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Was reading some info regarding twitching and this text below is pretty reassuring that fasculations do NOT mean ALS. I have copied the entire text and pasted here . If its too long then the mods can delete it ! Detail Summary of the Mayo Clinic follow-up study of patients diagnosed with BFS This ar...

That heading definitely got my attention, I thought it was a bit mean at first, but I can totally understand that you are passionate about this treatment. I have question , as I have said previously, the main reason I hang around thisisms is because a close friend of mine has intractatable atypical ...

This is so dissapointing

Just cements the theory that T-Cells are only minimally involved in MS and makes me hope that Campath and Revimunne come to market quickly.

Sandon

I dont honestly know what the fuss is about, Chris is living proof ( plus many others ) that the treatmeant works. I aint no scientist, but if you read the journal articles , there are so many statements like ( I paraphrase below ) "no patient progressed " and "stopped progression&quo...

Chris , you seem to be improving , tell me , does the heat still knock you around ?

Sandon

I'm very happy for you Chris, you are very kind to share your experiences with all of us.

Just wondering how long the phase III will take ? Any ideas ?

Sandon

Hi , just wondering if any pf the patients that have had this treatment AND copaxone relapsed ? This is the data I REALLY want see It's going to be quite interesting to see what happens, because copax was rock solid in preventing an MS "like" disease in mice. Intersesting times abound Sandon

Dear Seriphina, I can totally understand why you are at withs end with TN, the main reason I "lurk" around thisisms is a very close friend of mine just 33 suffers from TN ( as a result of a lesion in the brainstem ) from MS I can only begin to imagine the pain you are going through, she sa...

What really surprised me about these articles, is that the article stresses that the clinical improvement was stable and immediate post transplant. You would think such a intensive operation would make the condition worse. ...Anyway it is widely understood that the liver is responsible for over 100 ...

I had read about that girl from Australia before and call me a fool, my gut feeling that along these lines ie "immune system transplant" is where there will be massive inroads made into MS treatments.

Peace

Sandon

Yes it is very interesting, I would love to see if there is any data on disease ameriolatrion in PPMS, then that would be very unexpected.

There seems there is only a handful of cases of liver transplant in MS and every case that I have read has had marked improvement ?

Go Figure

Was reading a couple of articles ( see below ) and I just cant get my head around these things Just wondering if anybody else has an opinion on why a liver transplant can result in Huge decrease in EDSS and solid disease stablization ? The articles don't really even speculate why ? see these two art...

Anyone know how much the treatment costs at Chicago for those of us with inadequate insurance ?

I can tell you the treatment is at least $30k at JH with an additional $50k if the treatment goes awry .

Still cheap if it gets some quality of life back !

Peace

Sandon

I wonder how much the treatment costs here and differnces compared to JH ?

My guess is that they would welcome overseas patients, but from reading other peoples posts, you need at least $80,000 US Dollars ( Eighty Thousand ) , just typed it twice so you know ;) $30k plus for your treatment and $50k just in case something goes awry with the chemo and you need intensive care...