Search found 1520 matches

by Scott1
Sun Sep 27, 2020 7:37 pm
Forum: General Discussion
Topic: No one knows what's wrong with me.
Replies: 61
Views: 1500

Re: No one knows what's wrong with me.

Hi, Your underlying issue doesn't have to be MS. A blood test for MS just does not exist. Only a neurologist can make an MS diagnosis based on a range of observations, a GP does not have the skills and shouldn't even try to. What is factual is you started to feel fatigued, you have problems with hea...
by Scott1
Sun Sep 27, 2020 5:02 pm
Forum: General Discussion
Topic: No one knows what's wrong with me.
Replies: 61
Views: 1500

Re: No one knows what's wrong with me.

Hi, Whether or not MS is involved, the question you need to ask is "is this person helping me?" If the answer is no, then look elsewhere. Blood tests don't mean much if they ask the wrong question. Neither do MRI's if they are not done properly. Testing your cholesterol levels for hearing loss doesn...
by Scott1
Sun Sep 27, 2020 4:11 pm
Forum: General Discussion
Topic: No one knows what's wrong with me.
Replies: 61
Views: 1500

Re: No one knows what's wrong with me.

Hi, If you ran a fever, but it wasn't Covid, then isn't it right to ask what caused the fever? Did your doctor run any test for anything else? What you have written so far gives me the overwhelming impression that your doctor is well off the pace. It's either that or you aren't telling your doctor e...
by Scott1
Mon Sep 21, 2020 4:11 am
Forum: Undiagnosed
Topic: Awaiting Neurology Referral Please Help
Replies: 5
Views: 119

Re: Awaiting Neurology Referral Please Help

Hi, A five year wait sounds appalling. If your doctor suspects a neurological issue then do what you can to jump the queue. I had sleep apena many years ago. It was due a deviated septum (the inside of my nose was bent). When I woke up I often thought I couldn't swallow my own spit and it took some ...
by Scott1
Mon Sep 21, 2020 1:20 am
Forum: Undiagnosed
Topic: Awaiting Neurology Referral Please Help
Replies: 5
Views: 119

Re: Awaiting Neurology Referral Please Help

Hi, I'm glad you have found a GP you like. You have had a really difficult history. It's impossible for anyone here to diagnose but we can make some suggestions. Firstly, did your burns resolve themselves or leave some damage? You mentioned that at one point your ankles were blue. Is that still the ...
by Scott1
Thu Sep 17, 2020 6:13 pm
Forum: General Discussion
Topic: Looking for advice on family issues
Replies: 2
Views: 154

Re: Looking for advice on family issues

Hi, You have one of the more troublesome features of MS. It's not just how it affects you but it is confronting for others. The primary speech disorder in MS is called Dysarthria. It’s a very broad term for neurologic movement disorders related to speech. Sometimes it is described as paroxysmal atax...
by Scott1
Sat Sep 12, 2020 8:38 pm
Forum: General Discussion
Topic: No one knows what's wrong with me.
Replies: 61
Views: 1500

Re: No one knows what's wrong with me.

Please go to a neurologist. Tell that specialist all the symptoms without trying to interpret them. You should have only one question- "If it is not MS, what is it?" A good neurologist will have a battery of other ideas. A GP just doesn't have the skills. I don't think you should say that you'll jus...
by Scott1
Fri Sep 11, 2020 4:19 pm
Forum: General Discussion
Topic: No one knows what's wrong with me.
Replies: 61
Views: 1500

Re: No one knows what's wrong with me.

Hi, I cannot stress enough that a GP has very limited skills. They only have a superficial knowledge of neurology. To even think that you are imagining your symptoms is, unfortunately, all too common. It is also an outdated view. The World Health Organisation said as much in their 2016 standard for ...
by Scott1
Mon Sep 07, 2020 6:42 pm
Forum: General Discussion
Topic: No one knows what's wrong with me.
Replies: 61
Views: 1500

Re: No one knows what's wrong with me.

Hi,

A key part of a neurologists role is to determine if your symptoms indicate MS or something else. A GP is just floundering around looking for an idea.
The intention tremor you described some time ago is something a neurologist would look at. A GP wouldn't have a clue.

Regards,
by Scott1
Mon Sep 07, 2020 3:59 pm
Forum: General Discussion
Topic: No one knows what's wrong with me.
Replies: 61
Views: 1500

Re: No one knows what's wrong with me.

Hi,
Right now, your MRI is probably your best guide. I am slightly confused though, hasn't a neurologist ordered the test?
You need to see a neurologist. A GP doesn't have the skill set.
There is definitely something going on but you need specialists.
Regards,
by Scott1
Tue Sep 01, 2020 4:35 pm
Forum: General Discussion
Topic: No one knows what's wrong with me.
Replies: 61
Views: 1500

Re: No one knows what's wrong with me.

Hi, As we have drifted into general health and sleep issues, I think you may gain some benefit from watching this easy to follow video. At the end it drifts off into a product push but the majority of it is just plain common sense. For your specific issues you do need to see a neurologist, as discus...
by Scott1
Mon Aug 31, 2020 5:22 pm
Forum: General Discussion
Topic: No one knows what's wrong with me.
Replies: 61
Views: 1500

Re: No one knows what's wrong with me.

Hi, Irrespective of what ever is causing your issues, there are some basic things to consider. In your body there is a constant battle between inflammatory and non-inflammatory settings. The messengers that predominate in an inflammatory setting are trying to suppress the non-inflammatory settings (...
by Scott1
Sat Aug 22, 2020 4:04 pm
Forum: General Discussion
Topic: No one knows what's wrong with me.
Replies: 61
Views: 1500

Re: No one knows what's wrong with me.

Hi, There's all sorts of alcoholic people. Some are very high functioning. The thing that would interest me is are the alcoholic drinks mixed with sugary drinks? Addiction to added sugar could be the driver. Say we jumped well ahead of ourselves and a new MRI confirmed that you had MS related lesion...
by Scott1
Fri Aug 21, 2020 4:05 pm
Forum: General Discussion
Topic: No one knows what's wrong with me.
Replies: 61
Views: 1500

Re: No one knows what's wrong with me.

Hi, An eight year old MRI isn't a strong argument to deny an MRI being used now. If a picture was all that was required then any half trained technician could provide a diagnosis. MS is a disease where a trained neurologist uses an MRI to confirm there evidence of demyelination that backs up a diagn...
by Scott1
Thu Aug 20, 2020 7:37 pm
Forum: Undiagnosed
Topic: Plethora of symptoms
Replies: 13
Views: 606

Re: Plethora of symptoms

Hi,

Well, that's frustrating. Are you on any medications for any reason at all?

Regards,

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