Search found 40 matches

by Waterbear
Mon May 23, 2011 10:47 am
Forum: Campath (Lemtrada, Alemtuzumab)
Topic: Giles Elrington on Campath
Replies: 1
Views: 3194

Giles Elrington on Campath

The presentation on Alemtuzumab starts at 11'10''. The link has been posted elsewhere on the site already and is a very informative speech overall btw.

by Waterbear
Wed May 18, 2011 7:49 am
Forum: Campath (Lemtrada, Alemtuzumab)
Topic: How Involved is Campath Off Label?
Replies: 2
Views: 2605

Most patients in the Phase II and III trials received two rounds of infusions. The first round of infusions lasted 5 days and the second (12 months after the first) lasted 3. I don't know how patients many (If any) were hospitalized in order to receive the treatment, but I think that the majority of...
by Waterbear
Wed Apr 20, 2011 7:52 am
Forum: General Discussion
Topic: Copaxone Users. Need info Asap...Thanks in advance.
Replies: 3
Views: 1847

Yes she is off Copaxone now. She tolerated the drug very well for the entire time she was on it, but dropped it last month to receive the first round of Campath infusions .
by Waterbear
Mon Apr 18, 2011 2:37 pm
Forum: General Discussion
Topic: Copaxone Users. Need info Asap...Thanks in advance.
Replies: 3
Views: 1847

Hi there,

I dont think Copaxone has been reformulated, my girlfriend was on it until 3weeks ago and we would probably have been informed if it was the case.


Yannis
by Waterbear
Fri Apr 15, 2011 12:05 pm
Forum: Introductions
Topic: HELLO, A PATIENT FROM GREECE WHO NEEDS INFORMATIONS...
Replies: 3
Views: 1232

Geia sou Maria,

I have sent you a pm.
by Waterbear
Thu Apr 14, 2011 2:46 pm
Forum: Low Dose Naltrexone
Topic: Exacerbations while on LDN treatment
Replies: 12
Views: 19762

(update on behalf of my partner) I am 27 years old I've been on LDN for 2 years I have RRMS I had 3-4 mild relapses while on LDN which from i recovered fully. I have had no side effects from LDN I take 3 mg per night I get it from SKips I recently stopped taking it, as my MS course was unaffected by...
by Waterbear
Thu Apr 14, 2011 2:17 pm
Forum: General Discussion
Topic: WONDERING HOW BROMLEY IS DOING
Replies: 3
Views: 1319

Thanks for the update Ian, good to hear from you again and even better to hear that overall things have gone so well for you. You may remember i pm'd you a few times about Alemtuzumab when my girlfriend was first diagnosed some 2,5 years ago..Your update actually coincided with her first round of tr...
by Waterbear
Mon Apr 19, 2010 5:31 am
Forum: General Discussion
Topic: Volcano advice please
Replies: 4
Views: 1330

I copy below the latest update we received at work. I doubt the disruptions will last till the 3rd of May though hard to tell at the moment. Please find below an update with regards to European airports closure or planned opening: U.K: The current restrictions across UK controlled airspace will rema...
by Waterbear
Thu Apr 15, 2010 4:15 am
Forum: General Discussion
Topic: clinical trials
Replies: 2
Views: 1753

You can have a look at Dr Ben Goldacre's 'Bad Science' book, it has a very well written chapter on Homeopathy. I copy below an article with similar content from the same author that is available online for free. At the bottom oft he post you can see references to meta-analyses of Homeopathy trials. ...
by Waterbear
Sat Mar 13, 2010 2:21 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Transferring money..
Replies: 14
Views: 2507

Quick update - of the two methods listed above, oanda.com works out a little cheaper (and a lot cheaper than RBS). Oanda had the best currency exchange rate.. To show this with real numbers for anyone interested...If you want to buy EUR 10,000 today, with this morning's rates you will have to spend...
by Waterbear
Wed Mar 10, 2010 1:55 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Transferring money..
Replies: 14
Views: 2507

I use Oanda.com to send money from the UK to my EUR account, they charge a flat fee of $20 for every transfer and they then convert your money with a tiny commision (something like 0.1%). High street banks charge a commission of 2-3% or more with their buy/sell margins, so if you are sending more th...
by Waterbear
Sat Mar 06, 2010 3:21 am
Forum: Campath (Lemtrada, Alemtuzumab)
Topic: Spotlight on Alemtuzumab
Replies: 2
Views: 3140

Spotlight on Alemtuzumab

A good summary of the Campath research to date, that includes statistics for the early trials of the drug between 1991 and 2002 (along with the widely published Phase II trial results). The pdf linked below is much easier to read! Yannis < shortened url > Spotlight on Alemtuzumab Summary Alemtuzumab...
by Waterbear
Wed Mar 03, 2010 4:04 am
Forum: Campath (Lemtrada, Alemtuzumab)
Topic: Licence for Campath?
Replies: 10
Views: 3238

Hi Camilla,

Please check your PMs, i have sent you a message!
by Waterbear
Tue Feb 09, 2010 6:23 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Hamilton Conference Feb 7 .......Updated (Feb 22)
Replies: 124
Views: 25597

UK MS Trust comment about the Hamilton meeting MS Trust welcomes further research into CCSVI 09 February 2010 A number of trials are planned looking at the theory that blocked veins may be a contributory factor in multiple sclerosis. The theory is that blockages to blood vessels affect blood drainin...
by Waterbear
Sat Jan 30, 2010 5:38 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Charité Berlin trial preliminary results?
Replies: 35
Views: 8711

Yannis- this isn't possible. Charite was just putting together the study as of LAST WEEK, they were recruiting patients and controls, according to a patient website linked below. I do not see how they can have results yet. Jacobs is doing a 1600 person study for over six months now, and the prelimi...