New, again. Need help.

This is the place to ask questions if you have symptoms that suggest MS, but aren't yet diagnosed.
User avatar
jimmylegs
Volunteer Moderator
Posts: 12592
Joined: Sat Mar 11, 2006 3:00 pm

Re: New, again. Need help.

Post by jimmylegs »

if it were me looking for a d3 status update, i wouldn't get into shipping mail order tests around. personally, i would just add it to the list on a regular requisition.
has your doc had you monitoring serum calcium at all? since feb 2015? for hypercalcemia? if not and you do get into ordering 25(OH)vitD3, could be wise to check on se Ca as well.
from personal experience i have never *felt* vit d3 changes. only via its negative impacts on other minerals when in excess
zinc fixed cog fog. magnesium fixed muscle issues and pain. all after having dealt with d3 much earlier. big relief on both fronts!
active members shape site content. if there is a problem, speak up!
use the report button to flag problematic post content to volunteer moderators' attention.
terrineedshelp
Newbie
Posts: 7
Joined: Wed Jan 25, 2017 9:19 am

Re: New, again. Need help.

Post by terrineedshelp »

Lyteshow was my own thing. My housemate has to use electrolytes in her water all day long in order for her body to make use of the water (short answer....) and she uses Nuun tablets. They have yucky artificial sweetners in it that I can't stand the taste of, so when she suggested I try electrolytes to see if it helped any, I started with Gatorade....but didn't want the sugar (I was getting the only dye free one), so I found Lyteshow. I typically think of myself as rather intelligent and great at research, but my brain is so different right now that I haven't questioned basically any of this or researched WHY it helps me. I'm glad y'all can help with the thinking.

No calcium checks. I'm not really impressed with my current doctor and I'm considering changing anyway. This might be more reason to seek out a new doctor.
User avatar
lyndacarol
Family Elder
Posts: 3394
Joined: Thu Dec 22, 2005 3:00 pm
Contact:

Re: New, again. Need help.

Post by lyndacarol »

terrineedshelp wrote:I take the 10k VitD because I was very low before (I can't remember how low) I started taking it, plus I live in WI and get Seasonal Affective Disorder pretty bad. I had SAD when I lived in GA, then moved way north to the land of actual winters. In Feb 2015 my VitD (on 10k) was at 56, but that is the last time I had it tested.
I am not surprised that your vitamin D level has been low: the modern lifestyle is usually working and living indoors – people no longer live and work outdoors as our ancestors did. In addition, people slather on the sunscreen when they are outside and thereby prevent the UVB rays necessary for making vitamin D from reaching our skin.

Also, the necessary UVB rays are not available year-round in Wisconsin – it is not even possible to make vitamin D for about half the year where you live.

Only in latitudes south of about Atlanta, Georgia, (in the northern hemisphere) can vitamin D be made year-round.

You and your doctor should consider an annual (twice a year would be even better) vitamin D test. And ask for your own copy of any test results so that you can keep track of the actual numbers.
User avatar
jimmylegs
Volunteer Moderator
Posts: 12592
Joined: Sat Mar 11, 2006 3:00 pm

Re: New, again. Need help.

Post by jimmylegs »

re housemate, *completely* get it. this is going back a couple years but:

this is a set of search results, 10 related posts by same user, after PM chats in March 2014 re type of water (bottled reverse osmosis) typically consumed in prior attempts to deal with chronic dehydration
http://bit.ly/2jyBRDh

same member, another long term high dose d3 user with magnesium consequences
2013: http://www.thisisms.com/forum/post21186 ... um#p211867
2014: http://www.thisisms.com/forum/post22163 ... um#p221631
2014: http://www.thisisms.com/forum/natural-a ... ml#p225068
2014: http://www.thisisms.com/forum/post22886 ... um#p228860

also just for funsies:
active members shape site content. if there is a problem, speak up!
use the report button to flag problematic post content to volunteer moderators' attention.
User avatar
jimmylegs
Volunteer Moderator
Posts: 12592
Joined: Sat Mar 11, 2006 3:00 pm

Re: New, again. Need help.

Post by jimmylegs »

looked up that nuun product as well. http://nuuncanada.com/faqs/ i just picked nuun 'active', CAD $10 for a tube of 10 pills. delivering 25mg of magnesium per. that means if i wanted to get the same amount of mag via nuun as i get for under $20, taxes in, via a bottle of mag glycinate, i would need 44 nuun tubes, $440. *before* tax. with my $420+ savings i could afford to make up the calcium potassium sodium sugar and vit C ingredients for ages :S
don't have time to dig in on the nuun 'all day' product (w vits/mins), but i expect the conclusion would be similar.
active members shape site content. if there is a problem, speak up!
use the report button to flag problematic post content to volunteer moderators' attention.
terrineedshelp
Newbie
Posts: 7
Joined: Wed Jan 25, 2017 9:19 am

Re: New, again. Need help.

Post by terrineedshelp »

So the reason my friend uses the NUUN tablets is that she has an issue that makes water pass through her immediately (and thus she is always dehydrated) unless she has electrolytes with the water. I'll ask her if it would achieve the same thing to take supplements instead. I have a pretty good sounding magnesium on its way (magnesium glycinate, slow release)

A little update: On Friday afternoon my doctor finally called me and said she has had trouble getting through to neurology so she was just going to go ahead and give me a referral for that and an MRI. Since my head was hurting so badly, she decided to prescribe me a rather hefty pain medication for the weekend (dilaudid) just to keep me out of the ER for pain. She went that route because so many pain meds give me headaches, but I've been on dilaudid previously in hospitals without having that issue.

Well, it backfired. I woke up Saturday morning with even worse head pain plus vertigo so bad that opening my eyes led to vomiting. I ended up in the ER and they tried several different meds before finding something to lower my pain enough to go home.

They did a CT while I was there and found nothing on that, which is of course a relief.

AND I have an MRI scheduled for tomorrow morning. I also have a neurology appointment, but not til April at this point. Thanks for giving me a place to share all of this!

Thanks for giving me a place to talk
User avatar
jimmylegs
Volunteer Moderator
Posts: 12592
Joined: Sat Mar 11, 2006 3:00 pm

Re: New, again. Need help.

Post by jimmylegs »

glad to hear you have slow release mag glycinate en rte
very sorry to hear about your bad weekend and trip to the ER. ouch. and dilaudid wow - rings a bell from that 'drugstore cowboy' movie. what med eventually worked, iima?

i went looking for any dilaudid nutrient depletion info. nothing really good came of that, but i found this awesome although OT article.
Burden and Nutritional Deficiencies in Opiate Addiction- Systematic Review Article
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4411899/

fascinating stuff. anyhoo hope the mri goes smoothly tomo!
active members shape site content. if there is a problem, speak up!
use the report button to flag problematic post content to volunteer moderators' attention.
terrineedshelp
Newbie
Posts: 7
Joined: Wed Jan 25, 2017 9:19 am

Re: New, again. Need help.

Post by terrineedshelp »

So I'd taken benedryl before going to the ER. First they gave me Reglan and Toridol, which worked last month in addition to IV benedryl. That didn't work so they tried Imitrex. THAT didn't work, so they gave me Haldol, which is an antipsychotic. Apparently it can "reset" the brain for some people. It did help the headache pain, but I basically slept all of Sunday and then yesterday and today I feel like I have restless BODY syndrome or something. I actually hurt my ankle by wandering around in circles so much yesterday :lol:

I ended up taking an epsom salt bath at like midnight last night to try to relax my body enough to sleep. Now I'm sipping on Natural Calm and hoping for the best.
User avatar
jimmylegs
Volunteer Moderator
Posts: 12592
Joined: Sat Mar 11, 2006 3:00 pm

Re: New, again. Need help.

Post by jimmylegs »

hi i had a look at the mechanism of action of reglan. dopamine d2 receptor agonist. had a look for any nutrient connection to having such things behave on their own:

Dopamine D2 Receptor Expression Is Altered by Changes in Cellular Iron Levels in PC12 Cells and Rat Brain Tissue1
http://jn.nutrition.org/content/138/12/2487.full.pdf

Iron deficiency decreases dopamine D1 and D2 receptors in rat brain
http://www.sciencedirect.com/science/ar ... 5701005639

re Toradol mechanism, inhibition of prostaglandin synthesis

Effects of altering dietary fatty acid composition on prostaglandin synthesis and fertility
free full text PDF http://bit.ly/2lngnGF
"... linoleic and linolenic acid can also reduce both AA and prostaglandin synthesis via inhibition of the enzymes PLA2 and cyclooxygenase.47,108,109 Excess (n-3) or (n-6) PUFA concentrations may therefore down-regulate dienoic prostaglandin synthesis."

also
https://www.drugbank.ca/drugs/DB00502
"The precise mechanism whereby the therapeutic effects of haloperidol are produced is not known ... drug may antagonize the actions of glutamic acid"

related:
Dietary intakes of glutamic acid and glycine are associated with stroke mortality in Japanese adults.
https://www.ncbi.nlm.nih.gov/pubmed/25833775
(glutamic good, glycine bad)

that one'll make me take a closer look at the details, in light of my regular use of magnesium GLYCINate...

so anyway now i am curious re your serum ferritin status. the lit seems to be back and forth suggesting headache can be associated with both high and low ferritin levels. low iron is associated with 'restless legs syndrome' for whatever that might be worth.
active members shape site content. if there is a problem, speak up!
use the report button to flag problematic post content to volunteer moderators' attention.
Post Reply

Return to “Undiagnosed”