ok good
the learning curve is certainly steep.. i def remember shutting off some of the mineral info. vitamins were all i could deal with in early days hehe. in hindsight, shoulda kept reading and dealt with a few issues WAY sooner lol
re nutrition, often your average ms patient will have a bunch of specific deficits or imbalances. i don't think it's absolutely one or the other though - eg with b12 they could have given me a plain old b12 deficiency dx if i not for a few other circumstances in my case.
1. they didn't have a clean read on my b12 status at time of dx bc i was frantically supplementing as my nervous system shut down.
2. my doc's computer software had a glitch so didn't show my record of undetectable b12 level, when the neuro checked in with my doc for past status.
3. also i had brain issues which they said was not consistent with b12 deficiency ( A) incorrect and B) you can have one thing affecting your spine and something else affecting your brain).
4. docs can be really stubborn about their dx criteria and even though it is a statistical tool, there was no convincing that a 15 year vegan should not be crammed into their average joe ms model.
since ms is still basically a mystery illness, i think in time everyone will qualify as 'misdiagnosed' as we gradually nail down all the various routes different people can take to arrive at a roughly similar constellation of symptoms (keeping in mind of course that ms is 'different for everyone' even though it has umbrella characteristics that allow sweeping classifications of remitting and progressive etc)
spinal tap SUX OMGGG i had the worst even post LP headache. read everything about needle bevel and so on. ensure best possible zinc status to optimize puncture healing. horizontal bed rest for as long as you can after the procedure. with my crappy vegan low zinc (which i didn't know about at the time) meant my puncture (oh and i had two btw because i could feel the first attempt too clearly) did not heal properly. i was threatened with a 'blood patch' which sent me obediently to the couch for the weekend and that was enough to close it up. in hind sight, zinc zinc zinc get that thing to heal up as quick as you can. stay prone for a good couple hours after procedure. and learn about the significance of needle bevel
do you have to have it? it's part of their dx process. it's up to you whether you want to know if your csf proteins and o-bands etc match 'most ms patients' csf or no. mine did and i still don't care. it's still just statistics.
this looks interesting, re genetic differences between ms patients with and without o-bands in csf:
http://www.neurology.org/content/67/6/1062.abstract
even with genetics in mind, i'd still be looking at nutrigenomics and how nutrients control genetic expression
http://link.springer.com/article/10.100 ... 013-8498-3
i just think science is early in the curve re understanding the intersections between complex nutrient interactions and how they intersect with ppls genetics.
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