Search found 13 matches

by barbbelle
Mon May 25, 2009 4:33 am
Forum: Revimmune (Cyclophosphamide, Cytoxan)
Topic: white count 6600!!
Replies: 5
Views: 4382

Hi Keri! Sounds like things are going as planned!~ Hope you can find something to do today! Put on that mask and go down to the harbor. Sometimes they have live groups singing. Can't remember where now. If not, just go outside and people watch for a while. I'm so excited for you because this time yo...
by barbbelle
Mon May 11, 2009 8:09 am
Forum: Revimmune (Cyclophosphamide, Cytoxan)
Topic: Days 3 & 4 - chemo done!
Replies: 3
Views: 3557

Congrats Keri! I think as long as your counts bottom out, then you are home free! It is really exciting that you get to go back to the apartment tonight! Hang in there, girl and take it easy, ok? Are all of the same nurses there that we had last summer? They are so wonderful there! Take care! Still ...
by barbbelle
Fri May 08, 2009 11:29 am
Forum: Revimmune (Cyclophosphamide, Cytoxan)
Topic: Day 1
Replies: 6
Views: 3691

Keri,
Glad it is started and you are on your way! They really had you moving on Day 1. Just checked in to see how it was going! I got N/V on day 4 too. I have a feeling it is going to get you this time. Glad you took the DVD player!
Thanks for the update!!!
Blessings......barb
by barbbelle
Tue May 05, 2009 7:51 am
Forum: Revimmune (Cyclophosphamide, Cytoxan)
Topic: Baltimore in May?
Replies: 26
Views: 10025

Hey Keri!
Just wanted to let you know that i'm thinking and praying for you girl! I'm so hoping for a great outcome. Know that we are all behind you 100% and anxious to know how you are!
Blessings!
Barb
by barbbelle
Sat Mar 28, 2009 5:45 am
Forum: Revimmune (Cyclophosphamide, Cytoxan)
Topic: My 9 month HiCy follow-up
Replies: 23
Views: 28661

Sandy, I am so sorry that you are having a hard time! My 9 month is in a few weeks and i feel like my spasticity has been worse on some days too. I swim 2-3 days a week and I get so excited about the stuff that I can do in the water, just like Chris. I feel like I am just slower onland than I have b...
by barbbelle
Wed Mar 11, 2009 9:20 am
Forum: Revimmune (Cyclophosphamide, Cytoxan)
Topic: Re-dosing
Replies: 7
Views: 3501

Keri~ Continue to think positively and know that I'm still prayin for you!! I mean it......This time you know what to expect and you will be ready for it. Yes, it may be tougher for you this time around, but you can definitely handle anything that is thrown at you! Can't your friends go this time? I...
by barbbelle
Sun Feb 15, 2009 12:45 pm
Forum: Revimmune (Cyclophosphamide, Cytoxan)
Topic: my follow-up appt...
Replies: 9
Views: 3881

Keri~ HI girl! I cannot believe how tired you must have been going literally across the country and back in less than one day! Like I have said before...you are incredible! I also think that it is so funny that you challenged the JH docs to inject themselves! Of course, they wouldn't do that...but, ...
by barbbelle
Fri Dec 19, 2008 11:11 am
Forum: Revimmune (Cyclophosphamide, Cytoxan)
Topic: Notes from my HiCy experience...
Replies: 11
Views: 5357

Hi Sandy! Thanks a million for the tips! I just started on Valtrex for weird hives that just pop up occasionally. They are itchier than a bug bite and then dry up......go figure. Anyway, thanks for the fatigue ideas. I am going to try your suggestions to see if i can feel even a little better. Is th...
by barbbelle
Fri Dec 19, 2008 5:12 am
Forum: Revimmune (Cyclophosphamide, Cytoxan)
Topic: Notes from my HiCy experience...
Replies: 11
Views: 5357

Sorry to be out of touch for so long...

Hi all! I was one of the july HiCyers and I have been out of touch for a while. My father fell 16 feet out of a tree while hunting (he is 77) and he fractured his back. He is fine, except for pain. He was in and out of 3 different hospitals and 2 different Rehab facilities in a 5 week period and he ...
by barbbelle
Tue Sep 09, 2008 7:15 am
Forum: Revimmune (Cyclophosphamide, Cytoxan)
Topic: Notes from my HiCy experience...
Replies: 11
Views: 5357

Notes from my HiCy experience...

Hi! I'm a newbie and after recently completing the HiCy protocol at JH I wanted to pass along notes that may help any of you that may consider having the procedure. Hospital Must haves: Your own Pillow (JH pillows are like flat rocks)!!!!!!!!! Can get parking passes for $4 a day (outside admissions)...
by barbbelle
Tue Sep 09, 2008 6:59 am
Forum: Revimmune (Cyclophosphamide, Cytoxan)
Topic: Back on track
Replies: 14
Views: 5201

Pros & Cons

I was one of the 'July HiCyers' at JH and as tough as the treatment was, I would definitely do it again. I feel better. I am stronger and after only one month of being home, my therapist says that I'm not better, I'm significantly better in all aspects of testing. That includes walking speed, balanc...
by barbbelle
Fri Jul 11, 2008 12:47 pm
Forum: Revimmune (Cyclophosphamide, Cytoxan)
Topic: Update - Day 4 post-Chemo
Replies: 6
Views: 3545

Hi!
I originally wrote to JH last July, talked to Dr. Hammond in October, saw Dr. Kerr in December, denied by insurance in January, made other arrangements and waited to hear until June 15.....so glad I'm here. Good luck to you all! Carrie and Dr. Hammond are lifelines!
by barbbelle
Fri Jul 11, 2008 5:49 am
Forum: Revimmune (Cyclophosphamide, Cytoxan)
Topic: Update - Day 4 post-Chemo
Replies: 6
Views: 3545

Hi Keri! Thanks for the updates! I'm here at JH now, too and I appreciate hearing from you! I got the Hickman yesterday and couldn't get a bed because there were no openings. SO, just got the call and will go today for my first infusion. I'm sure that I'll have questions for you as I go along. You a...

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