Search found 19 matches

by Trevvian
Mon Jan 13, 2014 7:12 pm
Forum: Diet
Topic: looking for bloodwork advice
Replies: 37
Views: 5289

Re: looking for bloodwork advice

THANK YOU so much! I could not have figured that out myself. I was hoping there might be a smoking gun, but ruling things out is half the battle.

My doc is on board for me to up magnesium & zinc. Then it's off to a sleep study for me.

Thanks again for taking the time to do this.
by Trevvian
Sun Jan 12, 2014 2:15 pm
Forum: Diet
Topic: looking for bloodwork advice
Replies: 37
Views: 5289

Re: looking for bloodwork advice

Alright, the results are posted in my e-chart. Everything came back normal, but I don't know about "optimal." I tried to do a little comparison with some of jimmylegs's older posts and just totally confused myself as these aren't even units of measure I'm familiar with, so the conversions got the be...
by Trevvian
Mon Jan 06, 2014 2:41 pm
Forum: Diet
Topic: looking for bloodwork advice
Replies: 37
Views: 5289

Re: looking for bloodwork advice

No prioritization needed. Sent the list in via electronic chart messaging & received a reply within 14 minutes. "I have orders in for these tests as well as kidney function testing, blood sugar, thyroid testing and complete blood cell counts. You can call to schedule an appointment and a follow up a...
by Trevvian
Mon Jan 06, 2014 10:52 am
Forum: Diet
Topic: looking for bloodwork advice
Replies: 37
Views: 5289

Re: looking for bloodwork advice

All right, I think I've successfully compiled a list of tests to ask for. This is what I've got. Am I missing anything? My doc posts all test results in my online chart, so I should be able to get a good look at them. Then I can adjust diet/supplements accordingly. Serum testing for: • Vitamin B12 (...
by Trevvian
Fri Jan 03, 2014 8:27 pm
Forum: Introductions
Topic: Diagnosis MS
Replies: 4
Views: 1310

Re: Diagnosis MS

Yep, I was diagnosed out of the blue in July and, aside from obnoxious symptoms & fatigue, my life hasn't changed much. My neuro fully approved my 4 step plan to manage (in the short term, as we all know things can change) 1. Take a DMD & do annual checkups. Very personal decision, I wouldn't presum...
by Trevvian
Fri Jan 03, 2014 8:09 pm
Forum: Diet
Topic: looking for bloodwork advice
Replies: 37
Views: 5289

Re: looking for bloodwork advice

Anonymoos, Thanks. It was interesting though a bit over my head. I will check for anemia, but I would think my omnivorous ways would prevent that? Maybe Tec does do something funky. I wonder if anyone gives educational grants to new MSers...I can see I'm going to need some organic chemistry, if not ...
by Trevvian
Fri Jan 03, 2014 6:24 pm
Forum: Diet
Topic: looking for bloodwork advice
Replies: 37
Views: 5289

Re: looking for bloodwork advice

Yikes! No, I really don't eat Mayo by the cupful. I meant 1-2 T to 1/2c. ;) Thank you so much for the helpful advice; I'm quite amazed at the time you spend helping others. Very helpful on the supplement washout especially. I never would have thought of that. I would LOVE to add oatmeal; I sort of n...
by Trevvian
Fri Jan 03, 2014 5:48 pm
Forum: Diet
Topic: looking for bloodwork advice
Replies: 37
Views: 5289

Re: looking for bloodwork advice

No worries on the masculine pronoun, though that would make my choice of vitamin seem suboptimal, I suppose. I have obnoxious tingling & painful paresthesias, hence the gabapentin. And bone crushing fatigue, hence only taking it after work, as it's very sleepifying for me. FATIGUE, as in being able ...
by Trevvian
Fri Jan 03, 2014 5:06 pm
Forum: Diet
Topic: looking for bloodwork advice
Replies: 37
Views: 5289

Re: looking for bloodwork advice

Thanks to all for the helpful replies. Here's the requested details on my diet. The gratitude diet may be a family term that's not widely used: 'thank you Lord that I have food to eat. I did the best I could with what I have, now you take it from here.' It just means I'm eating cheap. :) It's easier...
by Trevvian
Mon Dec 30, 2013 8:11 pm
Forum: Diet
Topic: looking for bloodwork advice
Replies: 37
Views: 5289

looking for bloodwork advice

I'm planning for an appt with my GP. I'd like to have a full blood workup & check the levels of key things that tend to be wonky in MS patients. So far, I have Vit D, zinc & magnesium on my list. Anything else I'm missing? No idea if this is appropriate on the forum, but I'm going to go ahead & call...
by Trevvian
Sun Dec 29, 2013 5:35 am
Forum: Tecfidera (BG-12, dimethyl fumarate)
Topic: Tecfidera - cold and flu - Anyone getting sick more?
Replies: 12
Views: 11775

Re: Tecfidera - cold and flu - Anyone getting sick more?

I've been on Tec since 10 August & have had: a viral eye infection usually seen only in children or the immunosuppressed, viral menningitis,2 colds that lasted a week each. Hard to say if the Tec's to blame. Drop in WBC at first but elevated ever since. I will say,tho, that the side effects ameliora...
by Trevvian
Sun Sep 01, 2013 12:22 pm
Forum: Daily Life
Topic: Who to tell? What to tell? How much to tell?
Replies: 6
Views: 3834

Re: Who to tell? What to tell? How much to tell?

All good advice; thanks everyone. I will continue to share with people who need to know and let the rest think what they will. I laughed out loud at the "novelty of your situation will wear off." I have been a bit self-absorbed lately and probably no one else thinks about me as often as I think they...
by Trevvian
Tue Aug 27, 2013 3:30 pm
Forum: Tecfidera (BG-12, dimethyl fumarate)
Topic: Side effects
Replies: 184
Views: 86444

Re: Side effects

So sorry you are having such a hard time. Hopefully you have a MS Neurologist Specialist at an MS Center. I would recommend you call him/her and see if you can talk to them or see them. What other medications do you take? Morning, Afternoon and evening? Perhaps there is something going on with the ...
by Trevvian
Mon Aug 26, 2013 6:22 pm
Forum: Tecfidera (BG-12, dimethyl fumarate)
Topic: Side effects
Replies: 184
Views: 86444

Re: Side effects

Day 16 and I'm dying here. The first 12 days were fine, following the diet/OTC suggestions from the forum. The last 3 have been miserable. Insomnia, fatigue, symptoms, side effects, weight gain. Fatigue is killing me...walking to meetings at work was the extent of today's exercise. Abdominal pain li...
by Trevvian
Mon Aug 26, 2013 3:29 pm
Forum: Daily Life
Topic: Who to tell? What to tell? How much to tell?
Replies: 6
Views: 3834

Who to tell? What to tell? How much to tell?

Just diagnosed 6 weeks ago & I pretty much blurted to everyone I know. Well, that's exaggerating, but I told 4 people at work, 4 at church, a support group I'm in, and my whole family. And my hairdresser--but that was imperative, as I was losing function in my left hand & needed a carefree style. No...