This Is MS Multiple Sclerosis Knowledge & Support Community

Hi Carrie we were next to you and Gary in the waiting room at Edinburgh. I posted on the 'EJC liberated' thread to say that we had seeen nothing so far but having said that, my wife, Annemarie, does seem to have rosier cheeks and may have slight vision improvement. So glad that you are seeing improv...

Hi my wife had her procedure at Edinburgh Clinic on 15/1/11. She is ppms. Mr Reid showed me the images from the scan of the veins as he had treated them immediately after. Her left internal jug was only 1mm and he ballooned it as much as he felt safe to do (he was very keen to be safe). the right in...

Hi EJC
very glad to hear that Emma is showing improvements and hope these continue.
Sorry if this has been asked before but would you please mind telling which diagnosis Emma had? My wife is PPMS and its difficult to find references that aren't RRMS.
Thank You for all the updates.

Thanks Amber. Doing some work with the physio as well. Best wishes to you.

Is there anything anyone can recommend for helping to regain balance and be more confident when walking?
I am PPMS and can't walk without support now.
Any advice would be much appreciated.

Thank You

Squiffy

in advising not to have angioplasty, was the azygous vein considered which is not covered by the doppler scan?

Thanks

Thanks SaintLouis
that seems to make sense for you and my wife who get worse in the cold but doesn't seem to explain it for the people who are worse in the warmer weather.
If only all the jigsaw pieces were in the same box!

Thanks for the responses all.
My wife only feels better when the weather gets warmer.
Would love to know why it is cold for some people and warm for others though. Maybe it is to do with parts of the nervous system that have been damaged. We will keep looking.

My wife, who was diagnosed ppms in 2007 gets worsening symptoms when the weather turns cold. We know though that a lot of pwms get worse when the weather is warm. Apologies if this has been asked before but has any explanation been put forward regarding CCSVI and the effects of cold or warm weather ...

Andrew sorry to be a pain, but it is not always easy when full time job and looking after my wife (ppms), to get time to search through everything. Do you recall from journals or threads on TIMS, anyone with Primary Progressive MS showing inprovements from IBT? This would be good to give my wife enc...

Hello my wife is ppms and from Scotland (not far from Glasgow). Her parents had picked up on the Tiger Tim story from the local press and we followed it thre and on the internet. We would like to know how things are going in the weeks following the procedure but seem to have lost the thread. Does an...

Hello Andrew I haven't posted on this thread before. My wife was diagnosed ppms in 2007 after symptoms beginning in 2005 following miscarriage after 4 months. Her first symptom was nystagmus followed by an intention tremor to right arm/hand and in the last six months an intention tremor to the left ...

Just had this response from MS Society UK to my enquiry as to why ccsvi is not on their site: "We appreciate that our research web pages are not the easiest to navigate which is why we are updating them at the current time. One of the new features that we're planning for the web pages is an A-Z...

Thank You Cheer

I echo what ACOL says.

I will make time to read further on this.

Best Wishes
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Hi this part of the site is getting so large I can't keep up with it all so excuse me if this has been raised before. In a lot of things I've read about environmental factors in ms and vitamin d there seems a big connection to amount of sunshine you get where you live and the percentage of populatio...