This Is MS Multiple Sclerosis Community: Knowledge & Support

For me, from when I was diagnosed six years ago I was convinced of the link to my bowel.
This has been confirmed without any doubt when after a particularly stressful time at work I came out in nasty itchy rashes.
I went to a Kinesiologist who looked at what was causing me such allergic reactions. This guy has identified and confirmed the whole problem. He maintains that, every person he has ever met or treated with MS has an intolerance or allergy to gluten. In my case, the gluten had sufficiently weakened my bowel lining and Candida had taken hold. This resulted in symptoms consistent we celiac disease.
He gave me a list of things to abstain from and bingo - everything started to improve. David now cites me as his miracle case. Apart from the MS I was in such a bad state with my skin I needed help. I had done the drugs thing and was convinced that this is dealing with the effect but not in a permanent way. In fact the drug was damaging me further.
What I had was the cause. Dealing with the effect was simple - it takes care of itself.
I now have no tingling, no pain, I run 25+ miles a week and lead a normal and full life. All this because I know what the cause is. Bingo, one happy chap.
I have a story to tell and it isn't rocket science. We don't have to resort to the billion dollar drug companies or the quite frankly clueless doctors for relief. We have it in our power to do something ourselves.

Interesting. Have you read the book Healing Multiple Sclerosis by Ann Boroche? Same concept and theory you talked about. I'm also a believer in alternative treatment- diet, meditation, and exercise.
Robert
http://www.ConquerMS.com

So you're saying we all have gluten intolerance and fix that and we fix our MS?

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http://myhopefuljourneyintoactualmsreco ... ogspot.com

A lot of people think that MS is a gluten disease but I can tell you many MANY of us old timers have been that route with no results.

But I believe that you did have results so here it what I think may be going on;

Gluten ataxia is exactly like MS clinically even looks the same on MRI but IS in actuality a gluten disease exactly like celiac but with the target being the brain. Gluten can also attack the skin in a disease called dermatitis herpetiformis--no one knows exactly why one has one version and another has another. Genes most likely.

If people want to be tested all they need to do it go to the doctor and ask for a celiac panel, but do it while still eaating gluten (if you go off gluten that panel will be negative). If you produce antigliadin antibodies etc on the test then talk to the neuro about gluten ataxia---

Gluten ataxia was only described about 8 years ago and it is slowly catching on, but I bet the vast majority of people on TIMS were not given that simple blood test as not that many neuros test for it.

.........................and I think that is EXACTLY where the "miracle" gluten free cures come from in patients diagnosed with what they thought was "MS". Like Roger MacDougall. etc. They simply did not know what they have and are misdiagnosed as MS.

OTOH, there can be other kinds of wheat issues and allergies which are not good for people with MS, but I stand by the idea that the miracle, unbelievable turn arounds are probably GA not MS. The cure for GA is a gluten free diet and it is an actual cure.

I ate gluten free, thought it was helping until I realized it was not, then I got tested and found I have no antigliadin antibodies, so I moved on. It is a reasonably safe thing to try........

I have noticed massive spasticity after eating oatmeal and wheat products. As much as I want to avoid a repeat of those moments, it could pay off to endure it again...

Oatmeal doesn't contain gluten, other than microscopic amounts that might be residual on the milling machines from previously processing wheat. That's why oatmeal is not labelled 'gluten free'.

i used to react to gluten, when i was zinc deficient. no longer - just enjoyed a toasted veg and cheese sandwich (white flour focaccia no less, clearly junk food). it was a freebie that's why i ate it. but no unpleasant side effects.

if you read along the zinc/gluten; ; zinc/celiac; zinc and intestinal/membrane permeability aka 'leaky gut'; and zinc/ms line, not to mention zinc/infection/candida, there's a plausible connection. worthwhile to investigate zinc status. eg, gluten free diet improves zinc status in celiacs, per published research.

