DrSclafani answers some questions

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.
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Sharon
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Re: DrSclafani answers some questions

Post by Sharon » Mon Mar 02, 2015 1:28 pm

A conversation with Drs. Arslan and Sclafani

https://www.facebook.com/pages/CCSVI-Al ... =1&theater

btw - Dr. Sclafani looks great -- his swimming routine has really made a difference!

Sharon

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Re: DrSclafani answers some questions

Post by Cece » Mon Mar 02, 2015 7:43 pm

Sharon wrote:A conversation with Drs. Arslan and Sclafani

https://www.facebook.com/pages/CCSVI-Al ... =1&theater
Thanks Sharon!!

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Re: DrSclafani answers some questions

Post by Sharon » Sat Mar 14, 2015 1:32 pm

A conversation with Drs. Arslan and Sclafani recorded at the Society of Interventional Radiology Conference-Atlanta, March 1, 2015.

Audio recording has been posted on the CCSVI Alliance Facebook
https://www.facebook.com/pages/CCSVI-Al ... =2&theater

Thanks Dr. Sclafani for spending a few minutes to speak with me -- it was great to see you!

Sharon

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Re: DrSclafani answers some questions

Post by NHE » Sat Mar 14, 2015 11:31 pm

Sharon wrote:A conversation with Drs. Arslan and Sclafani recorded at the Society of Interventional Radiology Conference-Atlanta, March 1, 2015.

Audio recording has been posted on the CCSVI Alliance Facebook
https://www.facebook.com/pages/CCSVI-Al ... =2&theater

Thanks Dr. Sclafani for spending a few minutes to speak with me -- it was great to see you!
Thank you!

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Re: DrSclafani answers some questions

Post by Cece » Sun Apr 26, 2015 11:15 am

http://www.macleans.ca/authors/anne-kin ... from-ms-3/
Salvatore Sclafani, a Brooklyn-based interventional radiologist, agrees. “We need to put MS on the back burner and focus on the symptoms,” says Sclafani, who has performed some 500 CCSVI treatments. “It’s about whether venous outflow obstructions can result in neurological symptoms. It is about whether opening venous outflow improves some clinical manifestations often seen in MS.” CCSVI has been “politicized, discredited, misunderstood, denigrated, slandered and rejected out of hand,” he says. He would like to see a movement away from whether CCSVI causes MS and toward a focus on the most effective treatment techniques and an understanding of which patients are most likely to benefit. “Failure to do so would do an injustice to those who have venous obstructions of the cerebro-spinal venous outflow,” he says.

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Re: DrSclafani answers some questions

Post by SophieandElle » Fri Jun 26, 2015 9:49 am

Hi Dr. S -

I emailed you but am not sure if you have received it yet.

Do you normally treat refluxing IVJ's?

What about refluxing from a chest vein (axillary + lateral thoracic)? Is this something we could treat? Symptoms are debilitating - ultrasounds prove the reflux....need help very very much!

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Re: DrSclafani answers some questions

Post by Cece » Thu Jul 16, 2015 5:58 am

SophieandElle wrote:Do you normally treat refluxing IVJ's?

What about refluxing from a chest vein (axillary + lateral thoracic)? Is this something we could treat? Symptoms are debilitating - ultrasounds prove the reflux....need help very very much!
Here is the article SophieandElle sent me about this topic. It is from 1975, so it is dated, but I liked how it showed that the flow in the jugular veins can be reversed due to obstruction and take blood back up to the sinuses and down the other jugular. Flow will find a way but not necessarily an optimal way. http://www.ncbi.nlm.nih.gov/pubmed/1097608

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Re: DrSclafani answers some questions

Post by SophieandElle » Wed Aug 05, 2015 6:27 pm

Hi!

I have had moooreee testing and found today that my SVC on the R is refluxing and they are both "VERY small" according to the IR. He did not seem overly concerned but said that it could be causing some of my symptoms. He did not suggest treatment on this. What to do?

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Re: DrSclafani answers some questions

Post by daniel » Tue Sep 08, 2015 6:39 pm

is DrSclafani still seeing new patients?

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Re: DrSclafani answers some questions

Post by pelopidas » Fri Sep 11, 2015 7:36 am

daniel wrote:is DrSclafani still seeing new patients?
yes, he does!
getafix

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Re: DrSclafani answers some questions

Post by Sanda » Tue Sep 15, 2015 8:28 am

Hello good people,
My name is Maja, my sister has M.S. I need info regarding Dr. Sclafani e-mail ccsviliberation@gmail.com.
Is this e-mail still active or he changed it?
Thanks
Sanda's sis.

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Re: DrSclafani answers some questions

Post by daniel » Sat Sep 19, 2015 7:31 am

its difficult to go through 550 pages inthis thread...how can i get in contact with dr sclafani's office?

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Re: DrSclafani answers some questions

Post by NHE » Sat Sep 19, 2015 8:05 am

daniel wrote:its difficult to go through 550 pages inthis thread...how can i get in contact with dr sclafani's office?
Cheerleader posted his contact info.
Cheerleader wrote:Dr. Salvatore Sclafani
American Access Care
577 Prospect Ave
Brooklyn, NY 11215
(718) 369-1444

I would recommend steering clear of using CCSVI in descriptions of medical concerns with vascular surgeons, and speaking of severe jugular stenosis due to extrinsic compression. CCSVI is still not an accepted diagnosis----but jugular compression which creates intracranial hypertension is recognized. Here are some case studies to share with the vascular surgeons.
https://www.thieme-connect.com/products ... 32-1314274
http://www.ncbi.nlm.nih.gov/pubmed/21866063
http://www.hindawi.com/journals/cris/2012/293568/
http://www.ncbi.nlm.nih.gov/pubmed/22322614

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Re: DrSclafani answers some questions

Post by 1eye » Tue Sep 22, 2015 8:00 pm

cheerleader wrote: I would recommend steering clear of using CCSVI in descriptions.
I wouldn't. I am not a doctor and do not give medical advice.
cheerleader wrote:CCSVI is still not an accepted diagnosis
By whom? Dr. Sclafani?
This unit of entertainment not brought to you by FREMULON.
Not a doctor.

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Re: DrSclafani answers some questions

Post by Cece » Fri Sep 25, 2015 10:50 am

CCSVI is still not an accepted diagnosis----but jugular compression which creates intracranial hypertension is recognized.
My concern with this is that this puts a person seeking treatment right back where we were in 2009. You find a doctor willing to do this and you are the first person they've ever treated for CCSVI jugular abnormalities. First patients have a higher risk of adverse events than later patients. I personally think it's better, if possible, to go to a doctor with experience specifically in CCSVI.

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