This Is MS Multiple Sclerosis Knowledge & Support Community

Hi, Atrophy is a big problem and I'm sorry to hear about this. It can be caused by many things, not necessarily MS related. Do you have other issues, such diabetes or general health issues as well? B12 deficiency is another contributing factor as is vascular health (ie. blood pressure issues) Even i...

Hi, No. A.I only speeds up the calculations. You still have to test on animals, then small groups of people, then large groups of people. Sometimes things work in theory or in a laboratory dish or in a mouse model but don't work in people. Sometimes drugs appear safe but cause serious unexpected pro...

Hi, Any new drug has to go through several hurdles. Firstly, an idea has to merit money being advanced to conduct some research. Any idea has to compete with other new concepts. It has to be plausible, backed by some reasonable basis and seem to be a better use of limited research dollars compared t...

Thank you for your comment.

Did you contact beyond Blue to see if there is someone you can speak to?

Regards,

In Australia, I'd call Beyond Blue. Ask if they have someone who speaks your native language and see what happens.

Their free call number is 1300 22 4636

Regards,

Hi,
The previous post was 10 years ago. The poster may not be active.

Regards,

Hi Glenn, I've been diagnosed now for 26 years. For the first 2 years, I took nothing as it was pre interferon days. For 10 years I took Avonex and hated it (but still took it).Until 2014 I was fine except for symptoms like some fatigue. If I had a stem cell treatment any time in that period I could...

Hi, For people overseas, The NDIS means the National Disability Insurance Scheme. It's an Australian scheme. If you wish to access a service provider under the NDIS, I suggest you ask your local doctor for an introduction to providers who work under the scheme. They can then explain what they can of...

Hi, HSCT sounds like the perfect, let's say logical, answer for many diseases. In essence, carpet bomb the immune system and start again. The problem, whether it's MS or something else, is efficacy. The biggest stem cell company is Mesoblast. https://www.mesoblast.com/ They do trials not offer 'cure...

Hi, NAC, from my own experience, is one of the "be careful what you wish for " supplements. In early 2014, I started taking it because I was lured into thinking it was a good idea. By September that year I was in hospital for three weeks with a two year program as an outpatient in front of me. Surro...

Hi, If you are still moving ok, I suggest you take up an exercise that helps with stretching and strengthening, such as pilates. Some people do find that a diagnosis really shocks them. Keep trying to do the things you usually do and see what happens. There are good non-drug books like "The Wahls pr...

Hi,
I thought you meant Australia but I wasn't sure. So am I.
When you say rock, I guess you mean you are stiff. Is that right? Can you walk? Do you bend forward when you go upstairs?
Are you fatigued?
Regards,

Thank you for the update.

I'm not sure what you mean by aus.
Apart from the Tysabri, does your doctor prescribe anything else?
Regards,

Hi,
If you have had undiagnosed MS for over 25 years and now you are 44, then you haven't changed as much as your diagnosis has. Drugs are only one way to deal with MS.
What symptoms do you have now?
What country are in? How were you diagnosed?
Regards,

Hi, Can we wind this conversation back in time? You're very certain that you need drugs and you're very certain that without them you can't have kids. Neither of those things are absolutely true. It depends on a lot of different factors. Can you tell us a little bit about yourself? There will be peo...