This Is MS Multiple Sclerosis Community: Knowledge & Support

I am writing in desperation about my wife's condition. It all began a few months ago when she met with an osteopath for a major jaw alignment problem following some rough dental work. He felt her body alignment could be contributing to her problem and gave her a 6 week recommendation that would help realign her jaw and drop her raised left shoulder in the process.

However, after her first treatment where he "corrected" her right pelvis to make her leg 1" shorter she complained of feeling wonky and of severe jaw pain. He assured her it would all come good as he worked up. He manipulated her left side of back to release tense muscles he said, and performed a neck manipulation for supposedly the same on visit 3. She immediately went into severe spasm which pulled her face, chin and head in all directions and has left her in a very poor state. Her spine is now completely different and a large curve is developing fast. Her neck is completely twisted away from her body, has elongated and she has no chin as a result. Her head is raised and twisted away from her neck which is bending worryingly. Her jaw has been twisted the wrong way in spasm and her teeth no longer meet. She tried to have a splint made, but her jaw alignment was too severe for it to be done correctly. Her raised shoulder is now even more so and her collar bones are very uneven. Her tongue and windpipe have deviated in the process also.

I have no idea where to turn. Her neurosurgeon said he could only operate on a painful knee and she was left to live with the rest, which she is struggling to do as she worsens. The other departments we have gone to have either said it is too complex to treat or discharged her. She was convinced there must be another reason for her severe reaction. She wondered if her jaw infection from the dental work that triggered this whole thing off in the first place, has spread with the manipulations, but blood tests all came back clear. We didn't know if the infection was maybe in the muscles, if it would be picked up by blood tests alone and no one at the hospital would investigate further. The only other thing if it's not just protective spasm, would be neurological. But nothing was detected on MRI of the spine and cervical areas, and the neurologist could find nothing to indicate from the physical he gave her. A neurological chiropractor that she has seen thinks it is a misfiring cerebellum problem and that is why her body misread the adjustments she had. The maxillofacial team have discharged her for being too complex, I can’t but wonder as her jaw misalignment was her only initial problem before treatment, is this why she reacted so severely to treatment by the osteopath? Any ideas?? Thanks.

We live in the UK

Steve Snow

_________________

Steve---
Wow. I'm so sorry to read this. Because her symptoms became more severe immediately after a neck manipulation...I'd really wonder if she didn't have some damage done during the adjustment. Not to freak you out, but do you think she could have an arterial tear?
http://www.sciencebasedmedicine.org/ind ... nd-stroke/
I have a girlfriend who tore her artery working out...she just felt dizzy, wonky and saw her doctor. It took an MRA to find it. She was on rest and a blood thinning regimen for a year. It healed up fine.
Hope you get some answers!
cheer

_________________
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS

Hi, thanks for your response. We looked into all that cheerleader. Her Mri's all came back showing nothing more than some high nerve signals and slight degeneration with loss of lordosis. Other than see Dr Amir and a spinal unit, I honestly don't know where else to turn. She needs desperate help and any further advice is welcome. The conventional Dr's are just dismissing her, without even further thorough investigations. But then again if they hadnt left her with the original jaw problem and tried to help her then, she was seeking their help for months before the osteopath, she wouldn't be in this state now. She only sought alternative medicine when conventional let her down.

_________________

I am no doctor, but if I personally had uncontrolled spasms, and muscles pulling at my skeleton in all directions, I would want to try a strong muscle relaxor to see if it provides some temporary relief. And maybe something like Baclofen to check if that it is uncontrolled signals from her CNS.

hi, god what a terrible thing to be going through. my heart and body can feel the pain. i can only tell you that for me a lot of my symptoms have to do with the positioning especially "the cervical" but as we are seeing the jaw and total spine comes into play here. relating to your wife's reaction although a similiar incident happened to me. i have a hosp. bed-i was trying to sit up better and grabbed the overhead helper with my better arm and tugged my head and neck were back more than usual and the strain was there. i felt an almost vibrational feeling in the area at the base of my skull and neck and instantly my r. leg "which doesn't move much other wise" came flying up bending and my foot was at the groin area-the r. arm "which is very bad" flew around my chest tight-my head flew to the side-i was stuck in that position my body would not let loose. i live alone and really thought they would find me dead there in the morning. after many a prayer and relax relax and tilting my head until whatever that was pressing on released.

neurosurgeons have looked at my mri's but they see nothing they feel would cause this. i disagree-we are all a tad different. have you presented your story to dr. flanagan on the ccsvi ccvbp --- uprightdoc thread here at tims? that might be a start.

i certainly hope you find answers and help soon. do you know if your wife has any cervical stenosis or bone spurs things like that going on?

Welcome Steve,

Atlas Orthogonal (AO) chiropractic medicine, a form of NUCCA treatment, deals with specific upper cervical chiropractic medicine with highly trained AO chiros who perform Atlas (C1) vertebrae adjustments as opposed to ordinary chiros who happen to work on a patient's cervical spine.

I have absolutely no idea if this would be possible, but can you and your wife travel to Albany, NY? If yes, maybe Dr. Rosa, an AO chiro, through his private practice, would be able to help her by using his groundbreaking, proprietary software with FONAR Upright MRI and traditional AO X-rays (including odontoid views) to calculate AO vectors to use in the adjustment of her Atlas vertebra. You'd be able to see the true condition of her spine and exactly what's happening with her CSF flows.

In Dr. Rosa's study last year (I was not in Dr. Rosa's newest study this year, which is now closed), he performed my AO adjustment which took away all the numbness in my foot/calf which allowed me to walk again and which reduced by >50% the amount of my severe rib cage spasticity which allowed me to turn my torso again and breathe with much less pain.

blossom has given you a great suggestion to contact Dr. Flanagan (uprightdoc) here at TiMS -- send him a PM or post directly on his thread, CCSVI and CCVBP. He can answer all your questions and let you know if Dr. Rosa can help. As I've said before on Dr. Flanagan's thread, I think Dr. Rosa is a gem, and I would trust both Drs. Flanagan and Rosa with my life.

*This is another terrific website: GlobalAO
*Also, you might want to look at my post here.

Best of luck.

Thankyou for all your input guys , i very much appreciate it !!

Im new to "TIMS " and im not quite sure where im suppose to be so as you say HappyPoet , i have clicked your link

chronic-cerebrospinal-venous-insufficiency-ccsvi-f40/topic14005-2325.html

Im now going to place this url link there as from what im reading , uprightdoc seems to be a very clever man

Hopefully see you all there and thank to you all once again for your thoughts

Best Regards

Steve

_________________

Steve,

Read this thread:-

chronic-cerebrospinal-venous-insufficiency-ccsvi-f40/topic18706.html

And this thread:-

chronic-cerebrospinal-venous-insufficiency-ccsvi-f40/topic18524.html

We are also in the UK and getting treatment in Putney.