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About two days after my last infusion I kinda crashed and burned for about a week or so. Seem to be back where I use to be now. Last one was five full doses. I feel some what stable on it with maybe some very minor improvements which is better than the slow steady progression I was in before it

Ment to say “not” quality sleep

Yes I am fatigued all day and seem to get a second wind at bedtime. If it were not for starting work early in the morning I would switch my schedule. I have been taking a prescription sleeping pill every night for four or five years now. I don’t think sleeping under the influence of a drug is qualit...

Hopefully they are on to something that actually repairs our disease damage

I think that chart reflects a 25% reduction in progression compared to no treatment. It’s not much but I guess 25% is better than nothing. I might be wrong

Yes it’s unfair to anyone reading , for me to jump to too many collusion’s here but I’m happy I was at long last prescribed a DMT and now have more feeling better days than feeling worse ones. It’s been a slow steady decline over a lot of years to get here. And suspect a claw back would be over arou...

My initial PPMS diagnosis was just exactly that. Slow steady decline with no remittances. I think different immune systems just fight MS differently but the disease is all the same one. Compassionate Drs knew that there was no medically proven treatment for PPMS so hesitated to label a patient unles...

Hello I was diagnosed in 2005 PPMS Started Ocrevus June 2018 I’m two full doses in. No more fatigue than before. Chronic migraines have all but disappeared. Can stand for longer and easier. The jury is still out on my balance. Still bladder urgency. Overall I feel better. Am 59 years old. Had a bad ...