Search found 15 matches

by reed
Wed Dec 07, 2005 8:10 am
Forum: General Discussion
Topic: Tem nets
Replies: 1
Views: 1952

Re: Tem nets

Hi everybody, I know my question doesn´t belong to this forum, but maybe somebody can help me. I´m an europien patient with MS, I don´t spek english as a mother tongue. Today we got in a school Topics for essay writeing( I have one course in English language) The topic is: "Team nets how to wo...
by reed
Sun Oct 16, 2005 6:33 am
Forum: Tysabri (Antegren, Natalizumab)
Topic: Tysabri info
Replies: 410
Views: 107020

Re: MS drug worked wonders

She, too, was on the drug for only one short month. However, in that one short month, we (her family) saw drastic improvements in her health. With just one infusion of the drug, she was walking better, talking better, thinking more clearly and didn't fall once. Now if this MS patient had taken some...
by reed
Sun Aug 28, 2005 11:50 am
Forum: General Discussion
Topic: Anti-biotics - had your fill of them?
Replies: 46
Views: 15376

Just the Facta

Well, there is this one microbiologist who is often referred as "dr." , even by his wife which is kind of amusing from a scandinavian perspective. Seriously, it may rise some false expectations about his understanding of clinical and pathological signs of MS. But I suppose you know what y...
by reed
Fri Jun 10, 2005 1:25 pm
Forum: Tysabri (Antegren, Natalizumab)
Topic: Tysabri info
Replies: 410
Views: 107020

"Multiple sclerosis can vary in severity, with the relapsing-remitting type being especially debilitating." I quote the offending language above. My parse would ask "especially, compared to what?" I cannot say what the language "meant to imply." I can only tell, as can ...
by reed
Mon May 30, 2005 8:09 am
Forum: General Discussion
Topic: Theories: "Auto-Immune" vs. Not
Replies: 47
Views: 16149

Robin, Ian, Harry, Reed You guys made an offer no Finn can refuse. Once this thing is solved I'll take the first plane to London. A couple of drinks after a long dry season (some balance problems at the moment, you know) sounds like an excellent idea. Btw, Harry, Reed, is it ok with you if we meet ...
by reed
Sun May 29, 2005 11:45 am
Forum: General Discussion
Topic: Theories: "Auto-Immune" vs. Not
Replies: 47
Views: 16149

[/quote] When the mystery is finally solved we should all get together and have a drink (provided the solution comes in our lifetime that is!)

Thanks

Robin[/quote]


I'd like to buy, provided, of course, that drink is not the one thing we're not allowed to do! (It figures.)

Reed
by reed
Sat May 28, 2005 6:03 am
Forum: General Discussion
Topic: Theories: "Auto-Immune" vs. Not
Replies: 47
Views: 16149

Theory and Practice

. It is of course only theory but one that I feel best explains the processes seen in MS. I do not believe that suppressing inflammation results in a faster transition from RRMS to SPMS. Robin Thanks for your instructive comment. Is it possible to test the hypothesis expressed in your last sentence...
by reed
Fri May 27, 2005 2:39 pm
Forum: General Discussion
Topic: Theories: "Auto-Immune" vs. Not
Replies: 47
Views: 16149

Short and Long Term Effects

Finn wrote: here's another quote concerning current therapies: "The disease modifying therapies recombinant betainterferons and glatiramer acetate are now widely used in the treatment of RRMS, but questions remain concerning their efficacy in preventing long term disability. The reduction in re...
by reed
Sat May 21, 2005 7:14 pm
Forum: Tysabri (Antegren, Natalizumab)
Topic: Tysabri info
Replies: 410
Views: 107020

Re: FDA Drug-Approval Process: Is Criticism of It Fair?

[quote="better2gether"]. FDA Drug-Approval Process: Is Criticism of It Fair? May 20, 2005 By Harold J. DeMonaco, M.S. Massachusetts General Hospital .... Multiple sclerosis can vary in severity, with the relapsing-remitting type being especially debilitating. .... I disagree; the FDA is do...
by reed
Mon May 16, 2005 8:47 am
Forum: Tysabri (Antegren, Natalizumab)
Topic: Tysabri info
Replies: 410
Views: 107020

DenverCO wrote:
[Some] are constantly quoting the opinions of anonymous neurologists....
Well, as someone once quoted (without identifying attribution, of course), "A whopping 97% of anonymous neurologists are invariably mistaken."

Reed
by reed
Sun May 15, 2005 4:39 pm
Forum: Tysabri (Antegren, Natalizumab)
Topic: Tysabri info
Replies: 410
Views: 107020

Re: Comments from an Neurologist

. Comments from an Neurologist 2. Most neurologists will welcome its return. Would you please be so kind as to provide the source of this quotation? That way an objective, independent observer can better check up on and evaluate this neurologist's credentials, his or her potential conflicts, and ot...
by reed
Mon May 09, 2005 5:27 am
Forum: Tysabri (Antegren, Natalizumab)
Topic: Tysabri Suspension - after shocks will be?
Replies: 60
Views: 20916

Re: 94% Of Neurologists Would Prescribe Tysabri

. 94% Of Neurologists Would Prescribe Tysabri Deborah Knobelman, a biotech analyst at Piper Jaffray, surveyed 134 neurologists who might prescribe the drug, and a whopping 94% said they still see some role for Tysabri. . Unfortunately, experience indicates that a whopping 95% of all neurologists ar...
by reed
Thu Mar 31, 2005 3:04 pm
Forum: Tysabri (Antegren, Natalizumab)
Topic: Tysabri info
Replies: 410
Views: 107020

It's terrific and confidence-building to get an a priori analysis from a medically trained scientist. But, given what's at stake, this patient is going to wait for some additional, old fashioned empirical evidence.
by reed
Thu Mar 31, 2005 11:00 am
Forum: Tysabri (Antegren, Natalizumab)
Topic: Tysabri info
Replies: 410
Views: 107020

Another Death

Yes, the various news and financial reporting services confirm that a third patient--this one not on Avonex--died in DECEMBER 2003 while on Tysabri for the treatment of Crohn's disease. That death was incorrectly attributed to a tumor. In fact, it is now known that the cause was PML.
by reed
Wed Mar 02, 2005 3:18 pm
Forum: Tysabri (Antegren, Natalizumab)
Topic: black-box and dosing limit
Replies: 3
Views: 2973

Serendipity and Periwinkles

Too bad they didn't do that up front, though. Shoot, if somebody like little stupid peon me found the medical and corporate evidence that I did (months ago) and then pushed for the very cautions and protocols you just said (in my letter to the FDA and others), then I still am just literally shocked...

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