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Thanks Sharon!!Sharon wrote:A conversation with Drs. Arslan and Sclafani
https://www.facebook.com/pages/CCSVI-Al ... =1&theater
Thank you!Sharon wrote:A conversation with Drs. Arslan and Sclafani recorded at the Society of Interventional Radiology Conference-Atlanta, March 1, 2015.
Audio recording has been posted on the CCSVI Alliance Facebook
https://www.facebook.com/pages/CCSVI-Al ... =2&theater
Thanks Dr. Sclafani for spending a few minutes to speak with me -- it was great to see you!
Salvatore Sclafani, a Brooklyn-based interventional radiologist, agrees. “We need to put MS on the back burner and focus on the symptoms,” says Sclafani, who has performed some 500 CCSVI treatments. “It’s about whether venous outflow obstructions can result in neurological symptoms. It is about whether opening venous outflow improves some clinical manifestations often seen in MS.” CCSVI has been “politicized, discredited, misunderstood, denigrated, slandered and rejected out of hand,” he says. He would like to see a movement away from whether CCSVI causes MS and toward a focus on the most effective treatment techniques and an understanding of which patients are most likely to benefit. “Failure to do so would do an injustice to those who have venous obstructions of the cerebro-spinal venous outflow,” he says.
Here is the article SophieandElle sent me about this topic. It is from 1975, so it is dated, but I liked how it showed that the flow in the jugular veins can be reversed due to obstruction and take blood back up to the sinuses and down the other jugular. Flow will find a way but not necessarily an optimal way. http://www.ncbi.nlm.nih.gov/pubmed/1097608SophieandElle wrote:Do you normally treat refluxing IVJ's?
What about refluxing from a chest vein (axillary + lateral thoracic)? Is this something we could treat? Symptoms are debilitating - ultrasounds prove the reflux....need help very very much!
yes, he does!daniel wrote:is DrSclafani still seeing new patients?
Cheerleader posted his contact info.daniel wrote:its difficult to go through 550 pages inthis thread...how can i get in contact with dr sclafani's office?
Cheerleader wrote:Dr. Salvatore Sclafani
American Access Care
577 Prospect Ave
Brooklyn, NY 11215
(718) 369-1444
I would recommend steering clear of using CCSVI in descriptions of medical concerns with vascular surgeons, and speaking of severe jugular stenosis due to extrinsic compression. CCSVI is still not an accepted diagnosis----but jugular compression which creates intracranial hypertension is recognized. Here are some case studies to share with the vascular surgeons.
https://www.thieme-connect.com/products ... 32-1314274
http://www.ncbi.nlm.nih.gov/pubmed/21866063
http://www.hindawi.com/journals/cris/2012/293568/
http://www.ncbi.nlm.nih.gov/pubmed/22322614
I wouldn't. I am not a doctor and do not give medical advice.cheerleader wrote: I would recommend steering clear of using CCSVI in descriptions.
By whom? Dr. Sclafani?cheerleader wrote:CCSVI is still not an accepted diagnosis
My concern with this is that this puts a person seeking treatment right back where we were in 2009. You find a doctor willing to do this and you are the first person they've ever treated for CCSVI jugular abnormalities. First patients have a higher risk of adverse events than later patients. I personally think it's better, if possible, to go to a doctor with experience specifically in CCSVI.CCSVI is still not an accepted diagnosis----but jugular compression which creates intracranial hypertension is recognized.