This Is MS Multiple Sclerosis Knowledge & Support Community

Hi, I'm 62 so I am outside the group you have specifically asked. How you described the frequency and nature of your interactions with doctors did disturb me. The impression I have is you have been given a superficial level of treatment and then been thrown in the "too hard" basket. Whilst many of u...

I used to get massive leg cramps below the knee for a long time. Then I stumbled on something called Periformis syndrome. Essentially, the periformis muscle squeezes the sciatic nerve and the spasm rips down the leg. Lying on your hip or buttock whilst sleeping will trigger it. It took a couple of g...

Hi, I read your general reply and can see it must be very difficult for you. To be treated the way you have described by the people you are relying on is,simply, not fair. You need. at least, an MRI of the spine and another of the brain with contrast. If it is at all possible, I think you should cha...

Hi, I'm a bit late joining this conversation. Do you know what sort of MRI you had? Was it just the brain or was it the spine as well? Did they inject you with a contrast when they they did the MRI? It does sound like you need to consult a completely unrelated neurologist to the one you are relying ...

Hi,

There are two types. One relates to the kidney and the other the hypothalamus. It sounds like you've got nothing to loose by testing for both.https://www.nhs.uk/conditions/diabetes- ... diagnosis/

Regards,

Hi,

Did you check out diabetes insipidous? Its completely different from the normal type we think of.
https://www.nhs.uk/conditions/diabetes-insipidus/

Regards,

Hi, As you haven't been diagnosed yet, we are really jumping the gun. Nonetheless, if you have have tightness in the arm muscles and we assume a diagnosis is confirmed, the simplest way to look at why you've tightened is to imagine you have only two motor neurons. The first one runs from way up in y...

Hi, I'm not sure why you have that diagnosis but a couple of questions immediately came to mind. Is your gait altered (e.g can you walk normally or climb a set of stairs)? How far can you walk? Does one foot drag? Do you think one side of your pelvis is higher than the other? Are you slightly stoope...

Hi, The EMA (European equivalent of the FDA) has just recommended that Gilenya elevates the risk of congenital deformities to the heart, kidney, bone and muscles in utero. It recommends it is not suitable for pregnant women or women not using birth control . Their view is it doubles the risk compare...

Hi,

Have you gone to a doctor yet and told him what you have told us? I really urge you to do this.

Regards,

Hi, I think you should go to a doctor and describe exactly what you have written. If other people smell you then a doctor should notice it. If only you smell it then perhaps you have an infection in a nasal cavity or sinus. The slurring is something you should definitely raise and the sooner the bet...

Hi, I think the odds are low based on what you've described. It actually doesn't sound like you've got the right symptom at all. It sounds more like a mild impingement. See what happens if a good osteo or physio does some manipulation. I don't think you should be as concerned as you are. Best of luc...

Hi Jessica, No one on this site is going to take of the risk of guiding you to a wrong conclusion. Even a neurologist needs skill to make the right call. Nevertheless, lesions mean a type of scarring but that could be due to many things. "Dawsons fingers" is a pattern of scarring but it is not a def...

Hi, That's an excellent summary. I am a great believer in the cool drink idea. If you take some watermelon, ice and a little water and wizz it up in one of those drink makers you will get an excellent cold drink. As you're effectively pouring ice down your throat it really counteracts the effects of...

Hi, In terms of the ones normally thought of, I don't either. I do take Dantrium for spasticity but I didn't need anything like that from 1994-2015. From 1996 till about 2012 I did take Avonex and hated every dose. I have been taking an antiviral (valacyclovir) for 20 years but it isn't regarded as ...