Search found 105 matches

by Mike56
Sun Jan 29, 2012 9:10 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Who has been tested?
Replies: 10
Views: 1430

Re: Who has been tested?

I participated in a CCSVI study at False Creek Healthcare, British Columbia the end of 2010. They did MRV scanning on 100 mser's and 100 non-mser's to see if there was any diference in the occurances of CCSVI. I recieved my scan disk in mid 2011, but got no report on whether or not I have CCSVI. I w...
by Mike56
Wed Jan 25, 2012 9:09 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: have most been treated?
Replies: 24
Views: 2703

Re: have most been treated?

For me another interesting question would be "who has been tested", but hey, it's your post, so no, I haven't been treated.
by Mike56
Sun Jan 15, 2012 12:49 pm
Forum: General Discussion
Topic: On what basis did your doc diagnose you?
Replies: 18
Views: 2464

Re: On what basis did your doc diagnose you?

Brain biopsy determined suspected tumor is a large demialinating (sp) MS type of lesion. Multiple brain lesions, no C-spine lesions. MS symptoms, tests ruled out other diseases. Positive lumbar puncture.
by Mike56
Fri Jan 13, 2012 9:01 am
Forum: General Medications
Topic: gabapentin
Replies: 10
Views: 6219

Re: gabapentin

I felt more tired when I first started taking gabapentin, but once I built up to an effective dose, that tired feeling went away, although I still struggle with fatigue, which to me feels different that a drug induced tiredness. I've tried to reduce my dose a couple times by 300mg/day but each time ...
by Mike56
Tue Dec 20, 2011 7:44 am
Forum: Rebif
Topic: Why did you choose Rebif?
Replies: 7
Views: 4998

Re: Why did you choose Rebif?

It was recommended by my neurologist, but it's the one I would have chosen because of the 3 shots per week.
by Mike56
Sat Oct 15, 2011 2:23 pm
Forum: General Discussion
Topic: What was your first symptom?
Replies: 13
Views: 1340

Re: What was your first symptom?

Numb arm, uncoordination.
by Mike56
Thu Oct 06, 2011 10:26 am
Forum: General Discussion
Topic: Web Sites ?
Replies: 2
Views: 1007

Re: Web Sites ?

Medhelp?
by Mike56
Thu Oct 06, 2011 10:00 am
Forum: Suggestions
Topic: undiagnosed forum????
Replies: 8
Views: 7825

Re: undiagnosed forum????

Thanks NHE, now that I am diagnosed this isn't as important to me, but I think it would be helpful for others.

Mike
by Mike56
Wed May 25, 2011 1:53 pm
Forum: Rebif
Topic: New shot giver thingee..
Replies: 29
Views: 6897

oreo - I just got some needles from Serono. They did include a card, but no name on it, so of course no credentials either. It's just a generic card, English on one side and French on the other, saying Multiple Support Program Ph # & fax # PatientServices@emserorno.com address in Ontario and their w...
by Mike56
Tue May 17, 2011 7:28 am
Forum: General Discussion
Topic: ms at older age
Replies: 15
Views: 3017

Hmmmmm........

I was diagnosed when I was 53. I'm now 55......so I'm going to start feeling better in my 80's. Can't wait.

M
by Mike56
Tue May 17, 2011 7:14 am
Forum: Rebif
Topic: New shot giver thingee..
Replies: 29
Views: 6897

I hear you CoffeD. I'm in BC canada. My nurse was from a private company, hired by Sereno, and while she did a great job training me how to use the Rebismart, I never heard from her again. After a month or two of using Rebif, I got a call from a rep who gave me his contact info. This is the guy I ca...
by Mike56
Sat Sep 25, 2010 9:02 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: False Creek ( Vancouver ) announces ccsvi study
Replies: 13
Views: 2766

I signed up online yesterday.

I'm pretty excited about it too, Cece. While I doubt I'll be chosen (i'm 54) just knowing this study is being done gives me hope, and signing up makes me feel like I'm at least trying.....

Thanks for the post garyak.

Good info MrSuccess.

Mike
by Mike56
Wed Aug 25, 2010 9:17 am
Forum: Rebif
Topic: New shot giver thingee..
Replies: 29
Views: 6897

Hi Andie

I think if you were to start a new post you might get some responses to this question.

This post is about the Rebif injector.

Thanks

Mike
by Mike56
Sun Aug 22, 2010 12:40 pm
Forum: Rebif
Topic: New shot giver thingee..
Replies: 29
Views: 6897

The standard packaging is one months supply (4 vials, one vial per week). No, you do not need to refridgerate the machine once you load a vial into it. Rebif can be kept at room temp for up to a month (up to 25 C). If you are in a very warm area, you can remove the vial from the machine and put it i...
by Mike56
Fri Aug 20, 2010 11:45 am
Forum: Rebif
Topic: New shot giver thingee..
Replies: 29
Views: 6897

I just spoke to my assigned rep at Rebif.

He says the RebiSmart is available in the UK and in Canada, but not yet in the US or Australia.

Mike