This Is MS Multiple Sclerosis Knowledge & Support Community

Thank you all for your messages. I was pleased to be involved in the trial and had first class care throughout. I would do the same again. My view is that funding for trials is scarce and therefore there must be some scientific basis for conducting it. Nothing ventured, nothing gained and all that. ...

Hi Guys, yes, i have been quiet for a while but all has been well. In the same week that I received a blue badge (hurrah!) I also received a letter from the Consultant that was overseeing the Lamotrigine trial that I was on for 2 years and that finshed last Autumn. It turns out that I was in the 50%...

Reading this made me just want to mention the trial that i have been on for the last 2 years which is just coming to a close for me. The trial involves the testing of the drug Lamotrigine in people with SPMS to assess whether it can work as a neuro protector. Results should be out early next year. T...

Its also really important to maintain a decent fluid intake to help with constipation. I know from personal experience the delicate balancing act between enough water and too much for my system and constant dashes to the loo - the MS affects my bladder function enough as it is. Having said that i ha...

Someone else mentioned the TENS machine and i second that but it is crucial to find someone to explain how it works and exactly what to do. My oesteopath also administers TENS and whilst he's never had to use that on me i have acupuncture and general bone crunching every couple of months. I used to ...

I don't have the same problem but my father who was wheelchair bound for many years developed some strategies to deal with the problem. One was the use of additional pillows eg the Dunlopillo variety on seating and his wheelchair. He also used additional pillows between his knees when resting and sl...

Hi there yes, i,m a Londoner and in the nhs system. I've had ON a few times over the last 20 years and received treatment neither time. Each time it subsided over a few weeks. Fortunately, no pain on any occasion and eyesight not adversely affected once the initial symptoms of ON subsided. If you wa...

I only have one thing to add about the issue of mortgage protection insurance and that is that your dx of ms may prevent you obtaining insurance if you stop work because of the ms. You may have to disclose many things about your general health and a subsequent claim may be denied if you fail to do s...

Like Dom, I heard several alarm bells ringing all through your post. Ultimately it boils down to whether you love and have trust and confidence in this person. Only you can answer that. And quite frankly by the tone and content of your post i think you already have. MS is often difficult to diagnose...

I'm interested to hear about this extension as i am on this trial which is being headed up by Raj Kapoor. Am due to have a follow up visit on 7th March so will ask about this and post any findings. From a personal view I have always suspected that i have been taking the placebo. In the 18months i ha...

I was just thinking that the pain especially as it seems to be affecting specific areas on one side may be sciatica or similar when i came to Marcias post. My "good leg" had a feeling of being pulled and felt as if it were giving way for a while. I naturally assumed it was ms whereas my oe...

yes, a lovely photo.
muu

Hmm. Let me think....
Rude MS ages
More MS takes
MStakes are high
No PerMSsion

Muu

Hello Simon welcome to the site from another Londoner - north side of the river. Two things struck me about your mail. First that you probably know more than most what it means to live with ms having been surrounded by family with it, and second, your case seems to reinforce the theory of there bein...

Bromley you old run around- and there i was thinking i was special and not just another notch on your This is Ms bed post. To coin the words of Ms Lewinsky "I feel so disposable!"
(You know I'm joking right?)
Lyon, I'll buy you lunch in London town.
muu