Search found 444 matches

by ikulo
Thu Jan 31, 2013 8:03 am
Forum: Natural Approach
Topic: Vitamins/Minerals from Dr Wahls clinical trials of her diet
Replies: 15
Views: 14565

Re: Vitamins/Minerals from Dr Wahls clinical trials of her d

Sidenote - Another paper published regarding Dr. Wahl's diet noted the use of these supplements: "2 g each of glutathione, N acetyl-cysteine, and taurine daily, and lithium orotate 300 mg twice daily." Also, "Her MS medications included B complex vitamins, carnitine, lipoic acid, gabapentin, bupropi...
by ikulo
Wed May 09, 2012 5:48 pm
Forum: Natural Approach
Topic: IV Glutathione
Replies: 5
Views: 4785

IV Glutathione

I just started seeing a holistic MD and she's trying to push the IV Glutathione. I haven't found any literature that would convince me it is particularly effective with MS, though here's some anecdotal stuff regarding Parkinson's. Never mind the price tag at over $100 per shot!! ouch. I know glutath...
by ikulo
Wed May 02, 2012 9:08 pm
Forum: General Discussion
Topic: almostCLever Update
Replies: 11
Views: 1462

Re: almostCLever Update

I had a western blot through Directlabs (Labcorp), which came back CDC positive. Then found a doctor near me who was open to testing. She had me tested through Igenex, which came back negative. Strange. Was put on Doxycycline after the positive test. I started feeling better after a few weeks. After...
by ikulo
Wed May 02, 2012 8:58 pm
Forum: General Discussion
Topic: Relapse triggered by massage
Replies: 5
Views: 2632

Re: Relapse triggered by massage

I had a massage a few months ago and also felt terribly afterward. I was very disappointed because I was hoping that a massage would provide some relief from spasticity. I also have a brainstem lesion.
by ikulo
Fri Apr 13, 2012 9:14 pm
Forum: Regimens
Topic: Newbie here with my diet regimen
Replies: 4
Views: 2775

Re: Newbie here with my diet regimen

Hey cg50, thanks for posting. I'm curious what your fat intake is like. I tried to the paleo, but I did a higher fat intake than before and my symptoms got significantly worse. I'm wondering if the paleo diet works for MS but with a reduced fat intake. I was eating a lot of Sat fat, which is recomme...
by ikulo
Fri Mar 30, 2012 3:27 pm
Forum: General Discussion
Topic: Does this sound right..?
Replies: 6
Views: 1057

Re: Does this sound right..?

Just to add on to jimmylegs' suggestion, you can also check out directlabs.com for DIY blood tests. I can sympathize with the bad insurance.
by ikulo
Wed Mar 28, 2012 7:48 pm
Forum: General Discussion
Topic: MRI is Normal....can I stop worrying now?
Replies: 9
Views: 7915

Re: MRI is Normal....can I stop worrying now?

Without lesions you cannot have MS. MS = Multiple Sclerosis = Multiple Lesions.

Did they scan just the brain or the spine also? You may have lesions in your C-spine/T-spine.
by ikulo
Wed Mar 21, 2012 6:27 pm
Forum: Tecfidera (BG-12, dimethyl fumarate)
Topic: Biogen files NDA for BG-12
Replies: 8
Views: 4281

Re: Biogen files NDA for BG-12

This one is going to be a blockbuster. I'm sure they're going to price it accordingly.
by ikulo
Mon Mar 12, 2012 10:23 pm
Forum: General Discussion
Topic: Could a virus be the cause of MS?
Replies: 5
Views: 1301

Re: Could a virus be the cause of MS?

So far I count a handful of viruses and a similar amount of bacteria that are thought of being the cause and/or contributing to MS. How can all these studies have essentially conflicting conclusions? HERV, EBV, HV6, Cpn, etc. I guess it just doesn't make sense that all of these could the culprit. St...
by ikulo
Fri Mar 09, 2012 9:59 pm
Forum: General Discussion
Topic: Recruitment starts on Multiple Sclerosis hookworm trial
Replies: 14
Views: 2066

Re: Recruitment starts on Multiple Sclerosis hookworm trial

Are hookworm therapies available through private clinics in the US or is this only going on through a trial? Not available in the USA at all thanks to the FDA looking after your interests :wink: The trial of Hookworm as a treatment is starting at Nottingham University (UK) and will run for a year. ...
by ikulo
Fri Mar 02, 2012 3:41 pm
Forum: General Discussion
Topic: Recruitment starts on Multiple Sclerosis hookworm trial
Replies: 14
Views: 2066

Re: Recruitment starts on Multiple Sclerosis hookworm trial

Are hookworm therapies available through private clinics in the US or is this only going on through a trial?
by ikulo
Sun Feb 26, 2012 11:10 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Stent fears inhibit good care sometimes
Replies: 43
Views: 3962

Re: Stent fears inhibit good care sometimes

Personally I would be more comfortable recommending stents to MS patients once we have proven the efficacy of stenting as treatment of CCSVI. The debate over the risk of any treatment is only relevant when weighed against the benefits. Since we are in the infancy of treating CCSVI syndrome and outco...
by ikulo
Mon Feb 20, 2012 7:55 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: ISNVD abstracts available online
Replies: 4
Views: 1040

Re: ISNVD abstracts available online

Haha... Cece you're so right. I'll be reading these all night. Oy!

Thanks for posting!
by ikulo
Mon Feb 13, 2012 10:40 pm
Forum: General Discussion
Topic: Multiple sclerosis on the rise in India
Replies: 16
Views: 3333

Re: Multiple sclerosis on the rise in India

For other geeks like me. There are about 600 MRI scanners in India today; by the end of the next decade, the number is likely to have increased to 1000 or 1200. . . . with the economy booming and the GDP growth at 8-9%, it may become possible to acquire MRI equipment more easily and ensure that its ...
by ikulo
Mon Feb 13, 2012 10:36 pm
Forum: General Discussion
Topic: Multiple sclerosis on the rise in India
Replies: 16
Views: 3333

Re: Multiple sclerosis on the rise in India

Come on guys. This was a brief article about the rise of MS in India. How do we go from that to pointing the finger at pharma, again. Getting back on topic, if there is an increase, could that be due to an increase in just the diagnosis of MS? For example, an explosion of medical technology in India...