Medication
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Medication
Re: Medication

take control of your own health.
pursue optimal self care, with or without a diagnosis.
Re: Medication
In terms of the ones normally thought of, I don't either.
I do take Dantrium for spasticity but I didn't need anything like that from 1994-2015.
From 1996 till about 2012 I did take Avonex and hated every dose. I have been taking an antiviral (valacyclovir) for 20 years but it isn't regarded as an MS medication.
Many people don't take the medications most often recommended. They are all relatively new. Some of us predate them.
Regards,
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Re: Medication
Re: Medication
Re: Medication
take control of your own health.
pursue optimal self care, with or without a diagnosis.
Re: Medication
The popular belief is that the majority of those with MS, about 75% or higher have RRMS (the National MS Society claims approximately 85 percent of people receive a diagnosis of RRMS at first). And it is believed that the majority of those with RRMS have milder rather than an aggressive course of the disease. PPMS is diagnosed in about 15 percent of people with MS, (again estimated the National MS Society). And of those with RRMS about half will transition to SPMS within about 10 years. Over a 25 year period that number increases.
BUT typically the number of those with MS with severe cases is in the minority and that the majority of those with MS do reasonably well over the long term whether they take a DMD or not.
What does "doing well" mean? I guess it depends on who you ask.
Re: Medication
take control of your own health.
pursue optimal self care, with or without a diagnosis.
Re: Medication
Re: Medication

Therapies for MS directed against the immune mediated response
The disease modifying therapies for MS work by various mechanisms, with different therapies having different mechanisms of action. These mechanisms include:
Interfering with the activation of T cells
Turning down the inflammation and immune activity
Blocking the movement of immune system cells
Depleting the numbers of immune system cells
Limiting entry of immune cells into the CNS
While much has been learned about the immune response in MS and the mechanisms that cause inflammation and damage, continued research is underway to better understand the MS disease process including disability progression, and develop treatments that can stop progression, reverse disability and ultimate cure
8.5 EDSS
SPMS, 54 yrs old
Taking it day by day
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Re: Medication
Dxed in 1996, took Baclofen for 2 yrs...did nothing but gave me extreme insomnia but otherwise no MS medications. Probably b/c they didn't know what type of MS I had. In a w/c part-time by 1999...full-time by 2003. Stress was my big factor. I was stable till 2018. I really question whether MS drugs help short term or long term. We are all different.
Take care.
Re: Medication
Re: Medication
While you're waiting for replies, you may wish to read the prescribing information for these drugs.
Mayzent (siponimod): https://www.pharma.us.novartis.com/site ... ayzent.pdf
Mavenclad (cladribine): https://www.emdserono.com/content/dam/w ... lad-pi.pdf
Mavenclad has a black box warning for increased cancer risk. Mayzent's efficacy in slowing disability progression is lacking. viewtopic.php?p=258579#p258579
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