Search found 8 matches

by VickiG
Tue Mar 29, 2005 9:51 am
Forum: General Discussion
Topic: MS & Low back pain?
Replies: 7
Views: 13921

back pain

I second the opinion that back pain should be treated adequately and that a neurologist is not the most appropriate doctor for this complaint. I have had very good luck consulting my primary physician who has referred me to an excellent physiatrist and spine center. A dedicated and imaginative physi...
by VickiG
Mon Nov 01, 2004 10:42 am
Forum: General Discussion
Topic: MORE ON DESIPRAMINE (ceramide, bdnf, sodium density)
Replies: 8
Views: 3982

Desipramine/ fluoxetine combination

Thank you again, Deb, for your on-going investigation of desipramine. As we've discussed before, combining fluoxetine (Prozac) with a tricyclic like desipramine results in an over-increased serum level of desipramine. And as you have stated, this dosage would be too high for ms treatment. BUT, if on...
by VickiG
Tue Oct 26, 2004 10:07 am
Forum: General Discussion
Topic: Blood Brain Barrier
Replies: 5
Views: 3324

secondary progressive

Bromley, And this is straightforward if somewhat subjective evaluation: You have moved from RR to SP when: > You stop having clear relapses followed by complete or near remission. > And your symptoms are more consistent, like a plateau, without clear remissions. > Your symptoms may gradually get wor...
by VickiG
Tue Oct 26, 2004 9:42 am
Forum: Low Dose Naltrexone
Topic: What to do...?
Replies: 6
Views: 3675

schedule and effects

Dear Tara, I haven't seen reports of consistent reactions to LDN. But I can report my own. In the 10-12 hours after taking my 4.5 dose, I sleep well and rest. In fact, if I take it too late in the evening, I wake up in the morning feeling "run down". Since it initially suppresses endorphin...
by VickiG
Thu Oct 21, 2004 12:34 pm
Forum: Natural Approach
Topic: Anybody taking Ferulic Acid?
Replies: 5
Views: 4679

After reading the synctin report here at ThisIsMS, I did a little more research on ferulic acid and thought that I would try it. I am now taking Source Naturals brand "athletic series" Trans-Ferulic Acid. I take 250 mg with breakfast and again with lunch. (500 daily) I've only been taking ...
by VickiG
Mon Oct 18, 2004 5:45 pm
Forum: General Discussion
Topic: 4-Aminopyridine
Replies: 9
Views: 4076

BAD experience

Hi Cleo, Several months ago I tried 4-aminopyridine at the dose that my research found: 5mg 3 times a day. My neurologist was willing and prescribed it for me. I am SPMS. I did use it three times a day in the hopes of better nerve transmission. About four days into the treatment, my usual leg dysthe...
by VickiG
Mon Aug 02, 2004 10:14 am
Forum: General Discussion
Topic: Spasticity/Clonus
Replies: 15
Views: 14738

Spasticity problems

Well, you've gotten a lot of good advice. Especially, find an ms specialist or clinic. Everyday neuros are not reliable for ms. Re: spasticity. I have one word: Keppra! maybe 3 words: Keppra! Keppra! Keppra! It's an anti-epilepsy drug so it's off-label for ms but it has changed my life. I take 2500 ...
by VickiG
Sun Jun 06, 2004 11:03 am
Forum: Copaxone
Topic: Copaxone and LDN
Replies: 3
Views: 7250

copaxone and LDN

BeeBee, I'm taking both copaxone and LDN. My neurologist prescribed LDN when I requested it. He has other patients also taking it. I go to St. Luke's Neuroscience Center in Milwaukee, WI. My neurologist is Bhupendra Khatri. He and the Center are nationally known. ( He is one of the major researchers...

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