Search found 47 matches

by Bear2
Wed Dec 28, 2011 8:10 am
Forum: General Medications
Topic: oxybutynin
Replies: 8
Views: 5507

Re: oxybutynin

I started out at 4 inches and it helped with leg spasms but when I went to 6 inches it stopped the getting up 5-6 times a night to pee. The leg spasm was orginially stopped if I let my leg slide of side of bed for a few mins. I had forgotten having them previous to raising my bed.
by Bear2
Wed Dec 28, 2011 3:52 am
Forum: Rebif
Topic: Disposing of Needles
Replies: 13
Views: 9780

Re: Disposing of Needles

Walgreens has the needle clipper, works great and prevents me from sticking myself accidently.
by Bear2
Tue Dec 27, 2011 7:49 pm
Forum: General Medications
Topic: oxybutynin
Replies: 8
Views: 5507

Re: oxybutynin

Have you tried Inclinded Bed Therapy? Basically it involves raising the head of your bed 6 inches. This works for me. Before I started this about 1 year ago I was getting up 4-5 times every night to pee. About 1 week after I started this I stopped getting up. Most of time I get up once and some time...
by Bear2
Sun Nov 20, 2011 6:56 am
Forum: General Discussion
Topic: provigil for fatigue study showed no improvement in fatigue
Replies: 6
Views: 2346

Re: provigil for fatigue study showed no improvement in fati

Provigil worked fantastic for me. I would alway drift off while driving. I drive alot, 30-40K per year for work. Most trips are 2-3 hours. It got to the point were I would have to stop and get out walk around and even nap. I started taking Provigil and it worked great. No more drifting off while dri...
by Bear2
Sat Sep 24, 2011 1:30 pm
Forum: Copaxone
Topic: injecting without auto inject?
Replies: 6
Views: 3277

Re: injecting without auto inject?

Shucks, I inject manually in the stomach and thighs. It only needs to get under the skin so it can be done at any angle 10-45 degrees. I use the auto on my hips(butt) because I don't have enough control/dexterity to manually inject back there. Manual is better because I can inject slower which decre...
by Bear2
Tue Sep 20, 2011 4:35 am
Forum: General Medications
Topic: Experiences with Amantadine
Replies: 7
Views: 7639

Re: Experiences with Amantadine

The dogs do need a walk or two and taking the kibbler along is a good job. I only started the provivigil when the fatigue was so bad that I would doze off driving. It sounds like you don't need that. I have found a dietary supplement "B-12 Energy Now!" , which is packets of B-12 that can be mixed in...
by Bear2
Tue Sep 06, 2011 9:33 am
Forum: Daily Life
Topic: Walking Boots For People With Footdrop ??'s
Replies: 7
Views: 11078

Re: Walking Boots For People With Footdrop ??'s

Try one of these: http://www.x-strap.com/. I have one of these on the 3 shoes that I wear. They are not fantastic but they do help support my ankle also. They are cheap compared to any other medical equipment. And if I didn't like it, I would only be out $35-40 US. But, instead I bought 3 of them. M...
by Bear2
Mon Sep 05, 2011 5:37 am
Forum: General Medications
Topic: Experiences with Amantadine
Replies: 7
Views: 7639

Re: Experiences with Amantadine

Froggie, I haven't taken Amantadine before. I looked it up and I could not find any thing that would indicate that it was efective for fatigue. Fatigue was never mentioned. I took Provigil for fatigue until insurance co stopped covering it, it was excellant for fatigue. They stopped covering it so I...
by Bear2
Sun May 15, 2011 4:52 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 1812290

Dr Sclafani, The one incision is the best idea yet. Only 1 stick is way better than an IV in the arm and the access for the sheath in the groin. When the guide wire is high up and touches something(nerve), it is not painful but rather a crackeling sound and an uncontrolled twitch. It is a weird sens...
by Bear2
Fri May 13, 2011 9:40 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 1812290

I had lots of pain during my recent azygous balloning. It was very painful during the inflation of the ballon. I was given 75 mg of fentanyl on 4 seperate times during the procedure. It probably helped, but it was still very painfull. My chest was very sore for a couple of days. I had hiccups for th...
by Bear2
Thu Feb 24, 2011 5:47 am
Forum: General Discussion
Topic: Help - bladder issue advice really needed
Replies: 36
Views: 11607

I was getting up 5-6 per night no matter what I did. 9 months ago, I started IBT, at first 4 inches than after 2 months, I went up to 6 inches. After this, I only get up once, about 530am and sometimes never get up. When I did the CCSVI procedure the last time in Sept 2010, I started sleeping flat a...
by Bear2
Wed Jan 26, 2011 5:07 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: BNAC now offers Venous Doppler testing for $675
Replies: 20
Views: 4186

CCSVI Atlanta offers doppler testing for $ 550.00
by Bear2
Sat Nov 27, 2010 3:54 pm
Forum: Drug Pipeline
Topic: FDA Approves Ampyra fampridine-SR
Replies: 33
Views: 16484

Nina, My neuro precribed it and I got it from a local compounding pham. I now take Ampyra which is cheaper through my insurance. Kind of crazy since the Amprya is $1100+ per month and the 4ap is $125. The insurance covers Ampyra with a copay of $20 and will not pay for 4ap since it is not an approve...
by Bear2
Sat Nov 27, 2010 3:38 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: 2 days to go/the BBC
Replies: 12
Views: 2503

Good Luck on your trip.

I would like to see that BBC report/show.

Jim
by Bear2
Thu Nov 25, 2010 1:45 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 1812290

http://farm5.static.flickr.com/4110/5193993723_38f3bbb802.jpg Finally, the venogram after this angioplasty shows some filing defects but the flow was phenomenal. I believe the filling defect is a detached part of the valve. Dr Sclafani, Those are beautiful images. Is the use of high pressure ballon...

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