topic: Starting Copaxone - What is best time of day to inject?
Replies: 6
Views: 4071

I also do mine at night. Like PX, I don't have time in the morning. And plus some of the sites are a little tender or sore and my work clothes aren't as comfortable. But I would love to do it in the morning and get it out of the way for the day. PS: PX, I read your other Copaxone post and just haven...
by Needled
Sat Apr 17, 2010 1:02 pm
Forum: Copaxone
Topic: Copaxone - daily vs. every other day???
Replies: 26
Views: 11614

Thanks PX. Now I'm really curious about the dosing. Since I was so wrong with my original thought, I shouldn't say anything else. It's just that I assumed (yeah, I know what they say about that) at some point along the line they had tried other doses and/or dosing schedules, at least in the earlier ...
by Needled
Sat Apr 17, 2010 8:44 am
Forum: Copaxone
Topic: Copaxone - daily vs. every other day???
Replies: 26
Views: 11614

Thanks Dignan. I saw this yesterday with your other abstracts and wanted to ask -- Do you know what the original Copaxone dosing was during the FDA trial? I'm just guessing but they did they use daily doses of different amounts, like 20, 40 and 60? I can't believe 20 years later they still don't kno...
by Needled
Mon Mar 22, 2010 9:45 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 1620765

Dear Dr. Sclafani, Words can’t express my gratitude and admiration for what you’re doing and how you do it – the list is way too long and most people have said it better already. By this time you know it is deeply appreciated by many, many people. So thank you for your involvement and for taking us ...
by Needled
Wed Mar 10, 2010 8:47 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Marc (Wheelchair Kamikaze) is "going for it"
Replies: 52
Views: 10170

Thinking of you, Marc. Hope you have an early procedure time and things have already started...
by Needled
Sun Jan 31, 2010 7:03 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: We Must Send a Message to Stanford: Support CCSVI Trial
Replies: 44
Views: 10159

The Stanford trial is so important for everyone on this board. Please send your letters and emails, even if you've missed the suggested mailing date. Thanks Sammy Jo for bringing it to our attention and doing all the legwork to make it so much easier for all of us.
by Needled
Fri Jan 29, 2010 2:02 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Wheelchair Kamikaze-Some Shameless Self-Promotion
Replies: 46
Views: 5513

I just voted, and it wasn't a blind vote. Your blog is great, and I really hope you win. Way to go! :D
by Needled
Wed Jan 20, 2010 2:34 pm
Forum: Drug Pipeline
Topic: Fingolimod pill (FTY 720) filed for FDA approval
Replies: 3
Views: 3375

Fingolimod pill (FTY 720) filed for FDA approval

I hate having stuff in two places, but I also posted this in the General Discussion since I wasn't sure where it should go.

http://www.thisisms.com/ftopict-9851.html
by Needled
Wed Jan 20, 2010 2:30 pm
Forum: Natural Approach
Topic: Fingolimod pill (FTY 720) filed for FDA approval
Replies: 2
Views: 2149

Fingolimod pill (FTY 720) filed for FDA approval

Novartis just released this. I haven’t read it carefully yet but it does say they submitted Fingolimod’s FDA and EMEA applications in December. Novartis International AG (CH) - Novartis oral MS therapy FTY720 shows reduced risk of confirmed disability progression as published in New England Journal ...
by Needled
Sun Jan 03, 2010 7:17 pm
Forum: General Discussion
Topic: Introducing our new Volunteer Moderator
Replies: 25
Views: 11042

That's great, JL. I noticed the other day but didn't know where to post anything. Thank you!
by Needled
Sat Jan 02, 2010 3:18 pm
Forum: Drug Pipeline
Topic: Flingolimod and others
Replies: 2
Views: 2338

As of December 9, Novartis said it was still on track to file its application for Fingolimod with the FDA by 12/31/09. I didn't get a press release or see anywhere else that it happened, so I don't know what the delay is. Hopefully it shows up next week.
by Needled
Fri Dec 18, 2009 9:42 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI Association?
Replies: 1
Views: 1570

Hi Ben,
Welcome! Good questions. Other posts have discussed these issues, and it’s still in the works. Do you have any ideas? Have you had any luck or interest from any of your doctors -- neuro, pcp, local vascular and/or IR docs? Maybe they’d have suggestions.