DrSclafani answers some questions

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Re: DrSclafani answers some questions

Postby Lety » Sat Nov 09, 2013 1:29 am

drsclafani wrote:
Lety wrote:

I have a question, do you and your valuable employees already tried to search after a muscle compression ? if you are convinced of the translated study, will you perform this investigation in your future and your former patients (with unsuccessful dilation) ?.


I am not convinced at this time that compressions should be treated. Today i had a patient who had compression in J3 at the level of the stylohyoid compression. When the patient flexed the neck the compression went away. When he coughed it also went away.

At this time i would defer to a university center that is performing this surgery.


Thank you

When I turn my head to the left there is blood flow in the jugular but when my head is streight there is no blood flow ( stop flow ) and this is not a normal condition.

I can not walk around with the head turned to the left to have blood flow :?

I hope to have soon the oppurunity to explore this issue
Lety
Family Member
 
Posts: 30
Joined: Thu Jul 26, 2012 12:53 pm

Advertisement

Re: DrSclafani answers some questions

Postby Donnchadh » Sat Nov 09, 2013 11:45 am

Lety wrote:
drsclafani wrote:
Lety wrote:

I have a question, do you and your valuable employees already tried to search after a muscle compression ? if you are convinced of the translated study, will you perform this investigation in your future and your former patients (with unsuccessful dilation) ?.


I am not convinced at this time that compressions should be treated. Today i had a patient who had compression in J3 at the level of the stylohyoid compression. When the patient flexed the neck the compression went away. When he coughed it also went away.

At this time i would defer to a university center that is performing this surgery.


Thank you

When I turn my head to the left there is blood flow in the jugular but when my head is straight there is no blood flow ( stop flow ) and this is not a normal condition.

I can not walk around with the head turned to the left to have blood flow :?

I hope to have soon the opportunity to explore this issue


There is another possibility; it involves the styloid process blocking the carotid sheath [which contains an artery]. The neurosurgeon who removed the bone spur on my C1 related that he had a patient who would pass out when his neck was rotated in a certain direction. He removed the styloid process and the patient no longer would pass out.

I would strongly suggest a 3D cat scan of the upper neck/base of skull to get an image of what might be involved.

Donnchadh
Kitty says, "Take that, you stenosis!"

Got MS?.....Get Liberated!
User avatar
Donnchadh
Family Elder
 
Posts: 513
Joined: Sat Jan 23, 2010 4:00 pm

Re: DrSclafani answers some questions

Postby Cece » Sun Nov 10, 2013 1:16 pm

drsclafani wrote:
Cece wrote:Any other strategies or concepts on the docket to be explored in 2012?

1. 12 month followups of patients treated in 2011
2. Development of CCSVI Centers of Excellence at American Access Care
3. Dural sinus and deep cerebral vein pressure measurements with IVUS before and after treatment
4. A Bigger and Better Symposium
5. PwMS talent show at the symposium
6. Greater networking worldwide
7. publishing, publishing, publishing

This is from some time ago but I don't remember if anything ever came of #3? Are there differences in dural sinus or deep cerebral vein pressure measurements with IVUS before and after treatment? If there are, does that establish CCSVI as a hypertension?
Cece
Family Elder
 
Posts: 8992
Joined: Mon Jan 04, 2010 4:00 pm

Re: DrSclafani answers some questions

Postby Robnl » Sun Nov 10, 2013 1:57 pm

#6 would boost the development of better research and treatment in my opinion
User avatar
Robnl
Family Elder
 
Posts: 424
Joined: Sun Nov 08, 2009 4:00 pm

Re:

Postby Cece » Tue Nov 12, 2013 4:17 pm

chronic-cerebrospinal-venous-insufficiency-ccsvi-f40/topic10680.html#p98253
I started this thread because i saw some misinformation regarding CCSVI and its treatment being shared by two patients. I felt compelled to set the record straight and this led to an outpouring of expressions of interest and curiosity. I found myself answering questions on many threads and was getting lost. Thus i created DrSclafani answers some questions where patients and their caregivers could share concerns and questions and hopefully find some answers.

We are all learning about this as we go along. I hope that I am helpful to the cause.

chronic-cerebrospinal-venous-insufficiency-ccsvi-f40/topic10680-5580.html#p172921
drsclafani wrote:Cece, I think that the more patients understand of the details, the more their physicians will look at the details.

There was a paper presented once that showed that when pictures of the face of the patient were included with the images of the CT scan, the reports were more detailed. My goal is to have patients put an educated face forward, with the hope that they will get a more committed response.

Mission statements for the thread. :)
Cece
Family Elder
 
Posts: 8992
Joined: Mon Jan 04, 2010 4:00 pm

Thank You and Congratulations!

