Search found 3 matches

by mselinida
Wed Jan 30, 2013 7:54 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: They found cancer during my CCSVI research test
Replies: 5
Views: 1324

Re: They found cancer during my CCSVI research test

Cece, good question! I might ask my neuro about that. The radiation they gave me was not site-specific, though. They had me take radiation iodine pill. Apparently thyroid cancer can break off and travel to other parts of your body. So if it ends up on your lung, you don't get lung cancer, you have t...
by mselinida
Tue Jan 29, 2013 9:27 am
Forum: Ampyra
Topic: Would like to hear from people using Ampyra
Replies: 22
Views: 23561

Been on it for well over a year

I got on it a couple of months after it was approved here in the states, so it may be closer to 2 years. It's not a wonder drug but I definitely notice it when I'm not on it. I can even feel it when each individual dosage is wearing off. But it's not making me miraculously walk. It's better than not...
by mselinida
Tue Jan 29, 2013 9:11 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: They found cancer during my CCSVI research test
Replies: 5
Views: 1324

They found cancer during my CCSVI research test

Hello. I am new. This is my first post. I don't know if anyone has discussed this in this forum, but I couldn't leave without posting. A couple of years ago I was in the research study for the CCSVI and I was getting the neck sonogram when the doctor that was doing it said that she saw some nodules ...