Stressed and Depressed
Posted: Sun Jan 25, 2015 6:23 am
Hi everyone! I'm new here, I'm a 37 year old woman who is currently undiagnosed and playing the waiting game. I do have a family history of MS in my mother and also my maternal uncle.
My symptoms officially started in late spring with back and hip pain. Eventually it was discovered that I do have a bulging disc and pinched nerves in my lumbar area. I've had injections, and that alleviated some of my pain, but not in the hip area. I went to pt, etc, no improvements. Then, I had a numbness of my upper lip. Not only the actual lip, but from the lip up to the nose. It started in a narrow space, but spread across most of my lip, then subsided after a week. My gp sent me to a neurologist after that. Then, I started noticing other things that were going on. Fatigue, new anxiety, depression, weakness in the left leg, minor headaches, muscle spasms and cramps, mental cloudiness (I struggle to find my words and frequently say something completely different than I meant to say), forgetfulness, inappropriate emotional reactions, and most recently a burning sensation on the top of my right foot.
The neuro dr ordered a bunch of tests, so far I've had a contrast brain mri, EEG and EMG. Went for follow up after those, idk what to think. First, he said my hip pain and leg weakness are from Meralgia paresthetica. I'm overweight, he suggested weight loss and that I wear only dresses to keep pressure off the area. My mri did show nonspecific curvilinear flair hyperintense signal in the pulvinar nucleus of the right thalamus. Dr said basically that the radiologist is an idiot for suggesting CSF, nonspecific basically means nothing, he's going to order another mri in a few months "just to prove it". He said nothing about my EEG or EMG, but wants blood work and a sleep study done next.
Idk if anyone whee has had a similar experience, but I really believe this is MS. Dr said many of my symptoms could be sleep apnea but my hubby says I never stop breathing in my sleep, he always stays up late watching TV in bed.
I just want to know what's wrong so I can move forward.
Sorry about the long vent!
My symptoms officially started in late spring with back and hip pain. Eventually it was discovered that I do have a bulging disc and pinched nerves in my lumbar area. I've had injections, and that alleviated some of my pain, but not in the hip area. I went to pt, etc, no improvements. Then, I had a numbness of my upper lip. Not only the actual lip, but from the lip up to the nose. It started in a narrow space, but spread across most of my lip, then subsided after a week. My gp sent me to a neurologist after that. Then, I started noticing other things that were going on. Fatigue, new anxiety, depression, weakness in the left leg, minor headaches, muscle spasms and cramps, mental cloudiness (I struggle to find my words and frequently say something completely different than I meant to say), forgetfulness, inappropriate emotional reactions, and most recently a burning sensation on the top of my right foot.
The neuro dr ordered a bunch of tests, so far I've had a contrast brain mri, EEG and EMG. Went for follow up after those, idk what to think. First, he said my hip pain and leg weakness are from Meralgia paresthetica. I'm overweight, he suggested weight loss and that I wear only dresses to keep pressure off the area. My mri did show nonspecific curvilinear flair hyperintense signal in the pulvinar nucleus of the right thalamus. Dr said basically that the radiologist is an idiot for suggesting CSF, nonspecific basically means nothing, he's going to order another mri in a few months "just to prove it". He said nothing about my EEG or EMG, but wants blood work and a sleep study done next.
Idk if anyone whee has had a similar experience, but I really believe this is MS. Dr said many of my symptoms could be sleep apnea but my hubby says I never stop breathing in my sleep, he always stays up late watching TV in bed.
I just want to know what's wrong so I can move forward.
Sorry about the long vent!
sorry to hear about your symptoms and lack of answers. i don't suppose the docs have ever referred you to any kind of nutrition specialist? if not, that could be a useful avenue to explore..