Search found 316 matches

by Quest56
Mon Jun 11, 2018 10:14 am
Forum: Drug Pipeline
Topic: Has anyone here had BOTOX injections in the bladder ?
Replies: 27
Views: 17103

Re: Has anyone here had BOTOX injections in the bladder ?

With time, I seem to be getting less of a benefit with botox injections for neurogenic bladder. When I first started 5 years ago, the benefit I experienced would last about 7 months before I needed another injection. Now, 5 years later, the benefit seems to last about 4-5 months, and I'm no longer a...
by Quest56
Mon Jun 11, 2018 8:42 am
Forum: Natural Approach
Topic: Peony Immune
Replies: 3
Views: 2449

Re: Peony Immune

I am passing 6 months now at 3 capsules per day of Peony Immune and plan to continue indefinitely. I am MS secondary progressive with psoriatic arthritis. Peony Immune helps significantly to reduce pain in my fingers from psoriatic arthritis. I also inject about 10mg per week of methotrexate to furt...
by Quest56
Tue Feb 13, 2018 7:11 pm
Forum: Natural Approach
Topic: Peony Immune
Replies: 3
Views: 2449

Peony Immune - Pain and Swelling of Psoriatic Arthritis

I have been taking 3 capsules of Peony Immune daily now for about a month. I take one capsule every 8 hours and it has helped significantly to reduce the pain and swelling in my fingers due to psoriatic arthritis. I still have some pain and swelling, but I think I can live with it. The standard medi...
by Quest56
Wed Jan 17, 2018 1:29 pm
Forum: Biotin (Qizenday, Cerenday, MD1003)
Topic: No more positive effect from biotin after a long period
Replies: 7
Views: 2113

Re: No more positive effect from biotin after a long period

I have no idea what your out-of-pocket cost is for Qizenday, but there are several high-dose biotin supplements available. You might save some money by switching to one of these.
by Quest56
Sun May 14, 2017 7:55 am
Forum: General Discussion
Topic: Simvastatin trial starting
Replies: 3
Views: 640

Re: FDA Warnings About Simvastatin Use

FDA warnings about high-dose simvastatin use (80mg) from 2011:

https://www.fda.gov/Drugs/DrugSafety/ucm256581.htm
by Quest56
Wed Feb 08, 2017 8:13 am
Forum: General Discussion
Topic: Fatigue
Replies: 14
Views: 973

Re: Fatigue

I take 500mg acetyl l-carnitine 3-4 times daily on an empty stomach to help reduce physical fatigue.
by Quest56
Sun Jan 22, 2017 8:44 am
Forum: General Discussion
Topic: workout question
Replies: 2
Views: 576

Re: workout question

When this becomes a problem for me, I add calf-liver to my diet for a week or two. I tend to be border-line anemic, eating liver and onion for a period helps to clear this up. I also take b-vitamins daily, to help with this. I work out every other day and have for about 30 years. I am in my early 60...
by Quest56
Sat Dec 03, 2016 11:48 am
Forum: Medical Marijuana
Topic: MS Hug and Indicas
Replies: 3
Views: 2278

MS Hug and Indicas

MS Hug related symptoms are the most unpleasant and truly frightening of any of the MS symptoms I have dealt with in my 30+ years of dealing with MS. Has anyone found indica cannabas (medical marijuana) to be of help in relieving this symptom? I have just filled a prescription for liboderm lidocaine...
by Quest56
Wed Nov 30, 2016 9:26 am
Forum: General Discussion
Topic: Success for MS Hug pain
Replies: 5
Views: 1546

Re: Success for MS Hug pain

HappyPoet, Thank you for posting this. I've asked my doctor to submit a prescription so I can have these on hand in case of another attack. Truly frightening. My pharmacy is awaiting approval from my medical insurance co. before they will fill it. I'm considering paying out-of-pocket if the delay co...
by Quest56
Sun Aug 21, 2016 8:39 am
Forum: General Discussion
Topic: Time for a wheelchair. Any suggestions?
Replies: 8
Views: 1097

Re: Time for a wheelchair. Any suggestions?

The Segway products also look very interesting. I am considering getting one of these to use to walk my dog. They also make versions that are suitable for off-road/trail use. They make a number of different models. I think I'd prefer model 12 SE with handles. http://www.segway.com/products/consumer-...
by Quest56
Sat Jul 02, 2016 8:02 am
Forum: General Discussion
Topic: Time for a wheelchair. Any suggestions?
Replies: 8
Views: 1097

Re: Time for a wheelchair. Any suggestions?

TiLite Manual wheelchairs, very light weight:

TiLite WheelChair Overview

This is the chair I plan to invest in when the time comes. Light enough to easily pop in and out of the the trunk of your car as needed. I've had two friends who were very happy owners.
by Quest56
Sun Jun 26, 2016 7:55 am
Forum: General Discussion
Topic: Melatonin Acts as Antioxidant and Improves Sleep
Replies: 4
Views: 1495

Re: Melatonin Acts as Antioxidant and Improves Sleep

Some more information about relationship between melatonin and inflammatory disease:

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3709754/
by Quest56
Wed Jun 01, 2016 5:35 pm
Forum: General Discussion
Topic: Diet that mimics fasting may reduce MS symptoms
Replies: 16
Views: 2683

Diet Derived from Longo Research at USC

Here's a diet plan that is said to be similar to the FMD diet used in the USC study.

The URL is shortened using tinyUrl.com to make it useable for posting here:

http://tinyurl.com/zcfbw65
by Quest56
Sat May 28, 2016 11:45 am
Forum: General Discussion
Topic: Diet that mimics fasting may reduce MS symptoms
Replies: 16
Views: 2683

Full Text and Summary of USC Study

Read the full text and summary here:

http://tinyurl.com/zbuqsku

This info dovetails nicely with ideas from the Wahls/ketogenic diet.
by Quest56
Sat May 07, 2016 8:49 am
Forum: Introductions
Topic: methotrexate
Replies: 2
Views: 1523

Re: methotrexate

ken11, I saw your post from 1-1/2 years ago while looking for information about methotrexate and MS. I was amazed to see that you had used it for almost 30 years. Why did your doctor recommend that you switch to tecfidera? What dose of methotrexate were you using? Did you stop completely? How is you...