DrSclafani ASKS a question

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Living with MS

Postby Hooch » Tue Jan 04, 2011 12:03 pm

For me the worst thing has been having my children grow up with a mother who was always tired and often grumpy because of this. They did not want to bring friends home because their mother was such an embarrassment.
I regret all the fun things I could have done with them and the active sporting activities that I could have done with my husband.
These years can never be returned but I thank everyone involved every day for treatment for my CCSVI that has restored a somewhat normal life to me.
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Re: DrSclafani ASKS a question

Postby MSandI » Thu Nov 14, 2013 6:36 pm

Hi
I know this is way over the time frame, but how I describe it is... white noise that is always playing in the background.
Ann
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Re: DrSclafani ASKS a question

Postby drsclafani » Sat Nov 16, 2013 7:59 pm

MSandI wrote:Hi
I know this is way over the time frame, but how I describe it is... white noise that is always playing in the background.
Ann

Ann
thanks for bringing this forward.

I remember when I started this, i was genuinely struggling to put words behind the disease and all the patient responses have helped me so much in understanding this disease.

Empathy is really important in healing and without such information as was given to me through this thread, i would not have been able to share my patients' fears, concerns, worries and pain.

so often, by sharing some of these responses, i was able to connect to a patient in a meaningful way.

This thread went so far beyond ccsvi....it enabled me to be the kind of doctor my father was.

Thank you all and if you want to share, now is a good time to write and vent your issues

DrS
Salvatore JA Sclafani MD
Patient contact: ccsviliberation@gmail.com
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Re: DrSclafani ASKS a question

Postby MSandI » Sun Nov 17, 2013 8:36 am

Thank you for your reply. I do have 2 burning questions. Are you the Dr in Albany, NY? And why is it in Canada they will not do the dopler xray if you have ms? Any suggestions? Thanks
Ann
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Re: DrSclafani ASKS a question

Postby Cece » Tue Nov 19, 2013 7:15 am

MSandI wrote:Thank you for your reply. I do have 2 burning questions. Are you the Dr in Albany, NY? And why is it in Canada they will not do the dopler xray if you have ms? Any suggestions? Thanks
Ann

chronic-cerebrospinal-venous-insufficiency-ccsvi-f40/topic10680-8010.html#p217893
Ann, I linked your question over in his "DrSclafani answers questions" thread in case he misses it here and also so more people will see it.
The doctor in Albany, NY, is Dr. Siskin, who was a student of Dr. Sclafani's, who is in Brooklyn, NY.
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