This Is MS Multiple Sclerosis Knowledge & Support Community

I'm so sorry you are so scared!! You are so young and I hope it is not the MonSter like I have!! I'm here if you need to talk!

Hi Judy! I'm sorry for the delayed response- I just saw this... They started me right off the bat with tysabri because I have a lesion on my C2... That's what they told me after I asked as well why they were going so aggressive as a first resort. I started Tysabri last month. It went pretty well and...

Haha Harry oh the sarcasm!! I am trying to be as positive as I can!!! Lol

When I went to my neurologist and TOLD him what supplements I was taking he told me he was impressed. My bloodwork came back good, just D was low. I told him well I started 50 B complex, 10,000 iu D3...etc and he was pleased. Told me not to take more than 50,000 D3 a week. I signed the dotted line t...

Signed the dotted line today to start Tysabri in a couple of weeks. When asked why they are going so aggressive right off the bat, it s because besides the numerous lesions I have on my brain, there is one on my spine. I want to continue to walk my daughters upstairs to take their baths. Doctor said...

Thanks all for your words of knowledge and experience. I signed the dotted line today for Tysabri. When I asked why they were putting me on such an aggressive med right off the bat, they told me it is because I have a lesion on my spine. So if I keep growing them on my spine, one day I may not walk....

Jimmylegs I had missed the link but I just read it- I am going to my neurologist tomorrow and asking for complete bloodwork!

Thank you!

Harry I think At first I was the latter in the aspect that I told the neurologist that and I quote directly "my life is in your hands so whatever you tell me to do I will do" . And then I kind of had an awakening so to speak after meeting so many MS comrades. And then ,as you, I think what...

"Jeff is on Copaxone--I mention that above, patientx. I've mentioned it for 6 years now. I am not anti-pharma. I am anti- overprescribing serious immune ablating drugs as a first line treatment, without understanding the disease mechanism behind MS." Cheerleader I couldn't agree more. It's...

Good morning from NYC! I am a newbie to this forum, having stumbled upon this wonderful forum recently. (AND SO GLAD I did!) Let me tell you a little background. I am 35 years old. I have a wonderful husband and 2 beautiful daughters, age 3 years and 5 weeks. Yes stress is bad for me, but wouldn't c...

"2. Slows down the progression of physical disability. People who were treated with TYSABRI were 42% less likely to develop worsening physical disability — 29% of people who received a placebo had their physical disability worsen, versus only 17% of people who were treated with TYSABRI. Of the ...

Just got the call that I am JCV negative. Want me on Tysabri ASAP. Have a doctors appointment on Friday to discuss further. What questions does anyone suggest I ask?? When I sit down with he doctors I am at a loss for words. Also, Harryz upon research for Tysabri it does state it does in fact slow p...

I was diagnosed Mothers Day weekend of 2012...yes Happy Mothers Day to me :/ My symptoms have been minimal (tingling in right arm, numbness in toes, occasional burning in thighs and back spasms) My doctor in May of 2012 wrote me a script for Avonex injections. My daughter at the time was 2 and my hu...

Thank you for your post Harry!! I thought I am only having few symptoms (tingling, numbness) but after looking on here, I realized I have been having numerous other symptoms (pain behind left eye, burning sensation in legs, etc). So I am grateful for this forum to help educating newbies like myself!...

Maybe I didn't use the right words... I am completely honest with my Hubby, but if I told him every time I had tingling or numbness we would never speak of anything else!! He knows what I have, he holds my hand when I cry, and makes me laugh everyday.. Which I think is the best darn medicine! :) You...