Search found 1474 matches

by Scott1
Wed Jul 31, 2019 2:17 pm
Forum: General Discussion
Topic: meralgia paresthetica (MP) in MS
Replies: 2
Views: 120

Re: meralgia paresthetica (MP) in MS

Hi, I'm not sure why you have that diagnosis but a couple of questions immediately came to mind. Is your gait altered (e.g can you walk normally or climb a set of stairs)? How far can you walk? Does one foot drag? Do you think one side of your pelvis is higher than the other? Are you slightly stoope...
by Scott1
Mon Jul 29, 2019 11:47 pm
Forum: General Discussion
Topic: Gilenya in pregnancy
Replies: 0
Views: 51

Gilenya in pregnancy

Hi, The EMA (European equivalent of the FDA) has just recommended that Gilenya elevates the risk of congenital deformities to the heart, kidney, bone and muscles in utero. It recommends it is not suitable for pregnant women or women not using birth control . Their view is it doubles the risk compare...
by Scott1
Thu Jul 25, 2019 11:44 pm
Forum: Undiagnosed
Topic: Hi I’m new. Looking for some help
Replies: 6
Views: 241

Re: Hi I’m new. Looking for some help

Hi,

Have you gone to a doctor yet and told him what you have told us? I really urge you to do this.

Regards,
by Scott1
Tue Jul 23, 2019 12:56 am
Forum: Undiagnosed
Topic: Hi I’m new. Looking for some help
Replies: 6
Views: 241

Re: Hi I’m new. Looking for some help

Hi, I think you should go to a doctor and describe exactly what you have written. If other people smell you then a doctor should notice it. If only you smell it then perhaps you have an infection in a nasal cavity or sinus. The slurring is something you should definitely raise and the sooner the bet...
by Scott1
Tue Jul 23, 2019 12:47 am
Forum: General Discussion
Topic: Please Help - Undiagnosed with L’hermitte’s Sign and Worried
Replies: 4
Views: 122

Re: Please Help - Undiagnosed with L’hermitte’s Sign and Worried

Hi, I think the odds are low based on what you've described. It actually doesn't sound like you've got the right symptom at all. It sounds more like a mild impingement. See what happens if a good osteo or physio does some manipulation. I don't think you should be as concerned as you are. Best of luc...
by Scott1
Wed Jul 17, 2019 12:28 am
Forum: Undiagnosed
Topic: Lp results / mri results
Replies: 2
Views: 100

Re: Lp results / mri results

Hi Jessica, No one on this site is going to take of the risk of guiding you to a wrong conclusion. Even a neurologist needs skill to make the right call. Nevertheless, lesions mean a type of scarring but that could be due to many things. "Dawsons fingers" is a pattern of scarring but it is not a def...
by Scott1
Fri Jul 12, 2019 8:05 pm
Forum: General Discussion
Topic: Cooling vest
Replies: 2
Views: 94

Re: Cooling vest

Hi, That's an excellent summary. I am a great believer in the cool drink idea. If you take some watermelon, ice and a little water and wizz it up in one of those drink makers you will get an excellent cold drink. As you're effectively pouring ice down your throat it really counteracts the effects of...
by Scott1
Tue Jun 11, 2019 4:49 am
Forum: Introductions
Topic: Medication
Replies: 8
Views: 337

Re: Medication

Hi, In terms of the ones normally thought of, I don't either. I do take Dantrium for spasticity but I didn't need anything like that from 1994-2015. From 1996 till about 2012 I did take Avonex and hated every dose. I have been taking an antiviral (valacyclovir) for 20 years but it isn't regarded as ...
by Scott1
Tue Jun 11, 2019 1:26 am
Forum: General Discussion
Topic: Hives?
Replies: 2
Views: 149

Re: Hives?

Hi,

I've never had that problem but I did google cephalxin and hives and it can happen by the look of it.

I looked at fermented food and hives and this blog says it can happen. https://blog.bulletproof.com/best-fermented-food-gut/ .

Maybe you just pushed your limits by combining things??

Regards,
by Scott1
Thu May 16, 2019 3:28 pm
Forum: General Discussion
Topic: Re: Change from Gilenya to Ocrevus
Replies: 3
Views: 1493

Re: Re: Change from Gilenya to Ocrevus

Hi, It isn't easy is it? Neurologists have been offering patients this choice since I was diagnosed in the early 1990s. Through that time, whatever medication is the new kid on the block becomes the best thing ever and the old champion retreats. Gilenya is described as a receptor modulator for remit...
by Scott1
Tue May 14, 2019 4:11 pm
Forum: Undiagnosed
Topic: Diagnosed with CIS today, more tests to come - things to know/ask?
Replies: 48
Views: 1903

Re: Diagnosed with CIS today, more tests to come - things to know/ask?

Hi, I'm certainly not against bike riding but the posture of the body is curled over the bike which shortens the psoas. The chain of muscles I think you are describing are called iliopsoas. This video shows the ones I mean but there's no sound. https://www.youtube.com/watch?v=VcrzfTSCZEs . I underst...
by Scott1
Sun May 12, 2019 2:55 pm
Forum: Undiagnosed
Topic: Diagnosed with CIS today, more tests to come - things to know/ask?
Replies: 48
Views: 1903

Re: Diagnosed with CIS today, more tests to come - things to know/ask?

Hi, Don't forget to try some massage. If you have some muscles that are tight they pull your posture out of whack. To compensate you start to move in unusual ways (e.g hanging on to things). A masseur will be able to release the muscles on either side of the spine called the erector spinae. If you a...
by Scott1
Sat May 11, 2019 5:26 pm
Forum: Undiagnosed
Topic: Diagnosed with CIS today, more tests to come - things to know/ask?
Replies: 48
Views: 1903

Re: Diagnosed with CIS today, more tests to come - things to know/ask?

Hi, The copoxone (also known as Glatiramer acetate,Copolymer 1 or Cop-1) is a therapy for remitting relapsing MS. It was originally designed as a sequence of the amino acids; glutamic acid, lysine, alanine and tyrosine to crudely resemble myelin basic protein. In an animal model (EAE), T cells that ...
by Scott1
Thu May 09, 2019 1:44 am
Forum: Undiagnosed
Topic: Diagnosed with CIS today, more tests to come - things to know/ask?
Replies: 48
Views: 1903

Re: Diagnosed with CIS today, more tests to come - things to know/ask?

Hi, Sorry to hear this. There will be a series of steps that your neurologist will guide you through. You might find yourself asking "is that it?" As you get a handle on where you are, feel free to ask questions or seek second opinions. I've been diagnosed since 1994 and many others here have long e...
by Scott1
Tue May 07, 2019 11:01 pm
Forum: Undiagnosed
Topic: Optic neuritis
Replies: 15
Views: 425

Re: Optic neuritis

Hi, As your question is why would you be sent to a neurologist after an MRI (ordered by your GP) then the easiest answer is the GP doesn't feel he is the right person to interpret the result. An MRI is just a picture. If you saw what the technician wrote on the accompanying report, it would sound li...