Search found 104 matches

by rssugg
Fri Jan 13, 2012 12:52 pm
Forum: General Discussion
Topic: numbness n both feet
Replies: 5
Views: 2316

Re: numbness n both feet

i have it in my toes, but it is because of herniated disk. I believe the involvement with MS is that my core is weak and more pressure is on the spine leading to the herniation. I will get a fusion before too long.
by rssugg
Tue Jan 10, 2012 9:17 am
Forum: Revimmune (cyclophosphamide or cytoxan)
Topic: Cyrevia (Formerly Revimmune)
Replies: 1
Views: 4847

Cyrevia (Formerly Revimmune)

In December, Accentia Bio changed the name of their Multiple Sclerosis therapy Revimmune (HiCy or High Dose Cytoxan) to Cyrevia. As the company is working toward starting PH III trials this year, it is also registered the domain name www.cyrevia.com to reserve the name for Cyrevia. In step with thes...
by rssugg
Tue Nov 22, 2011 7:31 am
Forum: Revimmune (cyclophosphamide or cytoxan)
Topic: Analysis of 40 JH HiCy Patients
Replies: 6
Views: 5434

Re: Analysis of 40 JH HiCy Patients

While everyone else was looking and hoping for CCSVI, Revimmune has been slowly getting their ducks in order and is poised to get on the market shortly. If a drug is working good for you, and you don't want to get rid of this disease, then that means I dont have to wait as long to get revimmune. We ...
by rssugg
Tue Oct 04, 2011 2:10 pm
Forum: General Discussion
Topic: Could this be the beginning of the end to RRMS?
Replies: 8
Views: 1692

Re: Could this be the beginning of the end to RRMS?

we shall see - the FDA is set to approve Revimmune for treating MS (it has been approved for years and years for other things) before year end. They issued orphan status to protect Accentia's stake in development of the drug about a month or so ago - maybe six weeks now. By doing such, the FDA is ba...
by rssugg
Mon Oct 03, 2011 3:56 pm
Forum: General Discussion
Topic: BG-12 and Revimmune - What gives?
Replies: 3
Views: 1069

Re: BG-12 and Revimmune - What gives?

^^The neuros feel that BG-12 will be available early 2012 (ph III results due within two weeks or so) and revimmune should have FDA approval for MS by year end.
by rssugg
Sat Oct 01, 2011 6:38 am
Forum: General Discussion
Topic: BG-12 and Revimmune - What gives?
Replies: 3
Views: 1069

BG-12 and Revimmune - What gives?

I need a little clarification from the group about the upcoming changes of the MS drugs scene. BG-12 and Revimmune are set to go to market within the next 6 months or so, but TIMS isnt really tracking it. 1) There are hundreds of folks out there that have been in trials for BG-12 and I havent really...
by rssugg
Mon Sep 26, 2011 10:06 am
Forum: Revimmune (cyclophosphamide or cytoxan)
Topic: Analysis of 40 JH HiCy Patients
Replies: 6
Views: 5434

Re: Analysis of 40 JH HiCy Patients

Would someone please tell me why this is getting almost no attention from these boards?

Ive been waiting on this for years and its almost here!
by rssugg
Tue Jul 12, 2011 9:03 am
Forum: Revimmune (cyclophosphamide or cytoxan)
Topic: Multiple Sclerosis drug Revimmune receives FDA designation
Replies: 6
Views: 16293

i thought this was dead on arriveal - but i still want to try it
by rssugg
Wed Feb 02, 2011 5:19 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Feedback Barometric pressure
Replies: 8
Views: 2432

Most folks with MS have this issue - i discussed this with my ccsvi doctor and he blieves that there is a strong correlation to pressure and venous outflows due to the unequal pressure of the head and the rest of the body.
by rssugg
Mon Dec 27, 2010 5:17 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: cheaper options than $25,000
Replies: 19
Views: 4597

wow - its hard to believe that this many people are living with MS without insurance :cry:
by rssugg
Wed Dec 08, 2010 3:56 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI scan in Toronto
Replies: 4
Views: 1761

knowing what i now know, i wouldnt do it.

Even skilled technicians have a 50/50 positive result.
by rssugg
Mon Dec 06, 2010 12:01 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: November 30, 2010-my new birthday!
Replies: 16
Views: 3336

CONGRATS!!
by rssugg
Mon Nov 22, 2010 6:32 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CHARLOTTE, NORTH CAROLINA CCSVI MEETING NOV. 28th
Replies: 5
Views: 1783

back to the top
by rssugg
Fri Nov 19, 2010 11:50 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CHARLOTTE, NORTH CAROLINA CCSVI MEETING NOV. 28th
Replies: 5
Views: 1783

I will be there too! :lol: