Search found 27 matches

by ActiveMSers
Mon Aug 19, 2013 9:32 am
Forum: General Discussion
Topic: Don't underestimate how loud we MSers can get. Little help?
Replies: 11
Views: 2874

Re: Don't underestimate how loud we MSers can get. Little he

But I have promises to keep, And miles to go before I sleep... —Robert Frost

We did this and I humbly thank all of you. Now it's my turn. Stay tuned.

-Dave
by ActiveMSers
Sun Aug 18, 2013 7:29 am
Forum: General Discussion
Topic: Don't underestimate how loud we MSers can get. Little help?
Replies: 11
Views: 2874

Re: Don't underestimate how loud we MSers can get. Little he

The difference between try and triumph is a little umph. Today is the final day to vote. Let's win this thing.

http://nmtruestories.com/entry/2584614?view=full

-Dave
by ActiveMSers
Thu Aug 15, 2013 8:02 am
Forum: General Discussion
Topic: Don't underestimate how loud we MSers can get. Little help?
Replies: 11
Views: 2874

Re: Don't underestimate how loud we MSers can get. Little he

Thanks so much, HappyPoet! Only four more days of voting to go. I'll be glad when it is over. I think we have a decent shot.

-Dave
by ActiveMSers
Tue Aug 13, 2013 6:29 am
Forum: General Discussion
Topic: Don't underestimate how loud we MSers can get. Little help?
Replies: 11
Views: 2874

Re: Don't underestimate how loud we MSers can get. Little he

NHE, did my instructions work? And just a reminder: if folks prefer any of the other stories over mine, I encourage you to vote for them. It won't hurt my feelings (although I might question your judgment, ha).

-Dave
by ActiveMSers
Mon Aug 12, 2013 6:23 am
Forum: General Discussion
Topic: Don't underestimate how loud we MSers can get. Little help?
Replies: 11
Views: 2874

Re: Don't underestimate how loud we MSers can get. Little he

Thanks for the vote, Eric! And you are totally right, it is pretty HS. The "popularity" thing is silly. To get into the finals, judges selected 10 of their favorite entries (mine was one) and the other 10 were the top vote getters in the preliminaries. I didn't ask anyone to vote in that f...
by ActiveMSers
Sat Aug 10, 2013 4:23 pm
Forum: General Discussion
Topic: Don't underestimate how loud we MSers can get. Little help?
Replies: 11
Views: 2874

Re: Don't underestimate how loud we MSers can get. Little he

NHE, avoiding FB is easy. When you click vote, you just need to "register a contest account" (it'll ask for your name, e-mail, and to create a password). Totally private and separate from Facebook. I also have assurances from the contest organizers (I checked) that that information in no w...
by ActiveMSers
Sat Aug 10, 2013 6:10 am
Forum: General Discussion
Topic: Don't underestimate how loud we MSers can get. Little help?
Replies: 11
Views: 2874

Don't underestimate how loud we MSers can get. Little help?

As an MSer with a new lease on life, I entered a travel writing/photography contest with the state of New Mexico, and judges recently selected my entry as a finalist. The competition is now a popularity contest, with votes being counted until August 18 at midnight. If I win, I’ll become the “poster ...
by ActiveMSers
Thu Jan 03, 2013 2:00 pm
Forum: General Discussion
Topic: Exercise and MS
Replies: 14
Views: 2954

Re: Exercise and MS

BBPants, if you are looking for exercise advice, you may want to swing over to www.ActiveMSers.org. I designed ActiveMSers to help, motivate, and inspire those with multiple sclerosis to stay as active as possible—physically, intellectually, and socially—regardless of physical limitations. Your wife...
by ActiveMSers
Tue Apr 17, 2012 7:44 am
Forum: Daily Life
Topic: Cooling Vest
Replies: 7
Views: 5258

Re: Cooling Vest

There are lots of unbiased tests and reviews of cooling vests for people with multiple sclerosis at ActiveMSers. We also have coupon codes for many manufacturers. Testing: http://www.activemsers.org/gear/testcoolingvests.html Choosing: http://www.activemsers.org/tipstricks/choosingacoolingvest.html ...
by ActiveMSers
Sun Apr 15, 2012 1:46 pm
Forum: Stem Cells
Topic: Article responses on hsct?
Replies: 26
Views: 6533

Re: Article responses on hsct?

This early Greek HSCT study used a protocol that is no longer used for treatment of MS. Mainly that they incorporated Total Body Irradiation (TBI) as part of the treatment protocol. George, I believe you are mistaken. Total Body Irradiation was not part of this study's protocol. In fact, two thirds...
by ActiveMSers
Wed Apr 04, 2012 2:14 pm
Forum: Stem Cells
Topic: Article responses on hsct?
Replies: 26
Views: 6533

Re: Article responses on hsct?

I don't usually post here, but I figured I ought to chime in before lots of misinformation is bandied about. I received an HSCT in the spring of 2010 and I purchased this study when it was released over a year ago and posted my thoughts on the ActiveMSers forum. The abstract does not tell the comple...
by ActiveMSers
Thu Jul 21, 2011 1:53 pm
Forum: General Discussion
Topic: Long-term international travel with MS
Replies: 8
Views: 2642

Surfbird, you may find the travel tips I've posted on ActiveMSers helpful. I've been to dozens of countries and you'll find particular advice about CRABs and insurance (along with a bunch of other tricks). Have an incredible time! Holler if you need any specific destination advice. http://www.active...
by ActiveMSers
Wed Jul 20, 2011 6:17 am
Forum: Medical Devices
Topic: Cooling vest shootout complete
Replies: 1
Views: 3126

Just an FYI that three of the four manufacturers who donated vest for the shootout have provided ActiveMSers coupon codes ranging form 10-20 percent off. (Note that I receive no compensation or commission from any vest company). Details on how to get the discounts (basically just become a member by ...
by ActiveMSers
Fri Jul 15, 2011 12:13 pm
Forum: Medical Devices
Topic: Cooling vest shootout complete
Replies: 1
Views: 3126

Cooling vest shootout complete

I just completed an exhaustive, unbiased series of tests of different types of cooling vests that folks at TIMS may find helpful. The results were pretty surprising. Hope everyone stays cool this summer.

www.activemsers.org/gear/testcoolingvests.html

Dave Bexfield, ActiveMSers
by ActiveMSers
Thu Apr 14, 2011 7:29 am
Forum: General Discussion
Topic: Little help? MS Video of Hope in film festival needs votes
Replies: 4
Views: 1938

I wanted to thank everyone for their votes. Hope and a Clinical Trial to Halt MS won the fan favorite award as the top vote getter with over 33,000 votes! (Um, there may have been some Chicago-style irregularities to get THAT many votes.) It's great that this message has received so much attention. ...

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