My story... lost feeling in my legs xmas 2011, was referred to a Neurologist who said it was probably the flu... no joke... lost feeling in my right hand April 5th 2012 the day my second son was born. Went back to Neuro and he sent me for MRI which showed 9 active lesions on brain and spine. Immediately diagnosed with MS and referred to MS clinic which was a long wait and sank into depression for several months. Suffered 4 more relapses (vision, left arm, left foot, face) until I started Copaxone in Sept. Went 8 months before another relapse which took a part of my vision for 3 weeks. Scariest one yet and still have some lasting vision issues in my right eye.
After that I started researching alternative therapies. Started LDN, started Swank diet, with my fistfulls of supplements and hit the gym hard. Went from normal 6'3" 210lbs down to skinny 170lbs in a couple months... not smart... I increased my calories, protein and good fats while staying within 15g saturated fat per day and went back up to 185lbs. As of Mar 2015 I am a fit lean 200lbs. I adjust supplements, diet and gym regularly. In the gym I now focus on the Ritchie Russel theory of strength training to improve the endothelial. In the past 2 years I have had a couple incredibly minor relapses which the Neuro refers to as flares, I think relapses but whatever, a toe went numb... literally a toe... and recently a patch of skin on my right shin went numb for a month. Both recovered 100%.
The one thing I wish I could do is reduce stress in my life but that is difficult. I am the Business Operations Manager of a large corporation and am directly responsible for overseeing over $100Mil of revenue. I wish i was paid on commission but I am far from rich
. I travel a lot and am on call 24/7, rarely getting time to myself. I found Eckhart Tolle's teachings helpful. Some of what he says is pretty far out there but I find the practical tools to be helpful.
I cant help but think whatever I am doing is helping. Copaxone is 30% effective but judging from my first 6 months my relapses went from a rate of 10+/ year to 0.5. And they only affect small areas with sensitivities instead of full loss of function. I have read a ton of pub med articles which I base my regimen on but I am still only guessing and experimenting. I would never push what I do on anyone else but its working for me so I am always happy to share.
This is a current list of supplements I take. It is pricey but about the same as the cost of 2 cups of fancy coffee a day so that's how I justify it.
And a sample of a couple days of meal planning. I eat a lot due to my gym schedule.