This Is MS Multiple Sclerosis Knowledge & Support Community

I honestly spend time trying to make sure my kids can do some things independently... but after a rough time, I feel they all act as if I'm indispensable! After a rough month, I take ONE DAY to start Gilenya (and from the kids' perspective, a whole 1 1/2 hours after school ends)... and I find all th...

I am a little surprised, only because my doctor monitors regularily (more frequent because my count is a little low), and I was told that they were Ignatius given guidelines for lymphocite count with the drug. Maybe it is a location difference (I am in Canada), but apparently it is supposed to be a ...

After about a year on Tecfidera, I will still feel a little sick if I don't eat enough. Mostly it is no longer a big deal... I suspect you are not the only one; it is just a mild annoyance compared to a relapse...

Thanks for asking :-). Turns out I am JC+. I was told that low lymphocyites (spelled wrong!) for more than 2 years would put me at risk for PML, so it was decided to keep with monthly blood tests and quit if it dips too low. Of course, this is based on my circumstances (less than 3 years of assorted...

I hear you! I think some Neuros are noticing... mine has sent me for JC virus testing (waiting for results) with borderline lypholites (spelt wrong). PML was NOT something I expected to talk about when I started (I turned down Tysberi already, partially for the PML risk).

I have thought about it to. Unfortunately, the best defence against Ebola is to NOT GET IT as it is deadly regardless of your health. Therefore, I concluded for myself to take the meds (I just switched to Tefidera) as I will feel better with less relapses and more able to keep away!

I doubt there will ever be a cure (at leadt researched commercially) as they make too much money off of us being sick!

I really don't think you are being a cry baby! I am still walking without assistance (RRMS), and to go out anywhere I first decide on how important it is, then I plan and rest just so I can go, and the "last minute" thing doesn't work... You mentioned mobility, but forgot to mention energy...

What can you expect when you quit one of the inerferon drugs (Avonex, Rebif, Betaseron) after a decent length of time (not a couple of doses)?

Quick question: is she taking one of the inerferon drugs? Those can affect mood. Check to see if any of her meds might be a factor... just a thought.

Make sure you tell him (truthfully) that, before you could tell him, you had to tell yourself first!

I wish the best for both of you, and I hear you... it takes awhile.

I'm not on Avonex, but Betaseron (another injectable). The anxiety from self injection is the hardest part! Everyone is different, and will have to find something that works! A small reward after injection is my biggest recommendation... I let myself have a small treat, but only AFTER. Apparently I ...

I hope this works out too... I'll have to get back to you guys on whether this is all talk or if there is an improvement in MY life (I live in Alberta).

Hello, Some bloodwork to make sure all is well sounds like a good plan. Unfortunately, I am not an expert in what to look for... MS has been my first (mis)adventure in the world of medicine! But I totally hear you on how confusing it is! I'm allergic to Copaxone, and we chose Betaseron partially bec...

My experience... it took me 6 to 9 months to start feeling more normal again. I found exercise seemed to help pull me through (my mood was just kind of yucky for awhile). I think I pulled through because Copaxone is not an option, and it did eliminate a lot of relapses.

All the best to you!