Search found 14 matches

by ScaredStray
Sat Aug 06, 2016 11:15 am
Forum: Undiagnosed
Topic: Migraine lesions vs MS lesions
Replies: 2
Views: 6011

Re: Migraine lesions vs MS lesions

Migraine lesions are a little different than MS lesions, they're previously ischemic tissue because the main effect of a migraine physiologically is the changes in blood flow. They tend to be much smaller (practically pin point) and more evenly distributed for this reason. It's a judgement call, adm...
by ScaredStray
Sat Aug 06, 2016 11:04 am
Forum: Undiagnosed
Topic: Question on flares (symptom development within one flare)
Replies: 20
Views: 3707

Re: Question on flares (symptom development within one flare

Sorry, I'm not seeing things very clearly right now. Everything feels really high contrast. I'm not sure if it's a symptom or just me being run ragged by all this. I really appreciate the EGCG tip as no one had me me aware of that and I do drink green tea occasionally (though thankfully I hadn't bee...
by ScaredStray
Fri Aug 05, 2016 3:03 pm
Forum: Undiagnosed
Topic: Question on flares (symptom development within one flare)
Replies: 20
Views: 3707

Re: Question on flares (symptom development within one flare

I saw an epileptologist who ordered the sleep deprived EEG and did some physical examination. Concluded no sign of epilleptiform activity which I thought was weird because following the rhythmic breathing portion of the EEG I felt like there was a hurricane in my head. Suspected epilepsy was also th...
by ScaredStray
Fri Aug 05, 2016 2:24 pm
Forum: Undiagnosed
Topic: Question on flares (symptom development within one flare)
Replies: 20
Views: 3707

Re: Question on flares (symptom development within one flare

Haven't had a sleep study done. Whatever's causing the injuries only seems to happen at the onset of whatever this is. Both times that lasted ~2 weeks and then the real neuro symptoms began. By the time I was talking to my doctor it had pretty much subsided. It's worth noting that I was a personal t...
by ScaredStray
Fri Aug 05, 2016 1:53 pm
Forum: Undiagnosed
Topic: Question on flares (symptom development within one flare)
Replies: 20
Views: 3707

Re: Question on flares (symptom development within one flare

I definitely fit the time guidelines. First bout lasted about 2 months start to finish with the symptoms being transient and just getting worse and more varied each time they came back in that period. I don't think I had a single symptom free day once they started. Then I felt like I'd gone 99% of t...
by ScaredStray
Fri Aug 05, 2016 12:12 pm
Forum: Undiagnosed
Topic: Question on flares (symptom development within one flare)
Replies: 20
Views: 3707

Re: Question on flares (symptom development within one flare

I am SUPER aware of that fact Snoopy. Thanks. Again, I have a specific question. I included the blood work so I could show you guys that vitamin D, B12, and metabolic causes of Chorea HAD been ruled out as have the major identifiable genetic causes (Huntingtons, Wilson's, Neuroacanthcytosis). My hop...
by ScaredStray
Fri Aug 05, 2016 10:50 am
Forum: Undiagnosed
Topic: Question on flares (symptom development within one flare)
Replies: 20
Views: 3707

Re: Question on flares (symptom development within one flare

NHE, if I'm being honest it doesn't feel like I'm being helped, it feels like I'm being sold. My B12 was on the HIGH side of normal to begin with. I'm taking methyl B12 anyway and it appeared to work and then seems to have stopped working. I am 99.99999% sure it is not a vitamin issue. Please stop t...
by ScaredStray
Thu Aug 04, 2016 11:25 am
Forum: Undiagnosed
Topic: Question on flares (symptom development within one flare)
Replies: 20
Views: 3707

Re: Question on flares (symptom development within one flare

..and I'm pretty sure I just had my first visual hallucination, way ahead of schedule. I'm really scared. If anyone can weigh in one whether symptoms normally hit all at once or develop over time I'd really appreciate it. :(
by ScaredStray
Thu Aug 04, 2016 10:24 am
Forum: Undiagnosed
Topic: Question on flares (symptom development within one flare)
Replies: 20
Views: 3707

Re: Question on flares (symptom development within one flare

I still don't think it's the vitamin D issue. When I had the blood drawn I'd basically been bed ridden for over a month so I'd had no sunlight exposure and wasn't eating as healthy as I normally do. Ordinarily I have good dietary sources and get outside. The delay was because blood work wasn't done ...
by ScaredStray
Wed Aug 03, 2016 11:30 pm
Forum: Undiagnosed
Topic: Question on flares (symptom development within one flare)
Replies: 20
Views: 3707

Re: Question on flares (symptom development within one flare

Interesting. I'll give them a try. If it is a simple matter of the vitamins do you have any idea why they would have worked for months and months and then stopped? More to the point, no one has answered my actual question of whether flares can tend to progress in similar fashion as far as the order ...
by ScaredStray
Wed Aug 03, 2016 10:48 pm
Forum: Undiagnosed
Topic: Question on flares (symptom development within one flare)
Replies: 20
Views: 3707

Re: Question on flares (symptom development within one flare

The heavy metals are all normal. Remember, I don't have the listed value I have lower than it. I think what it means is they'd have to do something more in-depth to lower the detection threshold below that point. They presumably didn't bother doing it since the preliminary test indicated it was norm...
by ScaredStray
Wed Aug 03, 2016 7:12 pm
Forum: Undiagnosed
Topic: Doctor is stumped
Replies: 1
Views: 1140

Re: Doctor is stumped

Has your neuro considered fibromyalgia? The widespread pain alone should point you in that direction and it can explain a lot of neurological symptoms as well.
by ScaredStray
Wed Aug 03, 2016 7:08 pm
Forum: Undiagnosed
Topic: SOMEONE PLEASE HELP ME!!!
Replies: 1
Views: 1071

Re: SOMEONE PLEASE HELP ME!!!

B12 deficiency alone can explain your symptoms including the spots on the MRI. Low B12 causes demyelination which is why MS shows up on an MRI in the first place.

Make sure you're taking methylated B12, by the way, and take it several times a day not just once.
by ScaredStray
Wed Aug 03, 2016 6:51 pm
Forum: Undiagnosed
Topic: Question on flares (symptom development within one flare)
Replies: 20
Views: 3707

Question on flares (symptom development within one flare)

Hi all, Basically, my question is whether it's common for flares to "unfold" with the same progression of symptoms. I first went to see my GP following a series of nocturnal injuries. At the time I thought I was having seizures in my sleep because I'd go to bed fine and wake up feeling lik...

Go to advanced search