Search found 5 matches
- Tue Jan 14, 2020 6:01 am
- Forum: General Discussion
- Topic: Myelin Switch
- Replies: 4
- Views: 187
Re: Myelin Switch
Hopefully they are on to something that actually repairs our disease damage
- Mon Jul 08, 2019 4:14 pm
- Forum: Ocrevus (Ocrelizumab)
- Topic: Why Ocrevus is a new favorite drug by doctors?
- Replies: 6
- Views: 1343
Re: Why Ocrevus is a new favorite drug by doctors?
I think that chart reflects a 25% reduction in progression compared to no treatment. It’s not much but I guess 25% is better than nothing. I might be wrong
- Sat Mar 16, 2019 5:49 pm
- Forum: Ocrevus (Ocrelizumab)
- Topic: Seeking feedback on Ocrevus for PPMS, esp. from those 10-30 years POST DIAGNOSIS
- Replies: 7
- Views: 1462
Re: Seeking feedback on Ocrevus for PPMS, esp. from those 10-30 years POST DIAGNOSIS
Yes it’s unfair to anyone reading , for me to jump to too many collusion’s here but I’m happy I was at long last prescribed a DMT and now have more feeling better days than feeling worse ones. It’s been a slow steady decline over a lot of years to get here. And suspect a claw back would be over arou...
- Fri Mar 08, 2019 6:53 pm
- Forum: General Discussion
- Topic: MS review: The division of MS in "types" was made up just to approve interferons
- Replies: 4
- Views: 528
Re: MS review: The division of MS in "types" was made up just to approve interferons
My initial PPMS diagnosis was just exactly that. Slow steady decline with no remittances. I think different immune systems just fight MS differently but the disease is all the same one. Compassionate Drs knew that there was no medically proven treatment for PPMS so hesitated to label a patient unles...
- Sun Mar 03, 2019 6:37 pm
- Forum: Ocrevus (Ocrelizumab)
- Topic: Seeking feedback on Ocrevus for PPMS, esp. from those 10-30 years POST DIAGNOSIS
- Replies: 7
- Views: 1462
Re: Seeking feedback on Ocrevus for PPMS, esp. from those 10-30 years POST DIAGNOSIS
Hello I was diagnosed in 2005 PPMS Started Ocrevus June 2018 I’m two full doses in. No more fatigue than before. Chronic migraines have all but disappeared. Can stand for longer and easier. The jury is still out on my balance. Still bladder urgency. Overall I feel better. Am 59 years old. Had a bad ...