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my approach: no meds so far - just balanced whole foods (partial 'paleo', much less outright elimination), science, supplements, & bloodwork
my regimen - www.thisisms.com/ftopict-2489.html
www.whfoods.com, www.nutritiondata.com

Hi there,

What foods did you avoid,and what did you have? How long did it take for your bowels to heal?
OH has bowel problems, we just did not think we could do more than eat more roughage..

it's the zinc depleters that docs recommend to improve gut issues. zinc literally holds the cells of the intestinal wall together so if you eat bread, dairy, sugar, drink sugary drinks, alcohol, smoke tobacco, etc etc etc all that uses up zinc with none left for your gut's structural integrity. it's all out there in published research.

case in point (other than the research and my own xp): chronic-cerebrospinal-venous-insufficiency-ccsvi-f40/topic19256.html#p186731 "Fyi - I've found that ZINC has been a silver bullet for Crohn's thanks to Jimmylegs and TiMS. Dirt cheap too at around $20/year!"

the high dose d3 your OH has been taking will have been using up magnesium and zinc, driving levels down even further. to me, bowel issues seal the deal. hope you can find some good zinc soon daisy if you can find zinc picolinate i believe that has been shown to be superior for absorption, although i do have success with zinc citrate myself.

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my approach: no meds so far - just balanced whole foods (partial 'paleo', much less outright elimination), science, supplements, & bloodwork
my regimen - www.thisisms.com/ftopict-2489.html
www.whfoods.com, www.nutritiondata.com

Thanks JL,

Found some zinc picolinate from Holland & Barrett no less.
I think we will get some:-)

sweet deal! found the study re zinc picolinate too:

Comparative absorption of zinc picolinate, zinc citrate and zinc gluconate in humans.
http://www.ncbi.nlm.nih.gov/pubmed/3630857
"At the end of four weeks hair, urine and erythrocyte zinc levels rose significantly (p less than 0.005, p less than 0.001, and p less than 0.001) during zinc picolinate administration... There was a small, insignificant rise in serum zinc during zinc picolinate, zinc citrate and placebo supplementation."

_________________
my approach: no meds so far - just balanced whole foods (partial 'paleo', much less outright elimination), science, supplements, & bloodwork
my regimen - www.thisisms.com/ftopict-2489.html
www.whfoods.com, www.nutritiondata.com

I've been having more bowel problems and the zinc is not working. Perhaps I will try increasing dosage?

I conclude that mobility issues (MS) are related to the problem and not my Crohns.

PN

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Albany 2010. Brooklyn 2011
Hurry up and wait.

sorry to hear that pn. can you describe your probs in more detail, also your diet and supplement regimen info, and we'll see if anything stands out as potential issue. do you have bloodwork on your current serum zinc levels?
jimmylegs

_________________
my approach: no meds so far - just balanced whole foods (partial 'paleo', much less outright elimination), science, supplements, & bloodwork
my regimen - www.thisisms.com/ftopict-2489.html
www.whfoods.com, www.nutritiondata.com

Lack of control over bowel movements, no constipation, diarrhea.

Daily Supplements:
Omega 3 5-7 caps
Probiotic, taking Florastor recently
MultiV
Mg - lots . . . Been taking long before troubles
Zinc increasing to 2/day
CoQ
VitD 6000iu

Diet not stellar

JL -do I need a doctor to order panel? Can you give me a link to your recommended panel

Working with Dr. B. Code
- do you have a practice?

_________________
Albany 2010. Brooklyn 2011
Hurry up and wait.

heya PN! okay i can't spend too long here right this second, but one more question - can you please clarify re the specific forms and doses of magnesium and zinc? i would like to compare to your daily d3 intake. more later - have to get to work!

_________________
my approach: no meds so far - just balanced whole foods (partial 'paleo', much less outright elimination), science, supplements, & bloodwork
my regimen - www.thisisms.com/ftopict-2489.html
www.whfoods.com, www.nutritiondata.com