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What can you expect when you quit one of the inerferon drugs (Avonex, Rebif, Betaseron) after a decent length of time (not a couple of doses)?

BadKittyCat wrote:What can you expect when you quit one of the interferon drugs (Avonex, Rebif, Betaseron) after a decent length of time (not a couple of doses)?

I was on Avonex for 10 years. I stopped a few years ago because I was progressing anyway and I was getting some unusual side effects, e.g., skin lesions on my back, which I thought might be related to the Avonex. Three years later I'm still sliding downhill, but haven't had any major attacks.

I was on Avonex for 15 years and just stopped it in November because my MS doctor said I am no longer RRMS, I have become SPMS and Avonex is for RRMS. I haven't had any trouble with quitting, no big relapses, just a slow steady worsening over the past 7 years. I am trying low dose naltrexone and hope to try medical marijuana soon since my state of Maryland just approved it.

Good luck to you.