I've been to a few doctors, they have mostly just passed me around to other doctors... I saw one Nero who basically didn't want anything to do with me because I didn't have insurence, said "we've got everything charted", and sent me out the door. I then talked to the nurse and she basically told me and not in so many words that they couldn't make any sort of a possible diagnoses or possible road to go down because it would cost money to get the tests.
I then went to a MS clinic, the PAC there found weekness in my right leg, found I was unable to walk in a straight line anymore and he said the tremor in my right hand was either an intention tremor or muscel weekness. I was able to get a MRI for free though the MS network (can't remember the name). I got my MRI (Just of the brain ) and all they found was one lesion, and said it was an age realated change. (I'm only 25)
I had one more appointment with him a bit later an he found weekness in my left leg this time, as well as an increased reflex. So he set up an appointment with a speicalist. He did look at my mri, and said it was all normal, did a very brief Nero exam (And I do mean brief ) and said, your mri is clean, you dont have Ms. Well, that's great and all, but then what is causing my symptoms? He then said, "we'll do blood work, if nothing shows on that, then usually with people who have a bunch of symptoms we cant figure out, we just group people with chronic fatigue if fatigue is there main symptom, or fibromyalgia if its pain.
Wtf?!?! I don't want to be grouped, I want to FIND OUT WHAT'S WRONG!!
So far all of my blood tests have come back normal, Including B12 and a whole list of other things, I'm taking 4000 IU of vitamin D and 500 mg of magnesium a day as well as a multivitamin Now, The magnesium has seemed to help with a little of my fatigue, but other than that everything is pretty much the same.
some of my symptoms started As long as five years ago but, they started becoming bothersome just three years ago, They started as a dot in vision, Saying the wrong word, and hands tingling.
They have now progressed to Horrible fatigue That usually seems to get worse right before I start having a flareup of whatever it is that's going on with me, cognitive problems Like my short-term memory and speech issues like saying the wrong word writing the wrong thing, Slurring my words, Not knowing my left and right Like I used to. I have Sudden laughing attacks,An intention tremor in my hands and sometimes my leg, and Dizziness Especially if I turn around too fast. My leg has given out just standing, and I seem to fall so much more than I used to.
when I get overheated I start getting really weak, my tremors And spasms intensify and I start feeling faint. I get occasionally the feeling on my left side of my back feels like somebody has their hand on my back or something strapped to my back or some some sort of pressure on my back it isn't painful but it Feels like a pressure. At times my legs feel so weak I feel almost like I have the flu I'm not sick at all but that's just the feeling, my legs just feel weak, like they are almost made of Jell-O or somethin.
Could be just positioning but I've never known a time in my life Where I've woke up so many times with a completely paralyzed limb.
I've gone through times where I've gotten really bad pains in odd areas like my arm for my leg and almost feels like a muscle cramp but it's not related to the muscle it feels almost like somebody's poking me with a marker or something. I get very sharp pains in my toes that almost like somebody's to sticking a needle in my toe repeatedly.
And the newest of all symptoms that have been happening are my twitches that started in my eye, I didn't think much of it Until lasted for about three months straight Off and on and then it moved to my upper lid, then beside my nose and then I had it beside my lip, On my lip, my chin, above my eyebrows, under my eyes on my cheek , in my hands (One time one in my hand lasted for three days straight,)I have it in my legs and On my arm( The one on my arm last for two days straight. )
I have some symptoms that are mild 24-7 now, But then I go through times when things are Amplified, And I usually get a whole new something to deal with.
I'm kind of at the point that I need to find out what's going on because it's really starting to affect my daily living, As embarrassing as it is, Simple Things such as taking a shower have become like climbing Mount Everest. In the mornings I have all I can do to talk myself into taking a shower and I find that I must schedule my time wisely because even when I take a cool shower I get so weak I can't finish everything like washing my hair and shaving and whatnot.
Work is difficult because I work as a vet tech, when my hand tremors as I'm trying to draw up a vaccine or dose it makes things twice as difficult (or doing anything fine like that) At times I almost feel like I'm on a dirt road in the car And trying to do all these fine things because things are shaking so much. Or when I'm trying to talk to a coworker or client and I cannot for the life of me say the correct words I feel like they think I'm an idiot. I have to carry a notebook around with me because my short-term memory is so bad and things are so fast-paced there anyway I can't remember my name let alone what I was supposed to do.
My fatigue has limited my ability to keep my house clean because I either can work or can clean the house and most the time I push myself more than I should. Which I know no matter what is not a good thing. When is really bad it's hard to even get through a day at work because I just feel like I'm carrying 1000 pounds on my shoulders and I just can't keep up with anything.
I really want to find out what this is but I just keep going around in circles with the doctors. When I went to the hospital one time the first part of my report says that all my symptoms at the time were consistent with MS but then the neurologists didn't agree, However they were the same neurologists that didn't want to do anything because of my lack of insurance. Then my my regular doctors hear about what's going on and their first thought is ms as well.
I still feel like it may be or be something like ms, Talking to other people with MS, I have not had a spinal mri, And I know some people have lesions only on their spine and no visible lesions in their brain, and some have ms without mri visible lesions. When from what I've read I don't think ruling out ms based on the negative MRI And the shortest Nero exam I've Ever seen, is that the proper way to go. But, I don't know where else to go I finally got a full-time job so I could get on insurance however I cannot afford it still, And all I seem to hear is "well, if you had insurance we could do this and, if you had insurance we could that."
Do you think I should just give up, and deal with things as they come? DOES any of this sound like ms? i feel almost like I have to wait until my leg completely gives out and stays out for anybody to take me seriously.
Thank you for your time if you read all of this, I know it's seriously long and probably has so many typos.