Erika`s procedure in Poland
Erika, in bocca al lupo! (as we say over here, wishing all the most luck in a difficult situation). These iron things are soooo complex... I had strong anemia during pregnancy and hated the iron tablets...
But important you found your anemia and now get it checked/treated. And there are high chances your dizziness will disappear once your iron is restored ! That would make more than sense! So things can only get better now!
Huh, in the end we will no longer know for what reason you will have improved! But the opening of your jugular will certainly long-term also play its role!
Un abbraccio, Steffi
But important you found your anemia and now get it checked/treated. And there are high chances your dizziness will disappear once your iron is restored ! That would make more than sense! So things can only get better now!
Huh, in the end we will no longer know for what reason you will have improved! But the opening of your jugular will certainly long-term also play its role!
Un abbraccio, Steffi
-
- Family Elder
- Posts: 1125
- Joined: Wed Jul 29, 2009 2:00 pm
- Location: Slovakia, Europe
- Contact:
The second patiend from Slovakia had her procedure/angioplasty done in Katowice. She is fine.
The third patient will have it in about 2 weeks in Katowice as well.
Erika
The third patient will have it in about 2 weeks in Katowice as well.
Erika
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
-
- Family Elder
- Posts: 1125
- Joined: Wed Jul 29, 2009 2:00 pm
- Location: Slovakia, Europe
- Contact:
messages in my outbox
Please pick you messages up:
Re: Hello!!!! Badger Sat Feb 20, 2010 6:39 pm
Unread message Re: video please matchoo Sun Jan 24, 2010
9:58 am
Unread message Re: hotels near procedure clinic Pauline Sun Jan 17, 2010 10:56 am
Unread message Re: ccsvi treatment poland stevie Mon Dec 28, 2009 3:46 pm
Erika
Re: Hello!!!! Badger Sat Feb 20, 2010 6:39 pm
Unread message Re: video please matchoo Sun Jan 24, 2010
9:58 am
Unread message Re: hotels near procedure clinic Pauline Sun Jan 17, 2010 10:56 am
Unread message Re: ccsvi treatment poland stevie Mon Dec 28, 2009 3:46 pm
Erika
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
- Ruthless67
- Family Elder
- Posts: 422
- Joined: Tue Oct 27, 2009 3:00 pm
- Location: Montana, USA
- Contact:
Some hopefully helpful info
Hi Erika and Rhonda,
I find it interesting that you both have anemia. http://www.thisisms.com/ftopic-8640-255.html and http://www.thisisms.com/ftopic-10184-0.html
I try to eat quinoa every morning for breakfast and include it in my lunch & dinner. It’s a SUPER food. If you aren’t familiar with it, here’s a link to it’s nutritional analysis.
http://www.nutritiondata.com/facts/cere ... ta/10352/2
I had been following the Swank Diet myself since diagnosed in 1992 and attribute that to my very slow MS symptoms progression. But since 2008 I’ve been following the “Healing MS, Diet, Detox & Nutritional Makeover for Total Recovery” by Ann Boroch and I’m feeling soooooooo much better. I keep Ann appraised of the advances in CCSVI as she has shown an interest in it and she even wrote about it in her December 2009 Newsletter and attached a link to the CTV special on CCSVI. Way to go Ann!! Here’s contact info. http://www.annboroch.com phone (818) 763-8282 She is very accessible and knowledgeable about MS & nutrition.
Then last year just for fun, lol, I added in “The Sugar Addict’s Total Recovery Program” by Kathleen DeMaisons and again, I’m even better! A lot of issues have cleared up and I’ve also dropped 50 pounds as my only “side effect”!! I’d say that’s not so bad. Well, that and sobriety, as alcohol = sugar Had to say goodby to nightly cocktail hour.
When I was looking up the web site for the Quinoa analysis I pulled up this web site as well and found it interesting. I haven’t read it all, but a little ways down on the blog under Day 18 of Detox, she speaks about Quinoa and how she likes to prepare and eat it. And a little further down under the Day 17 of Detox, she speaks about her low Ferrin levels and how she addresses that through diet. It’s an interesting read and even though I’m not very far into it yet, I soon will be. She thinks like I do about the food choices we make every day. Garbage in, Garbage out!
http://womansguidetovitality.blogspot.com/
Maybe you’ll find some of this info helpful.
Respectfully,
Lora
I find it interesting that you both have anemia. http://www.thisisms.com/ftopic-8640-255.html and http://www.thisisms.com/ftopic-10184-0.html
I try to eat quinoa every morning for breakfast and include it in my lunch & dinner. It’s a SUPER food. If you aren’t familiar with it, here’s a link to it’s nutritional analysis.
http://www.nutritiondata.com/facts/cere ... ta/10352/2
I had been following the Swank Diet myself since diagnosed in 1992 and attribute that to my very slow MS symptoms progression. But since 2008 I’ve been following the “Healing MS, Diet, Detox & Nutritional Makeover for Total Recovery” by Ann Boroch and I’m feeling soooooooo much better. I keep Ann appraised of the advances in CCSVI as she has shown an interest in it and she even wrote about it in her December 2009 Newsletter and attached a link to the CTV special on CCSVI. Way to go Ann!! Here’s contact info. http://www.annboroch.com phone (818) 763-8282 She is very accessible and knowledgeable about MS & nutrition.
