Search found 93 matches

by Inge67
Tue May 18, 2010 3:47 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: fiddler finally flying... to Poland
Replies: 118
Views: 29136

:D :D :D

very very good Ted!
by Inge67
Mon May 17, 2010 11:34 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: fiddler finally flying... to Poland
Replies: 118
Views: 29136

Hi Ted, this sounds good though! Albeit a small inprovement, it is one for sure! I just want to update you om my progress: today my fysiotherapist scores me for the first time after the procedure with the Berg balance scale. It is a scale with 14 items where you can score a maximum of 56 points. Bef...
by Inge67
Sun May 02, 2010 4:07 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Where's the best place to travel to for CCSVI?
Replies: 15
Views: 5481

Yes agreed without a doubt. But I was taking the waitinglist into consideration. These are alternatives in europe.
by Inge67
Sun May 02, 2010 12:05 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Where's the best place to travel to for CCSVI?
Replies: 15
Views: 5481

There is à commercial firm in Düsseldorf, Germany. Called Prescan ( www.prescan.nl) They do scanning (doppler and MRV) for € 1395 and are thinking about treatment. There is also dr. Vogl in Frankfurt, germany. He does scanning and treatment. I think cost of scanning are € 1200 and cost of treatment ...
by Inge67
Sat Apr 24, 2010 5:33 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: fiddler finally flying... to Poland
Replies: 118
Views: 29136

Hi all,

I will be flying to Poland as well on Monday. I will arrive at Katowice late afternoon. Ready to go for the treatment on Tuesday 26th!

Very exited to go. And relieved that travel circumstances have simplified much since last week...what a stress factor that was!

Inge
by Inge67
Mon Apr 19, 2010 1:25 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Volcanic ash affecting aviation in Europe
Replies: 27
Views: 6072

Seems like airports are opening up again slowly and under strict restrictions. They intend to fly certain corridors. I think england, germany and some French airports are opening up. Hopefully things get back to normal soon..
by Inge67
Sun Apr 18, 2010 2:40 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Volcanic ash affecting aviation in Europe
Replies: 27
Views: 6072

Ted, I just read that spain is opening up airports. You need to travel by train then for at least 2-3 days i think, but this might be an opportunity. THE netherlands will be closed until monday afternoon 14 hours. Uk Will be closed until monday morning, like germany. But things are moving here: i ex...
by Inge67
Mon Apr 12, 2010 6:59 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI tracking project-POST PER P.1 FORMAT ONLY
Replies: 163
Views: 399346

Tracking

CCSVI TRACKING 04/12/2010 MS HISTORY Inge (Inge67) Female 42 Date(s) & type of neurological diagnosis RRMS started in 1999, diagnosis in 2002 Lesion locations most affected side: right. number: initially 14, now probably more than 20 MS treatments: 2002 - august 2007 Rebiff interferon september ...
by Inge67
Mon Apr 12, 2010 6:17 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Fysiotherapy testing before Liberation Treatment and follow
Replies: 5
Views: 2653

See, I never stop learning here!
I did not know that.
Thanks.
by Inge67
Mon Apr 12, 2010 5:58 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Fysiotherapy testing before Liberation Treatment and follow
Replies: 5
Views: 2653

True, but our line of thinking was as follows: a lot of MS patients do not see their neuro regularly, so a 0 measurement would be difficult to schedule with a neuro, let alone the monthly follow ups. Most pwMS have some sort of fysiotherapy in order to cope with their fysical problems, so this measu...
by Inge67
Mon Apr 12, 2010 5:34 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Fysiotherapy testing before Liberation Treatment and follow
Replies: 5
Views: 2653

Fysiotherapy testing before Liberation Treatment and follow

Hi all, My fysiotherapist is advising everyone who is about to undergo the Liberation Treatment, to ask their own fysio to do a so called 0-measurement. Then, when you had the liberation treatment, it is easy to do a monthly follow up on the same tests. With this, an objective scale is used to estab...
by Inge67
Mon Apr 12, 2010 5:26 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 2759744

tracking results

Hello Dr. Sclafani, Further to your tracking trial plans, I have asked my fysiotherapist which test she uses to score me before my Liberation Treatment. She has thus set a so called 0-measurement, and is planning to do a monthly follow up to report improvements after the procedure. - Berg Balance Sc...
by Inge67
Sun Apr 11, 2010 9:21 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Updated my blog
Replies: 20
Views: 5914

Hear hear Loobie! Well said.

Sorry to hear about your dizzyness though.

Stay well!
Inge
by Inge67
Sun Apr 11, 2010 2:41 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Crocky's trip to Poland
Replies: 11
Views: 3287

Congratulations Crocky!
So good to hear that everything went well and that already slight improvements are noticable.
Please take care and be well!

Inge
by Inge67
Sat Apr 10, 2010 11:59 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: April 26, Katowice, Poland, am I alone?
Replies: 23
Views: 6338

Hello all,

that is good yo hear Brynn. We will be in the hospital together!

Sorry I won't be able to see you Mila77, and indeed heartfelt condoleances to the Polish people for the terrible tragedy yesterday.

Val, we will probably meet at the Qubus. I know that Fidler will be there too.

Inge

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