This Is MS Multiple Sclerosis Knowledge & Support Community

I purchased a Stacool vest to help me get outside this summer. What a HUGE MISTAKE!! It seemed like a good idea on paper. In the ad it claims to be 'the most lightweight, comfortable, cooling system available,' and 'each lightweight vest offers up to three hours of cooling per ThermoPak set.' First ...

Hi Gymbuff I have had a three accupuncture sessions, one with an Asian doctor, (I am in Minneapolis - not Asia), with his receptionist translating for me. One with an american trained accupuncturist.. Even though I couldn't communicate directly with the Asian accupuncturist, the short term results w...

Hi Brynn, I have been tossing around the idea of going to Poland for this procedure. I do have a few questions, if you don't mind. What does the procedure cost? (I am having an MRV in the states next month) Does the hospital have English speaking staff? How long would I need to stay in Poland? How d...

Hi, You didn't mention how long you have been dx'd. I personally was dx'd in June of '96 and I have been on all the ARC drugs, I started with Avonnex, then my doc switched me to Rebif, (claiming 'studies have shown, blah, blah, blah....'). I HATED the side efects of both of these drugs. The intense ...

Hi, I thought that I would chime in. I have been takin LDN since October. I started with 1mg capsules and felt stronger than I have felt in a long time. :D I then assumed that more would be better, and had my neuro prescribe me 3mg, in liquid form. Since taking the 3mg, I have found myself regressin...

Hello All, I was wondering if anyone else heard the Copaxone was useful in treating Secondary Progrssve MS. I was at a dinner a couple of weeks ago, and I could've sworn that I heard the speaker, (a neurologist from Mpls), mention that Copaxone was now being used for SPMS. I, unfortunately, was invo...

I just got the word yesterday that I qualify to participate in the 2nd phase III trial of MBP8298. They had to draw blood first before I could qualify, (75% of MS patients have the correct antigen for this drug to be effective). I guess I did! :D :D :D :D There is a bunch of meetings before my first...

One thing that worked for me to lessen the stinging, is to let the alcohol wipe dry before injecting. That might be what is causing the discomfort. By the way, I was on Avonnex and Rebif before the Copaxone, and I have been having the best results from the Copaxone. In my opinion, you really don't w...

I listened to my doc, and passed on it. He has since started me on Copaxone, and I'm showing improvement. I'm thinking that I had developed the neutralizing antibodies to the interferon, which brought about my decline. It's still a disappointment, since I have heard (mostly) good things about the re...

Thanks Craig, I appreciate the feedback. I was all set to go ahead with it. In fact, I have an appointment for my first infusion on Thursday the 13th, when my doc calls me today and tells me that a patient of his that was on it a number of years ago recently had her heart give out on her. She is not...

My Doc recommeded that I go on Novatrone due to worsening symptoms. He gave me some info on it, and one thing I noticed is that due to the lowered white blood cell count after treatment, it is recommeded that I wear a mask to protect me 10 - 21 days after infusion. Has anyone else experienced this? ...

you know what? F*%# that doctor . Don't let some jerk bring you down. You only see him/her once in a while. You have to deal with this situation every day. It does sound like he is giving you decent advice, he just doesn't have social skills. You should probably listen to his advice, but don't liste...

Hi All, For those of you in Minneapolis, Dr Birnbaum at the Minneapolis Clinic of Neurology is doing a Rebif/Lipitor study. This is a double blind study. You would either receive 80mg of Lipitor, 40mg, or placebo. So the odds are good you would get something. :D You must be taking Rebif for at least...

Hi, This is AAron, not to be confused with our fearless leader aRRon. :lol: Anyway, I've heard people speak of canes that the can fold and carry if they don't need it at the time. Does anyone have any info on how I can purchase one of these. I sometimes 'gimp' after walking a distance, but sometimes...

Hi All, First of all I'm AAron, not to be confused with aRRon. Now, back to topic. Serono and Bioject have recently signed a partnership agreement, so hopefully the needless injections are just around the corner. By the way Bioject's stock trades for about $1.60 and Aradigm (another needless injecto...