Search found 11 matches

by cene
Wed Aug 24, 2016 7:00 am
Forum: Avonex
Topic: NEW to Avonex
Replies: 18
Views: 4750

Re: NEW to Avonex

Hi I have just tested my Vitamin D levels and it is 35.6 μg/L. Should be considered also that I'm taking almost one month 10.000 IU Daily Please if you can give me any suggestion on this? Are you using vitamin D2 or D3? D3 is better absorbed and D2 can actually lower your D3 levels. http://www.this...
by cene
Wed Aug 24, 2016 4:40 am
Forum: Avonex
Topic: NEW to Avonex
Replies: 18
Views: 4750

Re: NEW to Avonex

About my vitamin D intake i have not checked yet my serum levels but I'm planing to do so soon. Currently I'm taking 5.000 IU Daily but i think i will increase to 10.000 Maybe you can suggest as well. I take also sunbathes as much as possible on sunny days. Please do request the 25-hydroxy D blood ...
by cene
Thu Aug 11, 2016 1:42 am
Forum: Avonex
Topic: NEW to Avonex
Replies: 18
Views: 4750

Re: NEW to Avonex

That is great! It's hard to tell what you mean by that. I wish that Avonex had better efficacy for me, but it didn't. It also impacted my life in negative ways. Have you used any specific diet, medications, lifestyle besides Avonex? Yes. I've discussed these on the other forums over the years. In b...
by cene
Wed Aug 10, 2016 6:03 am
Forum: General Discussion
Topic: MS Progression
Replies: 3
Views: 806

Re: MS Progression

Hello cene, Are you having an exacerbation (relapse, attack, flare-up)? The definition of an exacerbation is old symptoms increasing and/or new symptoms showing up lasting continuously for more than 24 hours and separated from the previous exacerbation by 30 days. These are guidelines, your Neurolo...
by cene
Wed Aug 10, 2016 3:10 am
Forum: General Discussion
Topic: MS Progression
Replies: 3
Views: 806

MS Progression

I have 2 question which I hope someone can provide some info on. Is there any record that Relapsing MS can go to Progressive in course of few months? Can you go from Fully healthy to disabled in course of 1 year? The reason why I ask this is that I Was diagnosed with Relapsing MS 4 moths ago but wit...
by cene
Tue Aug 09, 2016 11:06 pm
Forum: Avonex
Topic: NEW to Avonex
Replies: 18
Views: 4750

Re: NEW to Avonex

Is there any specific reason why you are not taking and DMDs? I experienced a long and slow gradual decline over several years and the side effects seemed to be the only thing I was getting out of using Avonex and they weren't worth it anymore. That is great! Have you used any specific diet, medica...
by cene
Tue Aug 09, 2016 12:12 am
Forum: Avonex
Topic: NEW to Avonex
Replies: 18
Views: 4750

Re: NEW to Avonex

NHE wrote:
cene wrote:How is your situation now? Do you still take Avonex or?
No, I've been off Avonex for several years now and I don't take any other DMDs.
Is there any specific reason why you are not taking and DMDs? Have your condition improved or?

Thanks
by cene
Sun Aug 07, 2016 11:32 pm
Forum: Avonex
Topic: NEW to Avonex
Replies: 18
Views: 4750

Re: NEW to Avonex

First few times it was really bad with severe side effects but finally I started to use Brufen 3 hours after the injections and it seems that works well for me. Very little or no side effects. I took Avonex for 10 years. I always used to feel a bit cruddy the next day. Ibuprofen helped with that as...
by cene
Sun Aug 07, 2016 11:15 pm
Forum: Avonex
Topic: NEW to Avonex
Replies: 18
Views: 4750

Re: NEW to Avonex

Thanks a lot for the info!

About my vitamin D intake i have not checked yet my serum levels but I'm planing to do so soon.
Currently I'm taking 5.000 IU Daily but i think i will increase to 10.000

Maybe you can suggest as well.

I take also sunbathes as much as possible on sunny days.
by cene
Fri Aug 05, 2016 7:04 am
Forum: Avonex
Topic: NEW to Avonex
Replies: 18
Views: 4750

Re: NEW to Avonex

Sorry i was supposed to mention that I'm a Male :) Thanks for the wishes and will pass on to my fiance as well. BTW i'm taking regularly Vitamin D as supplement and also Magnesium and some other vitamin supplements like B Complex and Zinc. I have read somewhere that Niacin (B3) in high dosses over 1...
by cene
Fri Aug 05, 2016 5:24 am
Forum: Avonex
Topic: NEW to Avonex
Replies: 18
Views: 4750

NEW to Avonex

Hi All, I'm new in the forum and was diagnosed with MS few months ago. My first symptom was back in 2010 and was only local as Optic Neuritis. No other symptoms whatsoever. I got Corticosteroid treatment and vision got back to normal in 4 weeks. I was Not diagnosed with MS since it was considered as...