This Is MS Multiple Sclerosis Knowledge & Support Community

Having just discovered the truly amazing miracle of blue light therapy for my son's acne, I of course have been wondering about red/blue light therapy for MS. I've not had time to do anything but casually Google but I keep seeing things that indicate one or the other or both might help with MS. Blue light definitely helps with bacterial infections and red light helps lower inflammation, heal, and I believe I read improve atp production.

I've got a device arriving today that offers both so I'll be trying it out (mostly red for wrinkles!) and will post any MS related changes but I doubt I'll have time to research this well. So, anecdotal silliness may follow... Good stuff might land here if the more dedicated researchers are intrigued by the possibilities (some cfs/me forums have scientific and anecdotal stuff posted...no stellar results imo).

Be well.

I've yet to use the light box but found this really, really, long but fascinating blog post by a neurosurgeon about ms, light, mitochondria, dha, vitamin d, etc.
https://www.jackkruse.com/organizationa ... sclerosis/
I think he might be onto something because he's recommending things that have helped me a lot recently. Last summer I began to struggle a bit with energy again. In the fall, I started using my fir sauna and my energy came back. To clumsily paraphrase, the doctor says pwms are light imbalanced (too much blue) and ir and red light will help (with some other stuff). This past month, I reached a point at which the sauna no longer helped me with energy and I began suffering with "weird head." I thought I may have depleted myself of some nutrient while sweating so I stumbled around my supplements for a week or so and eventually in my typical convoluted fashion found fish derived omega 3/dha made me feel right as rain again...within an hour my head felt normal and over a week my energy level increased to a point at which it was normal and lasted all day long. The doctor says we need fish derived (though not in supplement form) dha for all sorts of complicated processes. Weird coincidence? Probably. ;)

Anywho, it's an interesting read with a few ideas of relatively 'armless things to try.

Be well.

Hi,

That is an interesting read. It will take a while to think it through but it is a lot better than most of the stuff that is dished up.

I do think there is more than one way to skin a cat so the thoughts on RXR, hypoxia, the mitochondria and ATPase were very helpful.
What supplements are you taking now? The Rituxumab would have helped the EBV but it won't unwind what has already been affected.

Regards,

Hi Scott,

Yeah...that post is a lot to take in and I kinda sorta just skimmed through the super technical stuff. It reminded me of you and Leonard.

I quit Buhnering in the fall. My energy slowly dwindled whilst doing Buhner and I just wasn't seeing any benefit from it. I was tired of interrupting my day with frequent doses of this that and the other and then some. I was/am also distracted by a family crisis. Stress! So, I've only been taking a multi and magnesium.

This past month, I tried 5000 iu D a day and gave myself a mild vitamin d reaction and a sore back/kidney (odd...I still don't like D and I'm not on valtrex). The sore kidney led me to try k2 which is what initially cleared my head (for a few hours) but didn't help energy. I tried nascent iodine (lost in perspiration) and gained a couple pounds...quit that. There were a couple of times I would eat a meal and feel energized...usually it involved red meat, so I tried iron. No joy. Then it finally occurred to me that the meals that made me feel better for a while all included avocado and the k2 I took was fat soluble, in a capsule with fat. So, I tried the omega3/dha. Joy, finally! So, I'm taking a multi, magnesium, and omega3/dha.

Oop. Gotta run. Hope you're doing well!

Hi,

Buhner is good for knowledge but hard to apply.

A lot of that blog made sense to me.

Like all of us he sees things from his perspective. He talks about RXR (yippee!! I thought I was the only one) but doesn't talk about how to up regulate it. That happens by using 9cis retinoic acid and that's where my carrot juice idea comes from. He talks about Nitric Oxide and that is critical. So add dark green leafy vegetables like Kale and heaps of beets into your diet. I have a mixed juice of beetroot, carrot , ginger and kale every lunchtime from a juice shop. Often that is all I have for lunch.

Avocado gives you the right fats. I eat a whole one as part of my breakfast every morning. (plus a fruit and two boiled eggs).

Vitamin D is where I hit a roadblock. I understand its important but I'm just not convinced supplements are the right way to go. That blog suggests light is better. This is where RXR becomes important because it is the master switch for all the thyroid like receptors. If VDR is the light switch on the wall then flicking it to on will mean nothing if the mains are switched off. RXR is the mains.

A fair bit of that post talks about electrons. To move them you need a donor and a receiver molecule to drive the electron transport chain so you can make ATP and hence make energy. If you don't make enough ATP it means that ATPase spindle he talks about isn't spinning. The way I get that to happen is by using megadoses of CoQ10 and aceytl-l-carnitine. I think that might be what you need rather than iron. The meat, particularly offal, will give you CoQ10.

You probably don't need Valtrex now you have had rituxumab. It should have smashed the EBV involvement.

Glad you are busy. Hope the crisis settles down soon.

Regards,

Hi Anonymoose

I was interested to see how you got on with the light therapy. Have you benefitted from it?

What device did you buy? Was it near or far infra red?

Thanks
J

Hi J,

I tried it a couple times but the device got shuffled off into a cupboard as it was just collecting dust while I scrambled around it managing more pressing life issues. I might get to it someday. If I do, I'll post if anything comes of it. Sorry I couldn't me more helpful.

A

Thanks Anonymoose

I bought one only to find a warning about using it if you have ms! And a few other diseases too.....

Seems to contradict recent research...

J