Then last year just for fun, lol, I added in “The Sugar Addict’s Total Recovery Program” by Kathleen DeMaisons and again, I’m even better! A lot of issues have cleared up and I’ve also dropped 50 pounds as my only “side effect”!! I’d say that’s not so bad. Well, that and sobriety, as alcohol = sugar Had to say goodby to nightly cocktail hour.
When I was looking up the web site for the Quinoa analysis I pulled up this web site as well and found it interesting. I haven’t read it all, but a little ways down on the blog under Day 18 of Detox, she speaks about Quinoa and how she likes to prepare and eat it. And a little further down under the Day 17 of Detox, she speaks about her low Ferrin levels and how she addresses that through diet. It’s an interesting read and even though I’m not very far into it yet, I soon will be. She thinks like I do about the food choices we make every day. Garbage in, Garbage out!
http://womansguidetovitality.blogspot.com/
Maybe you’ll find some of this info helpful.
Respectfully,
Lora
- mariolecuyer
- Newbie
- Posts: 1
- Joined: Sat Feb 20, 2010 3:00 pm
Need Help to go to poland
Hello. Erika. I'm new on this forum and i'm looking to go to poland to see Doctor Simka. But i don't know where to start. Could you tell me what are things i have to do please?
Thank's.
Sorry for my english
e-mail: mariolecuyer@hotmail.com
Thank's.
Sorry for my english
e-mail: mariolecuyer@hotmail.com
-
- Family Elder
- Posts: 1125
- Joined: Wed Jul 29, 2009 2:00 pm
- Location: Slovakia, Europe
- Contact:
Dear Mario,
I just have sent you an e-mail with an answer.
Good luck!
Erika
I just have sent you an e-mail with an answer.
Good luck!
Erika
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
Treatment in Poland CCSVI
ErikaSlovakia wrote:Dear Mario,
I just have sent you an e-mail with an answer.
Good luck!
Erika
I am interested in going to Poland to get the treatment but don't know what or who to contact. Can you help me?
-
- Family Elder
- Posts: 1125
- Joined: Wed Jul 29, 2009 2:00 pm
- Location: Slovakia, Europe
- Contact:
Re: Treatment in Poland CCSVI
Dear Biggi,Biggie wrote:[
I am interested in going to Poland to get the treatment but don't know what or who to contact. Can you help me?
Dr. Simka + Dr. Ludyga from EuroMedic in Katowice in Poland are not accepting any new patients because they are full until 2011 but they are working hard on opening new hospital to do the procedure. So follow this site and of course you can send there an e-mail - maybe they can at least put you on a waiting list. Their e-mail box is often full and it takes about 2-3 weeks to get reply, so you must be patient.
Good luck!
Contact: info@euromedicpoland.com
You should maybe consider Bulgaria or other places...
Erika
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
Poland
There is a waiting list that runs into 2011 so you may not be able to register even... and Dr Simka's email address is not responding at the moment however I do have the address of the administrator that has recently been appointed to deal with patients, so you may like to try this one:
info@euromedicpoland.com
info@euromedicpoland.com
Michele, warrior4MS, mother and champion for Ella, the MSer. The solution is out there we just have to ask the right questions.
- tipsyturtle
- Family Member
- Posts: 56
- Joined: Sun Nov 29, 2009 3:00 pm
- Location: Canada
-
- Family Elder
- Posts: 1125
- Joined: Wed Jul 29, 2009 2:00 pm
- Location: Slovakia, Europe
- Contact:
You are welcome!tipsyturtle wrote:Erika,
Are you feeling any better?
Wanted to let you know that I received dates in Poland and THANK YOU for your constant support to so many people on this forum. You are truly an inspiration. Wishing you well.
jo
Since I do not exercise I feel better again - it means almost no fatigue but I still have problems with weakness.
It has something to do with my anemy. I will ask the hematologist to do test for vitamin B12 and vitamin D.
I think my walking is still improving I still do faster movements.
My left eye is as bad as before the procedure but I see everything with that eye, it just focuses slower than the right one and the picture is not very clear.
I still take iron pills - twice a day. My Ferritin level should be OK/better in 3-6 months. I just see on my finger nails that I might have B12 deficiency. I will see as soon as they do the tests.
My brain is still little bit foggy but again it might be from the anemy.
I for sure do not feel worse.
I am 117 days after my procedure.
First of all I must get stronger and then I must start to exercise again.
Mornings are hard for me. It is hard to wake up. I am weak and sleepy until noon.
I am very happy I had the procedure.
Erika
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
- tipsyturtle
- Family Member
- Posts: 56
- Joined: Sun Nov 29, 2009 3:00 pm
- Location: Canada
-
- Family Elder
- Posts: 1125
- Joined: Wed Jul 29, 2009 2:00 pm
- Location: Slovakia, Europe
- Contact:
Yes, I still take LDN.tipsyturtle wrote:Erika,
I am glad to hear that you will have tests for Vit D. I am on 10,000 IU a day- seems to help. Also, when I was very fatigued I had injections of B12 weekly for months. They did not do a test for B12 - they just did injections.
I assume you are still taking LDN.
Sending my best!
jo
I got 3 shots of B12 when I had my last relapse in October 2008.
My GP thinks I need nothing. She believes all my problems come from MS only.
I must wait until I get results. She does not want to prescribe me B12 injections. When I sit and do nothing I am not fatigued only weak. Before the treatment I was fatigued even without doing anything.
I can not afford (financially) more than 2 000 mg a day of vitamin D. If yes, so I can not afford LDN. If I worked I could afford it. As I am so weak I am not able to work. Beautiful
Erika
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse