This Is MS Multiple Sclerosis Knowledge & Support Community

1hunter wrote:sent you a PM did you get it?

Nope. And, I've been calling local IRs' - no positive response so far....

35 people viewed my original post. Any of you want to work with me to make some calls and educate some dr.s in the Madison, WI area? PM me.

Has anyone in or near Madison, WI contacted any IRs locally? I know UW Madison is doing a study of CCSVI funded by the NMSS but was wondering if there was anything else going on?

You can pm me with info to keep it private...

Yes, after angioplasty of both jugulars and azygos, total relief from my moderate to severe RLS. When the jugulars began to restenose, it started up a little, but when the jugulars were reballooned it went away again. It's only been two weeks since the reballooning, but so far, so good. Smile Katie...

Has anyone who has been "liberated" experienced relief from restless legs syndrome? I can't find any info on it in the tracking thread and/or CCSVI FB site.
Thanks!

From the NMSS (US) press release: "Dr. Aaron Field, University of Wisconsin School of Medicine and Public Health, Madison...has put together a team that includes the director of the university’s MS clinic, experts in MRI physics and ultrasound, a neuroradiologist with extensive experience in va...

nor is the US NMSS. What's up with that?

Hi, all,
remember when we were kids and our parents told us the best way to defeat a bully was to ignore him? I suggest we ignore Dr. Rose. By responding to his CCSVI posts, we're egging him on. If we ignore him, he has no audience and nothing to respond to.

Just a thought,
VailKin

Quote: i don't think my jimmylegs were RLS exactly.. if the descriptions of RLS are spot on, i had something else. I did mean Restless Legs Syndrome but like jimmylegs my RLS isn't exactly RLS. I have bugs crawling up and down my bones in my lower legs, lower arms and lower trunk. I also have this f...

Am wondering if those who have been "liberated" had RLS and if so, was it relieved by the stenting and/or ballooning? I recently found an article about RLS at the Movement Disorders Virtual Library that identifies "vascular insufficiency" as a differential dx for RLS. I know that...

In 2008 I had neuropsych testing.The neuropsych Dr explained my results as consistent with the types of impairment they see with MS, particularly with frontal lobe lesions. I had just had an MRI showing a new lesion on my frontal lobe. The neuropsych was not aware of this MRI. He dxd me with executi...

Now that I've watched all these videos, I find the drs to be "oddly" defensive. They seem to be looking for problems in Zamboni's studies, problems with Dake, problems with our response to this news, and even problems with how the MS Society's request for studies was worded...I understand ...

Are deposits of iron found in brains of people with MS on autopsy? Does that speak to their statement that red blood cells aren't found brain? And also, Dr C asks how this explains the differences in subtypes of MS? Doesn't the fact that Zambonie found different percentages of his various criteria i...

Loobie wrote:If that guy can get Ian Duncan on board at UW, then a home run will have been hit indeed!

He's not on the cc list from the email but 7 other fairly big names are. Is Ian Duncan the animal MS guy?

Dr. Xxxx, University of Wisconsin Madison, professor of neuroradiology, has sent a letter of intent to the US NMSS regarding research into CCSVI. Yay! I do not know the details of his proposal but it appears the medical community is paying attention! I got this info in response to an email I sent bl...