Search found 10 matches

by goatgirl
Thu Sep 05, 2013 9:19 am
Forum: General Discussion
Topic: Lunch suggestions?
Replies: 11
Views: 1059

Re: Lunch suggestions?

Sardines. Straight out of the tin with flax seed crackers...or resting on a bed of spinach with fresh lemon squeezed over. Quick, easy.
by goatgirl
Mon Aug 27, 2012 5:02 pm
Forum: General Discussion
Topic: Doctor refuses ALL medications for over a year now?
Replies: 6
Views: 1324

Re: Doctor refuses ALL medications for over a year now?

What side of town are you on? I realize it's several months later, but have you found a Dr. yet? I'm not sure about what insurance they take, but my neurologist is Jeannette Wendt and I'm happy there. http://nwneuro.com/Physicians/ I've heard good things about the Barrow neurological center up in Ph...
by goatgirl
Mon Aug 27, 2012 4:39 pm
Forum: Daily Life
Topic: 25 (had to drop out of college)...what to do now?
Replies: 2
Views: 1819

Re: 25 (had to drop out of college)...what to do now?

Maybe redefine what you want, and address the physical and emotional feelings you're having through various meds, supplements, and exercise regimens. There is a lot of information on that within these forums. Taking care of a house is overrated, I can't help ya on that front! :) I'm the only one in ...
by goatgirl
Mon Aug 27, 2012 2:59 pm
Forum: Campath (Lemtrada, Alemtuzumab)
Topic: pseudo relapses after Campath
Replies: 8
Views: 6123

Re: pseudo relapses after Campath

My husband and I were wondering how they'll address protocol too. Full patient compliance is a very difficult thing to achieve. At my site a couple of people have been kicked out of the study because they stopped coming in. Personally, I'm getting sick of the monthly draws, and really hated the chan...
by goatgirl
Mon Feb 21, 2011 4:13 pm
Forum: Campath (Lemtrada, Alemtuzumab)
Topic: just came from my routine 3month campath visit
Replies: 4
Views: 3019

Extension

Hi, wow, there's rarely any activity in the Campath discussions! I never quite know how to feel about that. I just signed the extension too. It's not necessarily yearly infusions though. For sure it's continuing the same tests; the blood, urine, neuro & physical exams, quality of life questionnaires...
by goatgirl
Wed Jun 09, 2010 8:54 pm
Forum: Campath (Lemtrada, Alemtuzumab)
Topic: Is Campath helping you?
Replies: 8
Views: 3643

I was kind of rambling there, sorry. In case I wasn't clear I've been in the trial for 15 1/2 months or so. In all that time I've had one very minor episode. In fact I wasn't entirely certain it was one until they poked me with a pin and declared it so. The Year prior to that I had an episode every ...
by goatgirl
Wed Jun 09, 2010 8:01 pm
Forum: Campath (Lemtrada, Alemtuzumab)
Topic: Is Campath helping you?
Replies: 8
Views: 3643

Hi! I have nothing to compare Campath usage to. I'm in the branch for the newly diagnosed and had my second year infusion not too far back. After the first infusion in February 2009 I felt not so great by the end of the week, but that only lasted a few days. Then I was sluggish for a few weeks, not ...
by goatgirl
Sat Mar 14, 2009 11:35 am
Forum: Introductions
Topic: New
Replies: 5
Views: 1405

Good fortune, I don't know. This MS gig will inevitably change my lifestyle for the negative. I'm "healthy", because it's early... Dx within 8 months of my very first symtom. As far as the marathon, all the running that led up to that was a morning ritual as part of my lifestyle started years prior ...
by goatgirl
Sat Mar 14, 2009 10:28 am
Forum: Introductions
Topic: New
Replies: 5
Views: 1405

New

Can I just say that MS sucks?! Got my official diagnosis January 6th, this year. I was relieved then shocked...upset, mad, and not so sure what to think now. Maybe I'm floating into the realm of acceptance?! Do you ever really accept it? I've only had 2 real episodes. The first was in the spring jus...
by goatgirl
Sun Mar 01, 2009 8:48 am
Forum: Campath (Lemtrada, Alemtuzumab)
Topic: Another alemtuzamab labrat
Replies: 84
Views: 19220

Hi guys. I just finished on Friday too. One thing to ask about is Acyclovir, it's an anti-viral. On Day 1 my neuro said there's been an amendment to the protocol and while it's not effective yet she was leaving it up to me if I wanted it. We both thought it would be beneficial and one of the study f...