Postby NHE » Thu Nov 14, 2013 7:52 am

One million views :!:

Image




Image
Thank You!
User avatar
NHE
Volunteer Moderator
 
Posts: 3251
Joined: Sat Nov 20, 2004 4:00 pm

Re: DrSclafani answers some questions

Postby pukai » Thu Nov 14, 2013 8:34 am

Dear Dr Sclafani,
congratulations from a long-time "lurker" from Germany for this very helpful thread and for taking your time for explanations! Please stick to your most appreciated commitment for patients and CCSVI!
Thank you very much and best wishes
- Marcus
User avatar
pukai
Newbie
 
Posts: 1
Joined: Tue Jan 19, 2010 4:00 pm
Location: Germany

Re: DrSclafani answers some questions

Postby Cece » Thu Nov 14, 2013 9:11 am

1,000,000 views and counting.
Congrats, well done, well met and thank you.
Cece
Family Elder
 
Posts: 8992
Joined: Mon Jan 04, 2010 4:00 pm

Re: DrSclafani answers some questions

Postby Robnl » Thu Nov 14, 2013 11:10 am

It's amazing!

Congratulations doc, it's still alive, interesting and on top of the developments...

Rgds,

Robert
Ps. Any opinion about the traboulsee doc yet?
User avatar
Robnl
Family Elder
 
Posts: 424
Joined: Sun Nov 08, 2009 4:00 pm

Re: DrSclafani answers some questions

Postby HappyPoet » Thu Nov 14, 2013 6:19 pm

CONGRATULATIONS!

Oh my, see how fast time can fly !
Your thread of gold is close to four years old !!
Thanks so very, very much for all the help you've given us !!!

SPECIAL NOTE: In honor of DrS' thread reaching 1,000,000 views, NHE and Cece created the sticky index thread called Dr. Sclafani's CCSVI Case Studies located at the top of the CCSVI sticky section.
User avatar
HappyPoet
Family Elder
 
Posts: 1401
Joined: Thu Jul 09, 2009 3:00 pm

Re: DrSclafani answers some questions

Postby Cece » Thu Nov 14, 2013 7:04 pm

HappyPoet wrote:SPECIAL NOTE: In honor of DrS' thread reaching 1,000,000 views, NHE and Cece created the sticky index thread called Dr. Sclafani's CCSVI Case Studies located at the top of the CCSVI sticky section.

I first learned of the project from you, HappyPoet, so credit is due to you as well!
Cece
Family Elder
 
Posts: 8992
Joined: Mon Jan 04, 2010 4:00 pm

Re: DrSclafani answers some questions

Postby blossom » Mon Nov 18, 2013 1:01 pm

hi dr. sclafani. congratulations!! and, thank you very much for being here for us all this time.
User avatar
blossom
Family Elder
 
Posts: 1362
Joined: Thu Dec 03, 2009 4:00 pm
Location: south western pa.

Re: DrSclafani answers some questions

Postby Cece » Tue Nov 19, 2013 7:08 am

chronic-cerebrospinal-venous-insufficiency-ccsvi-f40/topic15089-105.html#p217804
MSandI wrote:Thank you for your reply. I do have 2 burning questions. Are you the Dr in Albany, NY? And why is it in Canada they will not do the dopler xray if you have ms? Any suggestions? Thanks
Ann
Cece
Family Elder
 
Posts: 8992
Joined: Mon Jan 04, 2010 4:00 pm

Re: DrSclafani answers some questions

Postby MSandI » Thu Nov 21, 2013 12:41 pm

Hi Dr Sclafani,
My mother have been discussing ccsvi, in in doing so a subject was brought up by my mom. She told me while she was pregnant with me she got sick and was put in the hospital for the last few months of pregnancy. She told me that the doctors told her she had toxemia (preeclampsia today). I started to google it and it seems that when the mother gets toxemia the is a shortned supply of blood flow to the baby via the placenta. Does that make someone like me (rrms), a good candidate for ccsvi?
Ann
http://www.hmhb.org/virtual-library/int ... eclampsia/
MSandI
Family Member
 
Posts: 72
Joined: Mon Nov 04, 2013 6:19 pm

Re: DrSclafani answers some questions

Postby vesta » Thu Nov 21, 2013 12:44 pm

My mother also had toxemia when she gave birth to me. Vesta
vesta
Family Elder
 
Posts: 325
Joined: Thu Jul 12, 2012 10:10 am
Location: Paris, France

PreviousNext

Return to Chronic Cerebrospinal Venous Insufficiency (CCSVI)

 


  • Related topics
    Replies
    Views
    Last post

Who is online

Users browsing this forum: No registered users