Search found 5 matches

by Tim
Mon Nov 06, 2006 10:35 pm
Forum: General Discussion
Topic: when MS is NOT MS
Replies: 18
Views: 5674

Hi again Amelia, I saw on Gayle's site that you did contact the Dr that posted on our Google Group. Thats great and I hope you are able to get into the study. I only wish the testing could be done closer to home. I also wish that Keith had been able to get into the study. Dr. K called me and said sh...
by Tim
Sun Nov 05, 2006 2:50 pm
Forum: General Discussion
Topic: when MS is NOT MS
Replies: 18
Views: 5674

Two years ago it WAS MS, last year it definitely WAS NOT MS, at the Rare Disease Symposium in Baltimore in July it was referred to as a Cousin of MS. I think they have now found that the NMO-IgG is more accurate at ruling out MS than ruling in NMO. Who really knows? I just wish there was more resear...
by Tim
Sat Nov 04, 2006 11:21 am
Forum: General Discussion
Topic: when MS is NOT MS
Replies: 18
Views: 5674

i just heard from the Dr again and did post more information about the study. I was aware of the trips and even if Keith could qualify for the trial we could not make the trip either. But I did want as many people as possible to email Dr. K just so she would have a more complete list of how many pat...
by Tim
Fri Nov 03, 2006 8:31 am
Forum: General Discussion
Topic: when MS is NOT MS
Replies: 18
Views: 5674

Thanks Ian, I was not sure. I did just find out that there are now only around 10 spots left. If the 10 people from my site that signed up are excepted that is. The link to my group is http://groups.google.com/group/Devics-support any information this group can share would be appreciated. I have fou...
by Tim
Fri Nov 03, 2006 7:58 am
Forum: General Discussion
Topic: when MS is NOT MS
Replies: 18
Views: 5674

Hi, I am new to the board and just happened across the post about Rituxan. They are still looking for people to sign up for the trials. I think they have 25 places left. I do believe medicare will pay for the needed tests, at least thats what I heard. I run a Devic's support site and the doctor cont...

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