This Is MS Multiple Sclerosis Knowledge & Support Community

I fell down two stairs in July, twising my ankly badly. Couldn't walk on it without aids. I manage to walk somewhat now. It is still extremely sore. I just wondered if anyone knows how long this might take. It has been x-rayed - not broken so they say. Is this amount of time normal? Does it take lon...

Annesse, just out of interest, my sister has lupus and I have ppms. I had rheumatics as a child, which was terrible pain, and I use to wake up crying in pain, this continued well into my adulthood and then I developed ms. I had to constantly take pain killers for the pain. Hope this will be of some ...

Thanks for the response. I do not offen eat breakfast so not sure. As for the pm, it occurs before eating - go figure!

Thanks

Jam

I know most people's walking and balance fade with the day if they have used too much energy.

I am best in the morning regardless of how much I do. By lunch time I have great difficulty in walking.

Anyone have ideas please.


Jam

ppmer

Yes to both. I worry about my kids. One has had shingles and chicken pox - very minor case because I have had both my kids vaccinated for cp. Now wonder if they need some sort of booster now 18 and 16. Anyone know? The doctor is not sure.

Thanks for that, I will try to google your suggestion.


Jam

I am finally going back to the dr shortly so will hit him up re the sativex spray. I currently have bruises you wouldn't believe from falling (lack of balance). I am just worried about the sleeping with this, as it is not good now?


Jam

This may be more successful in rrms but it is a problem with ppms if u do not have the balance or energy. I have been to this retreat and did not find it helpful to me nor did the books he wrote. As he has rrms it is more centered around this. However u may be able to slow/halt disease progression i...

Thanks Jimmyl, it may take some time but will try.

Jam

If I am not mistaken, someone on here posted about the cold and MS and how it affects them. I too do not do well in the cold, for that matter nor the extreme heat. The cold makes me stiff and the heat makes me dizzy. So a no win situation really! I currently have a bruise about 5 inches long and wid...

Jimmylegs

I am quake city, Chch NZ, so it might be best if I get my husband to source it. If you have ideas about brands I could see what it avail.

Thanks for your kind offer.


Jam

Good luck with getting anywhere. It is supposedly legal in NZ. However I keep getting brushed off from the Neuro (who by the way over here in little Chch all appear useless and the doctor says to ask the Neuro so I have given up and whilst the pain is unbearable I keep on putting all those pain kill...

Thanks again for the responses. I have tried the tried the tart cherry.

Jimmy in response to you, I am taking go magnesium 800 for nerve support. May be I should take more of it?


Jam

Thanks for your response. I have had the hug so no what that feels like. I started the pred. and feeling somewhat better as small as it may be.
My walking is slightly better as is the balance.
The sleeping is the biggest issue now!

Jam

Thanks, will try those, I should point out I have tried manganese (citrate) before bed but maybe I am not taking correctly.

Jam